Chat transcript with special guest @LovethatMax talking about her #specialteams and how she keeps the smiles alive!
| Transcript from March 4, 2010 to March 4, 2010 |
All times are Pacific Time
| March 4, 2010 | ||||
| @LoveThatMax – strategies for keeping the smiles alive! | ||||
| 1:21 am | SpecTeams: | Join us @ the top of the next hour 4 #specialteams chat – w/special guest mom/editor/writer @LoveThatMax – keeping the smiles alive! | ||
| 1:25 am | sneakpeekatme: | RT @SpecTeams: Join us @ the top of the next hour 4 #specialteams chat – w/special guest mom/editor/writer @LoveThatMax – keeping the smiles alive! | ||
| 1:27 am | 1cincymom: | RT @lovethatmax: Join the #specialteams chat tonight @ 9E/8C/6PST about strategies for staying sane while raising a kid with special needs. #specialneeds | ||
| 1:32 am | lovethatmax: | RT @1cincymom: Join the #specialteams chat in 30 mins about strategies for staying sane while raising a kid w/special needs. #specialneeds | ||
| 1:43 am | sneakpeekatme: | I’ll be popping in & out of chat tonight. Nurse leaves @ 6pm. Hope I can catch you!!! #specialteams | ||
| 1:47 am | SpecTeams: | @lovethatmax let me know when you get here! 🙂 #specialteams | ||
| 1:48 am | lovethatmax: | I am here! #specialteams | ||
| 1:48 am | lovethatmax: | There is a delay, just so you know, of a few seconds. #specialteams | ||
| 1:48 am | SpecTeams: | Join us at the top of the hour for a chat with @lovethatmax on keeping the smiles alive! #specialteams | ||
| 1:49 am | SpecTeams: | @lovethatmax great! glad you made it! #specialteams | ||
| 1:49 am | SpecTeams: | yes, there is a delay – unavoidable unfortunately #specialteams | ||
| 1:49 am | lovethatmax: | Thx! I think I am going to grab a cup of coffee for just a few secs #specialteams | ||
| 1:50 am | SpecTeams: | @sneakpeekatme we’ll be looking out for you! #specialteams | ||
| 1:50 am | SpecTeams: | @lovethatmax absolutely! #specialteams | ||
| 1:53 am | sneakpeekatme: | @lovethatmax As a tribute to Max & in an effort to keep Austin busy I think we will play Harold & the Purple Crayon shortly 😉 #specialteams | ||
| 1:53 am | lovethatmax: | I supposed I should confess my addiction first. I am addicted to General Foods Int’l coffees. Hazelnut. #specialteams | ||
| 1:53 am | kadiera: | I’m here, and alex is asleep. #specialteams | ||
| 1:53 am | SpecTeams: | @sneakpeekatme that sounds lovely! I’ve got the news on here … boring! #specialteams | ||
| 1:54 am | lovethatmax: | HA!!!! Love that. Although there is not a sufficient saturation of the color purple in the book to please Max. Seriously. #specialteams | ||
| 1:54 am | SpecTeams: | @kadiera hey there! thanks for joining! #specialteams | ||
| 1:54 am | sneakpeekatme: | Well I tried…Harold was vetoed in favor of Cinderella, he has a thing for blondes. #specialteams | ||
| 1:54 am | SpecTeams: | @lovethatmax I’m a coffe-holic! any kind, any where, any time! #specialteams | ||
| 1:54 am | lovethatmax: | Hi, Janis and Kadiera. I think my little girl is sitting at the top of our stairs listening. But I am choosing to ignore her. #specialteams | ||
| 1:55 am | kadiera: | @sneakpeekatme your son too? Alex flirts with the blonde nurses… #specialteams | ||
| 1:55 am | lovethatmax: | I have one cup of iced coffee a day, every morning. And, sometimes at night, Gen’l Foods coffee. Is there a coffee blog?! #specialteams | ||
| 1:55 am | SpecTeams: | Looks like there are a few people here early tonight, so I’m going to get things started with a couple general questions #specialteams | ||
| 1:55 am | SpecTeams: | while we wait for others to join #specialteams | ||
| 1:55 am | sneakpeekatme: | @lovethatmax I found this DVD which is VERY purple {crayon wise} at some discount $2 bin. #specialteams | ||
| 1:56 am | SpecTeams: | As it turns out this is running in driect conflict with another chat run by/for #specialneeds parents. As their effort (more) #specialteams | ||
| 1:56 am | lovethatmax: | Lucky you, Janis! OK, fully caffeinated, ready to go! #specialteams | ||
| 1:56 am | kpav5: | @LoveThatMax Mine is Dr Pepper. If you prick me DP would come out! lol #specialteams | ||
| 1:56 am | sneakpeekatme: | @kadiera oh TOTALLY! Ever since he was a baby…its funny. All of our nurses are brunette. #specialteams | ||
| 1:57 am | SpecTeams: | was planned and organized before I even thought of doing this, I am wondering if people would miond switching evenings (more) #specialteams | ||
| 1:57 am | kpav5: | @LoveThatMax So tell me, what gets you through the worst day? #specialteams | ||
| 1:57 am | SpecTeams: | to either Tuesday or Thursday – so that everyone can attend all chats they want without conflict #specialteams | ||
| 1:58 am | kadiera: | @SpecTeams either day is good for me I think #specialteams | ||
| 1:58 am | lovethatmax: | Max’s smile. Seriously, just looking at that kid’s grin can lift me out of the lowest low. And talking to people/blogging. #specialteams | ||
| 1:58 am | SpecTeams: | Let me know as we go along if Tuesday or Thursday would work … thanks! #specialteams | ||
| 1:59 am | lovethatmax: | Thursday might be a little better for me, but not married to it. #specialteams | ||
| 1:59 am | sneakpeekatme: | What time? Same time? #specialteams | ||
| 1:59 am | SpecTeams: | I see the questions have already started – great! But maybe @lovethemax you could tell us a bit about yourself and Max #specialteams | ||
| 2:00 am | sneakpeekatme: | Same here, if my nurse works out..Thurs will be better for me too. #specialteams | ||
| 2:00 am | SpecTeams: | I’m thinking same time, unless there is a strong inclination for another … #specialteams | ||
| 2:00 am | lovethatmax: | OK, here’s some background. I had a totally normal pregnancy. Had a c-section. Things looked fine. But then Max quit breathing #specialteams | ||
| 2:00 am | kpav5: | @LoveThatMax Smiles, yep, those are the best. Max has a great one! #specialteams | ||
| 2:01 am | lovethatmax: | …a few times. Went to NICU. They realized he was having seizures. Did an MRI a few days later. Realized he’d had a stroke. #specialteams | ||
| 2:01 am | SpecTeams: | geez! @lovethatmax (pardon the typo!!!) …ugh … #specialteams | ||
| 2:01 am | SpecTeams: | #specialteams chat is underway with guest @LoveThatMax follow along using the hashtag or join us in tweetchat! | ||
| 2:01 am | lovethatmax: | Until that day, we had no clue babies could have strokes. We were told the worst, including that Max might never walk/talk. #specialteams | ||
| 2:02 am | lovethatmax: | You can read all of Max’s story here: http://tinyurl.com/yg3h2rr #specialteams | ||
| 2:02 am | BarbDittrich: | Hi all! #specialteams | ||
| 2:03 am | lovethatmax: | Docs gave us very little hope. But Max, well, you can see: he’s doing so much better than gloomy docs said he would. #specialteams | ||
| 2:03 am | jterzieff: | RT @SpecTeams: #specialteams chat is underway with guest @LoveThatMax follow along using the hashtag or join us in tweetchat! | ||
| 2:04 am | SpecTeams: | I can only imagine your reaction – how/where di you find the strength to get thru the ealry days and find your smile? #specialteams | ||
| 2:05 am | lovethatmax: | I got thru the early days by telling the social worker at hospital to make the crabby neurologist find SOMETHING good 2 say… #specialteams | ||
| 2:05 am | lovethatmax: | …and by taking action. I found The Pediatric Stroke Network and joined. I asked lots of questions. I looked into therapies. #specialteams | ||
| 2:05 am | SpecTeams: | RT @BarbDittrich Hi all! #specialteams << Hi Barb! how are you this evening? | ||
| 2:06 am | lovethatmax: | Max started getting physical therapy at one month, and started on occupational shortly after. I was determined to do anything #specialteams | ||
| 2:06 am | lovethatmax: | …I could to help him. THAT made me feel a lot better. Oh, and ice-cream, too. 🙂 #specialteams | ||
| 2:07 am | SpecTeams: | what, ultimately, did the doctors tell you to expect as Max grew up? #specialteams | ||
| 2:07 am | BarbDittrich: | @SpecTeams Good. And I love this topic. @lovethatmax has the right idea trying to focus on the positive. #specialteams | ||
| 2:08 am | SpecTeams: | Sometimes it is extremely difficult to keep that smile. This past week, our son’s tombstone was placed on his grave (more) #specialteams | ||
| 2:08 am | lovethatmax: | They had no prognosis. NONE. They told us the worst, but could not say for certain what to expect. We found a great neuro… #specialteams | ||
| 2:08 am | kpav5: | @LoveThatMax Do you find that people are often too afraid to ask questions when faced w/such news? #specialteams | ||
| 2:09 am | sneakpeekatme: | We had the opposite reaction…from the docs after the initial shock {theirs} They were very nonchalant about his prognosis. #specialteams | ||
| 2:09 am | SpecTeams: | We lost him in Oct @ 18 mos of age. This past weekend was pure hell – but then a twitter friend brought up the idea of (more) #specialteams | ||
| 2:09 am | lovethatmax: | …who was optimistic yet realistic, a winning combo. He told us about the plasticity of the brain+its ability to regenerate. #specialteams | ||
| 2:09 am | SpecTeams: | starting up a Team Haris for the March of Babies. So we did! it was our wayt of putting a positive spin on something very sad #specialteams | ||
| 2:10 am | SpecTeams: | I know what I think, but how importnat do you think it is for parents to find the positive? #specialteams | ||
| 2:10 am | lovethatmax: | Juliette. I am sorry. You have taken a tragedy and turned it into something that will help so many. And Kera, I guess… #specialteams | ||
| 2:11 am | sneakpeekatme: | @lovethatmax I LOVE doctors with good bedside manner even if the news is bad, I want it delivered kindly. #specialteams | ||
| 2:11 am | lovethatmax: | …some people are hesitant to question docs, but not me. I was their worst nightmare!!! [Insert evil laughter]. #specialteams | ||
| 2:11 am | lovethatmax: | Juliette, very important to find the positive, not always easy to do. I was a real wreck those first few months after Max… #specialteams | ||
| 2:11 am | happylaura: | @LoveThatMax keep on keeping on with your Max. #specialteams | ||
| 2:12 am | sneakpeekatme: | @SpecTeams That is awesome, that you are able to do that. March of Dimes is such a great organization. #specialteams | ||
| 2:12 am | lovethatmax: | …was born. I could not see ANY positives. The passage of time helped. Max’s progress helped, too. #specialteams | ||
| 2:12 am | sneakpeekatme: | @lovethatmax Oh me too! I tell ya it is written in his chart somewhere to watch out for me. #specialteams | ||
| 2:13 am | aspiringmama: | @SpecTeams oh. 😉 I’m glad the march for babies thing is working out. 😉 #specialteams | ||
| 2:13 am | lovethatmax: | I have never been a shy person, but I surprised even myself by how vocal I was about Max’s needs. #specialteams | ||
| 2:14 am | SpecTeams: | In our experience, there were simply days when it was sooo hard to smile – what do you do on those days? how do you cope? #specialteams | ||
| 2:14 am | lovethatmax: | Juliette, I hope you are finding this cathartic, look at all the good you are doing. #specialteams | ||
| 2:14 am | sneakpeekatme: | @lovethatmax that is a HUGE reason why I started to blog…to show the positive of the situation. Yes, his life is largely… #specialteams | ||
| 2:14 am | SpecTeams: | @aspiringmama hey PIC! glad you could join! and yes, tweeps, this is 1 responsible for helping us find our smile this weekend #specialteams | ||
| 2:14 am | Sparrowbug: | You know… I hate confrontations, but when it comes to my kids, I’m a completely different person. Moms can be fierce. #specialteams | ||
| 2:15 am | aspiringmama: | RT @lovethatmax: Juliette, I hope you are finding this cathartic, look at all the good you are doing. #specialteams (so true. I’m proud!) | ||
| 2:15 am | lovethatmax: | On those days when I couldn’t cope, I let people help me; I was lucky, my mom and sis would come by and take over. I am not… #specialteams | ||
| 2:15 am | kadiera: | finding positive is really important.when we got the “worst” news of our experience friend said at least he got U as parents #specialteams | ||
| 2:15 am | sneakpeekatme: | medical, but do have lots of fun too. If I allowed myself to be sad & depressed it would be easy to stay there in a dark room. #specialteams | ||
| 2:15 am | lovethatmax: | …the type of person to let others easily help me. But I needed that. And I was lucky, my husband wasn’t depressed. He… #specialteams | ||
| 2:16 am | sneakpeekatme: | @Sparrowbug ROAR!!! #specialteams | ||
| 2:16 am | SpecTeams: | @Sparrowbug sometimes you have to be FIERCE – the docs @ 1 pt said Haris would never cum home, asked if we wanted (more) #specialteams | ||
| 2:16 am | aspiringmama: | RT @lovethatmax: You can read all of Max’s story here: http://tinyurl.com/yg3h2rr #specialteams | ||
| 2:17 am | lovethatmax: | I was saying, my husband kept up my spirits. And, to add to below, YES. We have to be warrior mamas for our kids. #specialteams | ||
| 2:17 am | Sparrowbug: | @sneakpeekatme LOL. Exactly. I’m shocked at what lengths I’ll go to for my kids. There is nothing I wouldn’t do. #specialteams | ||
| 2:17 am | SpecTeams: | @Sparrowbug to institutionalize him. I kinda lost my temper that day – but he came home and thrived right up til the surgery #specialteams | ||
| 2:18 am | aspiringmama: | @SpecTeams *blushing* I’m here for ya, babe. I do not have a special needs child, but my daughter was in danger of being..#specialteams | ||
| 2:18 am | kpav5: | @LoveThatMax I think that is hard. When one is depressed and the other angry. Adds an entirely nre dimension. #specialteams | ||
| 2:18 am | Sparrowbug: | @lovethatmax Is Max your only child? #specialteams | ||
| 2:18 am | lovethatmax: | Juliette, it’s true, docs don’t always know what’s best for our kids. We have to trust our instincts. #specialteams | ||
| 2:18 am | SpecTeams: | @lovethatmax you have another child as well? how do u manage to keep everyone smiling? #specialteams | ||
| 2:18 am | sneakpeekatme: | Believe it or not the worst is ahead for us…so I’ll need to remember all this positive stuff to get me through. #specialteams | ||
| 2:18 am | aspiringmama: | ..Born to early. I was lucky to make it to 37 weeks exactly. And I just want to support @jterzieff and #specialteams | ||
| 2:19 am | SpecTeams: | @sneakpeekatme we’ll be here! xoxo #specialteams | ||
| 2:19 am | lovethatmax: | Kera, I agree, if one partner’s depressed and other angry. But my extreme sadness lifted after the first six months, and… #specialteams | ||
| 2:19 am | kpav5: | @LoveThatMax WARRIOR MAMAS!!!! Love it! #specialteams | ||
| 2:19 am | sneakpeekatme: | @aspiringmama that’s what friends are for!!! #specialteams | ||
| 2:20 am | moondustwriter: | I’ve been on the medical end as a nurse and your family becomes our family – you encourage us to keep “doing” it #specialteams | ||
| 2:20 am | lovethatmax: | …my husband, he is always chipper. It’s unbelievable. Yes, have a 5-year-old. I just did a post on how she’s my HARDER kid! #specialteams | ||
| 2:20 am | aspiringmama: | RT @sneakpeekatme: @aspiringmama that’s what friends are for!!! #specialteams (exactly!) | ||
| 2:20 am | lovethatmax: | How do I keep everyone smiling? It’s just not that hard, seriously. Max is in a good school, he has good therapists… #specialteams | ||
| 2:21 am | sneakpeekatme: | Well I am a single mom of a child with special medical needs…so you can guess how the months after a SN birth went…denial! #specialteams | ||
| 2:21 am | lovethatmax: | …Dave helps, I am past the grieving stage (except for occasional pangs). I am no Pollyana, but really, it gets easier w/time #specialteams | ||
| 2:21 am | aspiringmama: | @sneakpeekatme I did the march for babies in michigan when my daughter was a teeny baby. Missed it last year due to a move #specialteams | ||
| 2:21 am | Sparrowbug: | @lovethatmax Both my kids are SN, but I have a good friend with a child with severe disabilities and a typical child and(more) #specialteams | ||
| 2:22 am | lovethatmax: | Janis, I don’t know HOW you do it. And I think denial is not always a bad thing. Whatever gets you through gets you through… #specialteams | ||
| 2:22 am | aspiringmama: | @sneakpeekatme but I’m going to sign up & drag my booty outta bed for Team Haris @jterzieff #specialteams | ||
| 2:22 am | SpecTeams: | @sneakpeekatme oh! i didn’t realize you were on your own! … wow … #specialteams | ||
| 2:22 am | kpav5: | @LoveThatMax You all are an inspiration! Keep up the good fight for those precious children! #specialteams | ||
| 2:22 am | lovethatmax: | Let me tell you something. After I went back to work (I was working at a women’s magazine), I’d sit there and edit… #specialteams | ||
| 2:22 am | kadiera: | I think it’s easier with a support system in place (other SN parents in particular) #specialteams | ||
| 2:22 am | Sparrowbug: | @lovethatmax they’ve had to put their typically developing child in therapy. Coping with a sibling that’s older, but…not. #specialteams | ||
| 2:22 am | BarbDittrich: | @SpecTeams I think being that good-finding, glass-is-half-full mentality strengthens you for the down times. #specialteams | ||
| 2:22 am | SpecTeams: | whatever gets you through, gets you through – well said @lovethatmax #specialteams | ||
| 2:22 am | lovethatmax: | …pieces about things like MASCARA while I had a baby at home who was at risk for all these horrible things. What kept me… #specialteams | ||
| 2:23 am | sneakpeekatme: | @lovethatmax a helpful partner would be a dream come true!! But moved back to Cali to be with my family so that helps A LOT!! #specialteams | ||
| 2:23 am | lovethatmax: | …going was just being able to compartmentalize stuff. Like I said, whatever gets you through. #specialteams | ||
| 2:23 am | moondustwriter: | want to encourage you -was just with my 47 year old miracle friend. He beat the odds all the way around #specialteams | ||
| 2:23 am | SpecTeams: | RT @BarbDittrich I think being that good-finding, glass-is-half-full mentality strengthens you for the down times < well said! #specialteams | ||
| 2:23 am | aspiringmama: | RT @kpav5: @LoveThatMax You all are an inspiration! Keep up the good fight for those precious children! #specialteams | ||
| 2:23 am | sneakpeekatme: | @lovethatmax No Pollyanna? Glad to hear it! #specialteams | ||
| 2:23 am | lovethatmax: | Janis, maybe we can find you a helpful partner on Twitter? It seems like you can find everything there. 🙂 #specialteams | ||
| 2:24 am | Sparrowbug: | @lovethatmax I remember cancelling a parenting magazine and losing it on the phone in process… because that wasn’t my life. #specialteams | ||
| 2:24 am | lovethatmax: | Sparrowbug, I tortured myself with the BabyCenter developmental emails I signed up for. #specialteams | ||
| 2:25 am | BarbDittrich: | @SpecTeams Faith is essential sor us too. It gives us hope, purpose, and a sense that this won’t last forever. #specialteams | ||
| 2:25 am | sneakpeekatme: | @lovethatmax LMAO…I’ll let you take care of that for me, k? — the denial wasn’t mine it was his… #specialteams | ||
| 2:25 am | lovethatmax: | I kept trying to see if Max was hitting his milestones. ANY milestones. The day I forced myself to cancel was a turning point. #specialteams | ||
| 2:25 am | SpecTeams: | @kysilka most of the parents here are parents and writers/bloggers/etc but all are welcome! #specialteams | ||
| 2:25 am | Sparrowbug: | @lovethatmax Sometimes it’s the tedium of life going on… that seems so unfair and hurtful. Special feels unfair and cruel. #specialteams | ||
| 2:26 am | SpecTeams: | @moondustwriter thank you for joining! we can all use the support from other writers, parents and kind souls! #specialteams | ||
| 2:26 am | lovethatmax: | Barb, yes. Faith, love, hope?they get you through. And maybe Pinot Grigio? #specialteams | ||
| 2:26 am | kadiera: | Baby center drove me nuts – along with the stuff in the mail from various places #specialteams | ||
| 2:26 am | sneakpeekatme: | @lovethatmax I was on BabyFit until it was apparent I needed more support from parents in the same boat to help me row! #specialteams | ||
| 2:26 am | SpecTeams: | @BarbDittrich absolutely – faith is a very important element, however one chooses to believe. it helps! #specialteams | ||
| 2:26 am | lovethatmax: | I know, Sparrowbug. It was weird to see friends who had typical babies just doing typical baby things with them. Once… #specialteams | ||
| 2:27 am | Sparrowbug: | @lovethatmax Yes… I still get those despite trying to cancel them. *roll eyes* The parenting magazine was worse, though. #specialteams | ||
| 2:27 am | birdonthestreet: | RT @lovethatmax: Barb, yes. Faith, love, hope?they get you through. And maybe Pinot Grigio? #specialteams | ||
| 2:27 am | moondustwriter: | @Sparrowbug seeing the other side it’s like beauty out of ashes – and the beauty is amazing to behold #specialteams | ||
| 2:27 am | kysilka: | RT @lovethatmax: Barb, yes. Faith, love, hope?they get you through. And maybe Pinot Grigio? #specialteams | ||
| 2:27 am | SpecTeams: | so @lovethatmax when/why did u decide to start blogging? #specialteams | ||
| 2:27 am | kadiera: | Actually, I even quit most of the preemie boards-we were so far out of their experiences… #specialteams | ||
| 2:27 am | sneakpeekatme: | @lovethatmax I did a post on Dev milestones recently…its hard for SN parents to relate to that. Inchstones are the way to go #specialteams | ||
| 2:27 am | lovethatmax: | …there was a whole round of messages on this moms e-loop about BABY YOGA. It was painful. Baby yoga? I just wanted my baby.. #specialteams | ||
| 2:28 am | SpecTeams: | @lovethatmax and do you consider the blogging part of your coping strategy? #specialteams | ||
| 2:28 am | kpav5: | @LoveThatMax Don’t you just love how someone can put into writing or on a chart where ur child should be? #specialteams | ||
| 2:28 am | lovethatmax: | …to move his limbs OK. I wish blogs were bigger back then, this was seven years ago. They are a lifesaver. #specialteams | ||
| 2:28 am | Sparrowbug: | @lovethatmax Seeing some of those articles was aggravating in that they just didn’t matter and were silly and cheesy. #specialteams | ||
| 2:28 am | SpecTeams: | @sneakpeekatme can you tweet up the post for all of us? or a link to your blog? #specialteams | ||
| 2:28 am | lovethatmax: | You have TwitterESP! I just said that. Yes, blogging is totally cathartic, and also reassuring because you meet so many… #specialteams | ||
| 2:29 am | lovethatmax: | …moms who are going through the same thing. Yes, Janis, share that post. And Kera, the whole developmental milestones thing #specialteams | ||
| 2:29 am | BarbDittrich: | @lovethatmax Pinot grigio with a long straw! LOL! #specialteams | ||
| 2:30 am | lovethatmax: | …is out of control. Too much focus on what babies should be doing and when! Makes parents anxious, even ones w/typical kids #specialteams | ||
| 2:30 am | Sparrowbug: | I’m so grateful for the internet… I found other people to support that understood what we were going through. #specialteams | ||
| 2:30 am | aspiringmama: | @lovethatmax those developmental emails are bad for everyone. You always compare. Not good. #specialteams | ||
| 2:30 am | lovethatmax: | I am grateful every single day for the web. Although I need help with my newfound TwitterDeck addiction. #specialteams | ||
| 2:31 am | moondustwriter: | check out #specialteams for a chat with moms of special needs kids | ||
| 2:31 am | Sparrowbug: | I always found the articles on potty-training particularly annoying. *blushes* I don’t know why, but I’d just get so pissy. #specialteams | ||
| 2:31 am | ParkerMama: | @SpecTeams I blog help those just starting this journey. It’s only been 5 years, but I feel like an old timer! #specialteams | ||
| 2:31 am | sneakpeekatme: | @SpecTeams Here is the post: Developmental Milestones, Who needs ‘Em? http://bit.ly/cHLjR0 #specialteams | ||
| 2:32 am | SpecTeams: | @ParkerMama that’s AMAZING! and i hope u will still come and do a session on your efforts!!! #specialteams | ||
| 2:32 am | kadiera: | @ParkerMama you *are* an old timer – you were the first trach mom I “met”! 😀 #specialteams | ||
| 2:32 am | ParkerMama: | @aspiringmama One of the first things you need to learn, I think, is to NEVER compare. See your kid as an individual. #specialteams | ||
| 2:32 am | Sparrowbug: | @ParkerMama Yes… we’ve been at this for seven years on March 8th. Seven years ago, our lives changed forever and ever. #specialteams | ||
| 2:32 am | lovethatmax: | Hi, Tammy. And thanks, Janis. And Sparrowbug (um, please, name?!), potty training still gets to me. Still trying for it! #specialteams | ||
| 2:32 am | ParkerMama: | RT @moondustwriter: check out #specialteams for a chat with moms of special needs kids | ||
| 2:33 am | moondustwriter: | RT @sneakpeekatme: @SpecTeams Here is the post: Developmental Milestones, Who needs Em? http://bit.ly/cHLjR0 #specialteams | ||
| 2:33 am | Sparrowbug: | @ParkerMama It makes me feel like an old-timer too. #specialteams | ||
| 2:33 am | SpecTeams: | @sneakpeekatme great! thank you!!! and add it to the ning if you get a spare second! #specialteams | ||
| 2:33 am | lovethatmax: | Helping those starting this journey is so important. Those really are the hardest years?agreed? #specialteams | ||
| 2:33 am | SpecTeams: | here is the lnik to the http://specialteams.ning.com/ you can add post, news stories, pics, forum topics whatever u like! #specialteams | ||
| 2:33 am | ParkerMama: | @Sparrowbug Parker spent the first three years of his life with ostomy bags. We pray for the day we can potty train! #specialteams | ||
| 2:33 am | sneakpeekatme: | @SpecTeams Bwahahahaaaa…spare second, you ARE joking, right? 😉 #specialteams | ||
| 2:34 am | SpecTeams: | @lovethatmax absolutely – the first few months were bloody – the only real fights my husband and i ever had, just terrible #specialteams | ||
| 2:34 am | Sparrowbug: | @lovethatmax Yes… I wish there were more things ready and waiting for those diagnosed or facing a diagnosis. #specialteams | ||
| 2:34 am | sneakpeekatme: | RT @lovethatmax: Helping those starting this journey is so important. Those really are the hardest years?agreed? #specialteams | ||
| 2:34 am | SpecTeams: | @sneakpeekatme i know, right?!?! i can post it for you if ya like! 🙂 #specialteams | ||
| 2:34 am | sneakpeekatme: | @lovethatmax I do find myself doing A LOT of that…it really helps me too! #specialteams | ||
| 2:35 am | ParkerMama: | @kadiera Weird has it sounds I am beyond thankful for this trach. It saved Parker’s life. #specialteams | ||
| 2:35 am | birdonthestreet: | @LoveThatMax completely agree on that one. #specialteams | ||
| 2:35 am | lovethatmax: | The hospital we were at provided NO resources for moms dealing with newborns who’d been through trauma. Nada. #specialteams | ||
| 2:35 am | ParkerMama: | RT @moondustwriter: RT @sneakpeekatme: @SpecTeams Here is the post: Developmental Milestones, Who needs Em? http://bit.ly/cHLjR0 #specialteams | ||
| 2:35 am | SpecTeams: | @lovethatmax i know u do other things besides blogging on the blog – contests and the like – why? and how can we get involved? #specialteams | ||
| 2:35 am | lovethatmax: | Hey, Katy. I would love to go back to that hospital someday, or a local one, and start a supoprt group. #specialteams | ||
| 2:35 am | SpecTeams: | @birdonthestreet thank you for joining us this evening! #specialteams | ||
| 2:35 am | Sparrowbug: | @lovethatmax Finding the services and support we needed took precious time and we were so deep into shock. Awful. #specialteams | ||
| 2:36 am | BarbDittrich: | RT @SpecTeams: here is lnik to http://specialteams.ning.com/ you can add post, news stories, pix, topics, whatever u like! #specialteams | ||
| 2:36 am | lovethatmax: | I know, it’s awful, Sparrow (may I call you that?!). 🙂 On top of the trauma, you are left to pretty much figure it all out… #specialteams | ||
| 2:36 am | Sparrowbug: | @lovethatmax I felt like we’d be thrown to the sharks by the developmental pediatrician. He gave us a diagnosis–walked away. #specialteams | ||
| 2:36 am | SpecTeams: | @Sparrowbug agreed – AWFUl the “help” at the hospital was minimal, at best. we were flailing n it took months to find balance #specialteams | ||
| 2:36 am | PattiDudek: | RT @moondustwriter: check out #specialteams for a chat with moms of special needs kids | ||
| 2:37 am | lovethatmax: | …on your own. But we’re all strong women. We’re doing it. OK, Juliette, yes, I do giveaways. I think moms deserve treats… #specialteams | ||
| 2:37 am | kysilka: | RT @sneakpeekatme: RT @lovethatmax: Helping those starting this journey is so important. Those really are the hardest years?agreed? #specialteams | ||
| 2:37 am | SpecTeams: | and at the same time they’re all telling you “YOU have to be your child’s advocate” and then they shove u out the door #specialteams | ||
| 2:37 am | lovethatmax: | …I’m subjective that way! #specialteams | ||
| 2:37 am | SpecTeams: | @PattiDudek thank you for joining us! #specialteams | ||
| 2:37 am | Sparrowbug: | @lovethatmax LOL… that or bug or Wendy… I have four siblings… I answer to everything. #specialteams | ||
| 2:37 am | kadiera: | you know, our NICU had a “support” group, but it really wasn’t. only support we’ve found is online #specialteams | ||
| 2:37 am | kpav5: | @LoveThatMax Helping those starting this journey is so important. Those really are the hardest years?agreed? YES!!! #specialteams | ||
| 2:37 am | BarbDittrich: | I think giving back always validates our own experience & gives us meaning in the midst of difficulties. #specialteams | ||
| 2:38 am | ParkerMama: | @Sparrowbug Yikes! We were fortunate that we had two good friends who each had kids with Down syndrome. Helped sooo much. #specialteams | ||
| 2:38 am | aspiringmama: | RT @moondustwriter: check out #specialteams for a chat with moms of special needs kids | ||
| 2:38 am | Sparrowbug: | @SpecTeams Yes. You have to be your child’s advocate, but you didn’t know what to do… or how or who or anything. Awful. #specialteams | ||
| 2:38 am | lovethatmax: | I agree, the only real support I’ve found is online. My friends are wonderful, but only moms in similar situation… #specialteams | ||
| 2:38 am | SpecTeams: | @BarbDittrich Amen to that! nobody understands like other parents and i love to learn about all the ways parents r raching out #specialteams | ||
| 2:39 am | lovethatmax: | …REALLY understand. No friends had kids with major special needs. #specialteams | ||
| 2:39 am | sneakpeekatme: | I know NO ONE with Austin’s diagnosis…so the support I have is either a Trach forum or G-tube forum #specialteams | ||
| 2:39 am | kadiera: | trach was our best decision ever RT @ParkerMama Weird as it sounds I am beyond thankful for this trach. #specialteams #specialteams | ||
| 2:39 am | aspiringmama: | @ParkerMama that goes for everyone. My sister always compares my older nephew to my younger daughter. I hate that. #specialteams | ||
| 2:40 am | ParkerMama: | RT @BarbDittrich: Giving back always validates our own experience & gives us meaning in the midst of difficulties. #specialteams yes! | ||
| 2:40 am | eventRobot: | @lovethatmax I found this DVD which is VERY purple {crayon wise} at some discount $2 bin. #specialteams | ||
| 2:40 am | Sparrowbug: | I don’t know how it is elsewhere, but in WA state, you lose your family advocate with services at your child’s 3rd birthday. #specialteams | ||
| 2:40 am | SpecTeams: | @aspiringmama oh yessss, the comparison trap is an emotional landmine field! #specialteams | ||
| 2:40 am | sneakpeekatme: | Now with the #CareAboutRare campaign i have been able to connect with other moms, but still not the same diagnosis #specialteams | ||
| 2:40 am | ParkerMama: | @BarbDittrich JUST about to publish a post that says this as well! Great minds? #specialteams | ||
| 2:40 am | SpecTeams: | @Sparrowbug we never even got one in Florida #specialteams | ||
| 2:41 am | lovethatmax: | YES, Barb. It feels good to give back. Like Tammy, I try to speak to new moms a lot. I get a lot of emails, and… #specialteams | ||
| 2:41 am | sneakpeekatme: | @Sparrowbug I never had one…I’m the only advocate, unless you mean a service coordinator? #specialteams | ||
| 2:41 am | ParkerMama: | @ Was your child with special needs your first? I wonder if that makes it harder/easier? #specialteams | ||
| 2:41 am | lovethatmax: | …it feels really good to reach out to these moms and say, I know how you feel. I’ve been there. It GETS BETTER. #specialteams | ||
| 2:41 am | kysilka: | RT @ParkerMama: RT @BarbDittrich: Giving back always validates our own experience & gives us meaning in the midst of difficulties. #specialteams yes! | ||
| 2:42 am | Sparrowbug: | After three years old… it was much harder to get in contact with the “School District” about anything to do with anything. #specialteams | ||
| 2:42 am | aspiringmama: | Nice chatting with you all. Time to get my daughter in bed. Night! #specialteams | ||
| 2:42 am | sneakpeekatme: | Two of my sisters have ASD sons, but our lives are night & day…they are not complex medical kids at all. Big difference. #specialteams | ||
| 2:42 am | ParkerMama: | @sneakpeekatme Parker has both the trach and the g-tube. We’re here to offer support too! *smooch* #specialteams | ||
| 2:42 am | SpecTeams: | want to get this out there @lovethatmax i know u run contests and the like for parents – can u tell us a bit about that? #specialteams | ||
| 2:43 am | SpecTeams: | @aspiringmama thank you so much for stopping by!!! xoxo #specialteams | ||
| 2:43 am | lovethatmax: | Do you bond with parents at your kids’ schools? At my son’s school, it’s hard, they all seem wrapped up in their own lives #specialteams | ||
| 2:43 am | ParkerMama: | @aspiringmama Absolutely! (I was running out of Twitter characters. heh. ) #specialteams | ||
| 2:43 am | BarbDittrich: | @aspiringmama Nice chatting w/you too! Good night! #specialteams | ||
| 2:43 am | Sparrowbug: | Yes… I guess they’d be called a service coordinator. The services for under three years old were much easier to get. #specialteams | ||
| 2:43 am | ParkerMama: | @Sparrowbug Yup. 3 here too. #specialteams | ||
| 2:44 am | kadiera: | we actually haven’t met any parents at Alex’s school. EI could be at school, but ours is all homebound #specialteams | ||
| 2:44 am | Sparrowbug: | @lovethatmax We haven’t really done much with other parents with Autistic children. Autism is so different that your child’s+ #specialteams | ||
| 2:45 am | lovethatmax: | Juliette, yes, I do giveaways because like I said, I think moms deserve treats. Companies can be generous about giving. #specialteams | ||
| 2:45 am | sneakpeekatme: | Yeah I don’t know any local parents with SN kids…no school yet. #specialteams | ||
| 2:45 am | heathersebi98: | My question is–why haven’t we forced the hand and made a site for reviews for products for SN kids/families? Makes sense, no? #specialteams | ||
| 2:45 am | kpav5: | @LoveThatMax I will say (even tho I have diff circumstances) many parents don’t understand behaviors so they don’t reach out. #specialteams | ||
| 2:45 am | Sparrowbug: | @lovethatmax needs don’t match other child’s… and things don’t work for everyone. It’s difficult to get along with other + #specialteams | ||
| 2:45 am | sneakpeekatme: | @heathersebi98 ….la,la,la… #specialteams | ||
| 2:46 am | kadiera: | @heathersebi98 knowledgesafari.com has reviews by SN parents #specialteams | ||
| 2:46 am | SpecTeams: | @lovethatmax is that something we could help you with? (or enter? LOL) (not me, of course …) #specialteams | ||
| 2:46 am | lovethatmax: | Max has not one friend who’s a typical kid. That really gets to me sometimes. #specialteams | ||
| 2:46 am | Sparrowbug: | @lovethatmax parents… especially if your child is doing well and their child isn’t. There isn’t a magic fix. #specialteams | ||
| 2:46 am | heathersebi98: | @sneakpeekatme no stinking JOKE! I’ve been thinking of this for a good year! #specialteams | ||
| 2:47 am | ParkerMama: | @heathersebi98 I’ve worked so hard to get the attention of the big boys to advertise directly to families of kids with sn. #specialteams | ||
| 2:47 am | SpecTeams: | @heathersebi98 thanks for stopping in! and that’s a great idea! you could put it up in the ning … la-la-la … #specialteams | ||
| 2:47 am | ParkerMama: | RT @kadiera: @heathersebi98 knowledgesafari.com has reviews by SN parents #specialteams | ||
| 2:47 am | sneakpeekatme: | @lovethatmax What is his school situation? #specialteams | ||
| 2:47 am | lovethatmax: | I would welcome all of you to enter the giveaways! And yes, sometimes it’s hard to meet up with other parents. Janis, Max… #specialteams | ||
| 2:47 am | heathersebi98: | Seriously…there are products that I am SURE would benefit not only Jack, but other kids too…and they get ignored…#specialteams | ||
| 2:47 am | SpecTeams: | once again here is the ning http://specialteams.ning.com/ and @lovethatmax is already on the roster w/some great parents! #specialteams | ||
| 2:48 am | lovethatmax: | …is in a private school for kids with special needs, paid for by our district who couldn’t accommodate his needs. #specialteams | ||
| 2:48 am | sneakpeekatme: | @heathersebi98 ….{looks around, whistles to herself}….I’ll DM you. #specialteams | ||
| 2:48 am | heathersebi98: | They are for “special” kids. Well, I’m fairly sure Jack’s not the only kid on the planet with issues! #specialteams | ||
| 2:48 am | SpecTeams: | @heathersebi98 well, maybe one of these weeks we could all do a individual review of products and then report back? #specialteams | ||
| 2:48 am | BarbDittrich: | Got to scoot… Son needs me. #specialteams | ||
| 2:48 am | lovethatmax: | But I had an epiphany at a Valentine’s dance, Max was running all over the place with this other kid (I put up pix on t/blog) #specialteams | ||
| 2:49 am | lovethatmax: | …and even though his mom wasn’t particularly friendly, I didn’t care, Max LOVES this kid and I’m going to set up a playdate #specialteams | ||
| 2:49 am | Sparrowbug: | @lovethatmax Wow… your school situation sounds really well handled… now at least. That’s really good. #specialteams | ||
| 2:49 am | heathersebi98: | @SpecTeams I’ve already done it! But way willing to do it again! #specialteams | ||
| 2:49 am | sneakpeekatme: | @BarbDittrich Bye!! great talking to you earlier. #specialteams | ||
| 2:50 am | lovethatmax: | Playdate is not for my enjoyment, it’s for Max’s! And Heather, that’s an awesome idea to do product reviews. Bye, Barb #specialteams | ||
| 2:50 am | sneakpeekatme: | @lovethatmax We have never had a playdate…unless cousins count? #specialteams | ||
| 2:50 am | lovethatmax: | Yes, we’re lucky he found a good school. The last one, not so great. I told them Max was ready for a communication… #specialteams | ||
| 2:50 am | heathersebi98: | @LoveThatMax thanks! I just don’t understand why our kids get kind of ignored. #specialteams | ||
| 2:50 am | Sparrowbug: | My kids both have been completely dropped by the school district despite having diagnosis of Autism. It’s not affecting + #specialteams | ||
| 2:51 am | lovethatmax: | …device and they said no. And I said, “How do you know?! You haven’t even tried it.” Then I was the one who found out… #specialteams | ||
| 2:51 am | SpecTeams: | @BarbDittrich thanks for joining us!! take care! #specialteams | ||
| 2:51 am | heathersebi98: | @ParkerMama funny, I totally had YOU in mind! wink, wink! #specialteams | ||
| 2:51 am | lovethatmax: | …our state’s Cerebral Palsy organization had a lending library of communication devices. After that, Max was outta there… #specialteams | ||
| 2:52 am | Sparrowbug: | their education and learning significantly enough. “The numbers aren’t there” according to the school admins. No IEP even. #specialteams | ||
| 2:52 am | lovethatmax: | …I mean, I am gung-ho to do research but I want to be guided by experts! OK, in terms of playdates, I’ve learned I have to.. #specialteams | ||
| 2:52 am | lovethatmax: | …take the lead. Parents of kids with special needs, for some reason, don’t always reach out to each other for playdates. #specialteams | ||
| 2:52 am | SpecTeams: | we’re coming up on the hour, so i’d like to get this in b4 – beside Max’s smile (the BEST!) what MOST helps you keep ur smile? #specialteams | ||
| 2:53 am | heathersebi98: | @ParkerMama Playdates are dangerous when you have a kid who could potentially die from normal illness #specialteams | ||
| 2:53 am | Sparrowbug: | RT-yes. This wasn’t my expectation. @lovethatmax …I mean, I am gung-ho to do research but I want to be guided by experts! #specialteams | ||
| 2:53 am | SpecTeams: | and again, the ning address is http://specialteams.ning.com/ come join, share, vent as u like! post pics, forums topx, etc #specialteams | ||
| 2:53 am | sneakpeekatme: | RT @heathersebi98: @ParkerMama Playdates are dangerous when you have a kid who could potentially die from normal illness #specialteams | ||
| 2:54 am | SpecTeams: | @lovethatmax blog to the Max is here: http://lovethatmax.blogspot.com/ #specialteams | ||
| 2:54 am | heathersebi98: | @SpecTeams knowing that at the end of the day, I’ve done what it’s taken to make sure he’s had what he needed at THAT moment! #specialteams | ||
| 2:54 am | ParkerMama: | @heathersebi98 Yup. This is true. 🙁 #specialteams | ||
| 2:54 am | lovethatmax: | Yes, understood, playdates are dangerous for medically fragile kids. #specialteams | ||
| 2:54 am | mercedesmy: | Just got home! I’m going to catch the last five minutes. 🙂 #specialteams | ||
| 2:55 am | ParkerMama: | RT @SpecTeams: and again, the ning address is http://specialteams.ning.com/ come join, share, vent as u like! post pics, forums topx, etc #specialteams | ||
| 2:55 am | SpecTeams: | @lovethatmax is an expert at keeping – and producing – smiles (her blog is GREAT!) check it out! #specialteams | ||
| 2:55 am | kadiera: | this! RT @heathersebi98: @ParkerMama Playdates are dangerous when you have a kid who could potentially die from normal illness #specialteams | ||
| 2:55 am | lovethatmax: | Hi, Mercedes. You missed the part where Brad Pitt came on to say hi. #specialteams | ||
| 2:55 am | heathersebi98: | @ParkerMama it really does break my heart, but I know I’m doing what’s best for HIM–not ME! #specialteams | ||
| 2:55 am | SpecTeams: | @mercedesmy hey there! glad you could make it!! we’re looking at a day switch that i think will help! #specialteams | ||
| 2:55 am | sneakpeekatme: | @lovethatmax Where is my bubble?!?! #specialteams | ||
| 2:55 am | Sparrowbug: | Speaking of needs… I clothes-lined my son as he was running to bodyslam his sister. Issues with violence continue. Ugh. #specialteams | ||
| 2:55 am | SpecTeams: | RT @lovethatmax: Hi, Mercedes. You missed the part where Brad Pitt came on to say hi. #specialteams | ||
| 2:56 am | lovethatmax: | Thanks, Juliette. What does “clothes-lined” mean? #specialteams | ||
| 2:56 am | heathersebi98: | @sneakpeekatme *snort* if you find a bubble, I want one too! #specialteams | ||
| 2:56 am | SpecTeams: | another reminder: looking 2 switch evenings – possible Tues or Thurs – let me know your preferences! (Thurs seems better) #specialteams | ||
| 2:56 am | Sparrowbug: | @ParkerMama My kids were dropped because their autism was not affecting their ability to learn in a quantifiable way. #specialteams | ||
| 2:57 am | Sparrowbug: | @SpecTeams Thursday is much better for me. #specialteams | ||
| 2:57 am | sneakpeekatme: | @SpecTeams That would be an awesome topic…Celebrities with medically fragile kids? Are there any? Publicly? Katherine Heigel #specialteams | ||
| 2:57 am | mercedesmy: | Dagnabbit! Brad Pitt owes me money! #specialteams | ||
| 2:57 am | sneakpeekatme: | Thats 3 votes for Thursday..we win. #specialteams | ||
| 2:58 am | ParkerMama: | @heathersebi98 @sneakpeekatme Wait! There are bubbles? heh. #specialteams | ||
| 2:58 am | lovethatmax: | Colin Farrell has a kid with Angelman’s Syndrome. #specialteams | ||
| 2:58 am | SpecTeams: | @sneakpeekatme yes, sarah palin, toni braxton, jim kelly, doug flutie, and others … i’m actually contactg some for my #wip #specialteams | ||
| 2:58 am | sneakpeekatme: | @SpecTeams….with your permission of course…heehee #specialteams | ||
| 2:58 am | Sparrowbug: | @ParkerMama Wait… no… that’s not true. It wasn’t quantifiable to a high enough level. Not enough learning delay. #specialteams | ||
| 2:58 am | lovethatmax: | Neil Young has a kid with cp. And then there’s, dare I mention, Jenny McCarthy. #specialteams | ||
| 2:58 am | SpecTeams: | @lovethatmax yes! thank you was sitting here trying to remember his name and couldn’t get it off my tongue to my fingers! #specialteams | ||
| 2:59 am | ParkerMama: | @Sparrowbug Based only on academic scores? Can they do that? Even with medical diagnosis? #specialteams | ||
| 2:59 am | SpecTeams: | @sneakpeekatme LOL – yes, i believe Thursday is going to be the winner! #specialteams | ||
| 2:59 am | lovethatmax: | What does Toni Braxton’s child have? #specialteams | ||
| 2:59 am | heathersebi98: | Toni Braxton, Doug Floutie, and Jorge Posada have kids with special needs #specialteams | ||
| 2:59 am | mercedesmy: | Thursday would be great for me. They just switched my son’s speech therapy to Wednesday. #specialteams | ||
| 2:59 am | SpecTeams: | @lovethatmax lastly, do you have any tips for parent bloggers just getting started? #specialteams | ||
| 2:59 am | Sparrowbug: | @ParkerMama Our insurance drops kids from neuro-dev therapy at seven assuming the school district would pick up if needed. #specialteams | ||
| 2:59 am | SpecTeams: | @lovethatmax i believe her son has autism #specialteams | ||
| 3:00 am | sneakpeekatme: | @SpecTeams Ok who is gonna round up the SN Celebrity parents…?? Who has Hollywood connections? #specialteams | ||
| 3:00 am | kysilka: | After Survivor, she said hopefully? RT @SpecTeams: @sneakpeekatme LOL – yes, i believe Thursday is going to be the winner! #specialteams | ||
| 3:00 am | ParkerMama: | @Sparrowbug Is there not any way to fight this? I’m stunned. #specialteams | ||
| 3:00 am | heathersebi98: | @ParkerMama I think the bubble would be, um..my house! LOL! #specialteams | ||
| 3:00 am | lovethatmax: | OK, tips for new parent bloggers… See if you can find a mentor. When I was thinking of starting a blog, I reached out to… #specialteams | ||
| 3:00 am | Sparrowbug: | @ParkerMama They can absolutely do that. One of their arguments was that my daughter’s IQ at 126 was too high to qualify. #specialteams | ||
| 3:00 am | SpecTeams: | @kysilka LOL – what time is it on? (*ducks*) i don’t watch it … #specialteams | ||
| 3:01 am | ParkerMama: | The doctor on Scrubs has a child with Down syndome. Can’t remember his name. erg. #specialteams | ||
| 3:01 am | lovethatmax: | …Shannon who writes Cerebral Palsy Baby. She was totally encouraging. #specialteams | ||
| 3:01 am | sneakpeekatme: | I was just telling @birdonthestreet that i wanted a Bloggy mentor…I was hoping @TheBloggess would volunteer. Still Waiting.. #specialteams | ||
| 3:01 am | Sparrowbug: | @ParkerMama We brought in a therapist advocate when we heard and she was horrified, but… yeah… they CAN do that. #specialteams | ||
| 3:01 am | SpecTeams: | @lovethatmax that’s a great tip! wish i had spoken to you before I started all this!!! LOL #specialteams | ||
| 3:02 am | ParkerMama: | @Sparrowbug That blows me away. Could you qualify for Medicaid and have services paid that way? #specialteams | ||
| 3:02 am | heathersebi98: | @LoveThatMax but you have to be careful about your mentor. My kid with CP is medically fragile. It’s hard. #specialteams | ||
| 3:02 am | SpecTeams: | @Sparrowbug that’s awful – and really, really scary! #specialteams | ||
| 3:02 am | lovethatmax: | Janis, The Bloggess rocks. Juliette, how can we get her here?! She’s better than any celebrity! Heck, she IS a celebrity #specialteams | ||
| 3:02 am | heathersebi98: | @ParkerMama I don’t remember the name either but I totally know who you’re talking about! #specialteams | ||
| 3:02 am | SpecTeams: | Plz stick around as long as u want but we r @ the hour, VERY big thank you to @lovethatmax #specialteams | ||
| 3:03 am | Sparrowbug: | @ParkerMama My husband makes too much to qualify. This has bankrupted us completely. Our kids made TOO much progress. SIGH. #specialteams | ||
| 3:03 am | sneakpeekatme: | @lovethatmax Well…not to drop any names…but she does comment on Austin’s blog (well twice…hey it counts!) #specialteams | ||
| 3:03 am | lovethatmax: | Also, for new bloggers, it’s not a bad idea to attend a blog conference if you can swing it. #specialteams | ||
| 3:03 am | SpecTeams: | I will put up a ning forum discuss on @TheBlogess and let’s find a way to get her here! #specialteams | ||
| 3:03 am | kadiera: | sleep for me shortly – alex has a bronch bright & early tomorrow morning. g’night all. #specialteams | ||
| 3:03 am | Sparrowbug: | Thank you!!! RT @SpecTeams: Plz stick around as long as u want but we r @ the hour, VERY big thank you to @lovethatmax #specialteams | ||
| 3:04 am | SpecTeams: | so everyone visit and join the ning! http://specialteams.ning.com/ #specialteams | ||
| 3:04 am | ParkerMama: | Janice and Susan from 5 Minutes for Mom have helped me so very much in the bloggy world. Great mentors. #specialteams | ||
| 3:04 am | sneakpeekatme: | @kadiera Good night & Good Luck!!! #specialteams | ||
| 3:04 am | lovethatmax: | Thanks, Juliette. Thanks to all of you for being here. #specialteams | ||
| 3:04 am | ParkerMama: | @kadiera hugs! #specialteams | ||
| 3:04 am | SpecTeams: | Thanks to everyone for joining and ESPECIALLY @lovethatmax – you were great! #specialteams | ||
| 3:04 am | heathersebi98: | @LoveThatMax Those big blog conferences should reach out to SN families who can’t possibly afford to go. #specialteams | ||
| 3:04 am | moondustwriter: | RT @SpecTeams: Thanks to everyone for joining and ESPECIALLY @lovethatmax – you were great! #specialteams | ||
| 3:05 am | SpecTeams: | @heathersebi98 that’s a very good point! i was considering going to 1 but too far away most of em #specialteams | ||
| 3:05 am | lovethatmax: | Heather, I TOTALLY agree. Moms of kids with special needs are under-represented at these conferences. #specialteams | ||
| 3:05 am | SpecTeams: | link your blogs, post your pics, and whatever else you’d like to share at the ning! http://specialteams.ning.com/ #specialteams | ||
| 3:05 am | ParkerMama: | I’ll be speaking on the topic of Special Needs at my very first blog conference in May. Can you hear my knees knocking? #specialteams | ||
| 3:05 am | sneakpeekatme: | @heathersebi98 I am thinking of going to #bloggybootcamp in SF in August. i can only do @Blogher if I win something. ;( #specialteams | ||
| 3:05 am | heathersebi98: | @LoveThatMax We totally are! And no one really CARES! #specialteams | ||
| 3:06 am | lovethatmax: | I think companies should sponsor moms of kids with special needs for these conferences. Tammy, you will be AWESOME! #specialteams | ||
| 3:06 am | sneakpeekatme: | @lovethatmax I told you we need our OWN, no pity allowed to register. #specialteams | ||
| 3:06 am | ParkerMama: | @heathersebi98 There is a blog hosting sponsorships to BlogHer. I’ll see if I can get the info to you. #specialteams | ||
| 3:06 am | SpecTeams: | @ParkerMama that’s AWESOME! let us know if we can support u in any way! #specialteams | ||
| 3:06 am | lovethatmax: | WE care. And we CAN make it happen if we put our minds to it. As it’s clear from the kids we’re raising, we can do ANYTHING #specialteams | ||
| 3:06 am | SpecTeams: | @sneakpeekatme that would be great if you can attend!! #specialteams | ||
| 3:06 am | ParkerMama: | @SpecTeams I couldn’t afford to leave Parker for the time needed to attend an out of state conference #specialteams | ||
| 3:07 am | heathersebi98: | @LoveThatMax @ParkerMama is going to rock their socks off! #specialteams | ||
| 3:07 am | SpecTeams: | RT @lovethatmax: WE care. And we CAN make it happen if we put our minds to it. As it’s clear from the kids we’re raising, we can do ANYTHING #specialteams | ||
| 3:07 am | lovethatmax: | I think there should be special blog conference “scholarships” for moms of kids with special needs. #specialteams | ||
| 3:07 am | ParkerMama: | @SpecTeams Come and hold my hand? lol! #specialteams | ||
| 3:07 am | SpecTeams: | @ParkerMama i’m sorry i don’t know the answer 2 this myself – Parker can’t travel at all? #specialteams | ||
| 3:07 am | birdonthestreet: | @sneakpeekatme Leave your pity face at home! #specialteams | ||
| 3:08 am | moondustwriter: | RT @lovethatmax: WE care. And we CAN make it happen if we put our minds to it. As it’s clear from the kids we’re raising, we can do ANYTHING #specialteams | ||
| 3:08 am | sneakpeekatme: | @ParkerMama I totally would…but no $$$ for that, travel, air or registration. #specialteams | ||
| 3:08 am | birdonthestreet: | @LoveThatMax I like the idea of our own conference. New Orleans is cheap! #specialteams | ||
| 3:08 am | sneakpeekatme: | RT @lovethatmax: I think there should be special blog conference “scholarships” for moms of kids with special needs. #specialteams | ||
| 3:09 am | heathersebi98: | @SpecTeams it’s hard to travel when you aren’t allowed to take IV poles with you! It’s dang near impossible! #specialteams | ||
| 3:09 am | ParkerMama: | Thank you Ellen. 🙂 And there ARE companies who would help sponsor special needs Mamas. Maybe I need to post on this. #specialteams | ||
| 3:09 am | SpecTeams: | this is wonderful, thank you writer/blogger/every parents n supporters 4 joining this! Gr8 2 learn bout what parents r doing! #specialteams | ||
| 3:09 am | sneakpeekatme: | @birdonthestreet LOL…i was thinking LA…the CA one #specialteams | ||
| 3:09 am | SpecTeams: | @heathersebi98 true, too true … we’re going to have to work to change that! (addit to the list … *sigh*) #specialteams | ||
| 3:09 am | lovethatmax: | I love the idea of our own conference too, Katy. OK, I guess we could talk all night. 2 be continued next SpecTeams Tweetmeet! #specialteams | ||
| 3:09 am | ParkerMama: | @moondustwriter I love your last tweet! And your outlook! #specialteams | ||
| 3:10 am | lovethatmax: | Last word: Tammy, please, POST on this! #specialteams | ||
| 3:10 am | SpecTeams: | @birdonthestreet yes, our own conference would be great!! let’s discuss more next time!!! #specialteams | ||
| 3:10 am | ParkerMama: | @heathersebi98 And the whole oxygen bottle thing tends to cramp a Mama’s style. #specialteams | ||
| 3:11 am | SpecTeams: | i’ll make sure to have it on my mind for discussion! SN blogger/writer conference! #specialteams | ||
| 3:11 am | lovethatmax: | ‘night, Twitter/blog friends. #specialteams | ||
| 3:12 am | sneakpeekatme: | @lovethatmax G’night! If @TheBloggess turns me down, I’ll let you know. 😉 #specialteams | ||
| 3:12 am | ParkerMama: | Maybe on 5MFSN after I get this surgery over with and can sit up long enough to blog? But there ARE companies and ways. #specialteams | ||
| 3:12 am | SpecTeams: | @heathersebi98 i know – hard not 2 get angry by the things typical families complain about sometimes #specialteams | ||
| 3:13 am | TchrEric: | @moondustwriter Not sure what I am doing yet but just joined #specialteams ! | ||
| 3:14 am | ParkerMama: | @sneakpeekatme If you are asked to speak, they will often pay way. ……definately your ticket, expenses. #specialteams | ||
| 3:14 am | SpecTeams: | @TchrEric hello there! we’re actually just wrapping up chat, but there’s alot of great info in here and people still chattin #specialteams | ||
| 3:14 am | ParkerMama: | @heathersebi98 hee,hee Then I also need the Vita-Mix for the blenderized diet. ….. #specialteams | ||
| 3:15 am | sneakpeekatme: | RT @ParkerMama: @sneakpeekatme If you are asked to speak, they will often pay way. ……definately your ticket, expenses. #specialteams | ||
| 3:15 am | jkbaxter612: | @ParkerMama My 1st has autism. Made having a 2nd baby a more difficult decision. Decided to go for it & so very happy we did! #specialteams | ||
| 3:15 am | SpecTeams: | @TchrEric you can follow along with the hashtag or go here http://tweetchat.com/room/specialteams u can c everything! #specialteams | ||
| 3:15 am | KYouell: | RT @lovethatmax: I think there should be special blog conference “scholarships” for moms of kids with special needs. #specialteams | ||
| 3:15 am | SpecTeams: | @TchrEric we’ve been discussing blogging on #specialneeds perhaps launching a blogger/writer conf for SN #specialteams | ||
| 3:16 am | SpecTeams: | @KYouell thanks for stopping in! #specialteams | ||
| 3:16 am | sneakpeekatme: | @ParkerMama Well…the key would be I need to get asked 😉 Still not too late bloggy admin peeps. {hint,hint} #specialteams | ||
| 3:16 am | ParkerMama: | Make sure to take the time tonight to follow all the great Mamas from tonights #specialteams | ||
| 3:16 am | SpecTeams: | @jkbaxter612 thanks for stopping by! #specialteams | ||
| 3:17 am | SpecTeams: | we have a ning community for us here http://specialteams.ning.com/ where u can add blogs, forum topx, pics n get 2 know every1 #specialteams | ||
| 3:17 am | sneakpeekatme: | Yes, yes!! RT @ParkerMama: Make sure to take the time tonight to follow all the great Mamas from tonights #specialteams | ||
| 3:18 am | SpecTeams: | @ParkerMama yes! follw the great parents, writer, supporters and SN people on tonight’s chat and join the ning! #specialteams | ||
| 3:18 am | sneakpeekatme: | RT @SpecTeams: we have a ning community for us here http://specialteams.ning.com/ where u can add blogs, forum topx, pics, etc #specialteams | ||
| 3:18 am | TchrEric: | @SpecTeams Thanks for the welcome sorry I missed the chat 2 sick kids and wife get it as well it! @moondustwriter got me here #specialteams | ||
| 3:18 am | SpecTeams: | one note though, we are going to be switching chat nights to THURSDAY #specialteams | ||
| 3:19 am | ParkerMama: | @sneakpeekatme Best ways: Be visable, Make connections w/ conference hosts, and write well. Oh. And apply. heh. #specialteams | ||
| 3:19 am | ParkerMama: | @moondustwriter Back at ya! *smooch* #specialteams | ||
| 3:19 am | sneakpeekatme: | Thank goodness for my nephew for keeping Austin entertained tonight…whew! #specialteams | ||
| 3:19 am | PotamusPrefers: | hi, what is #specialteams all about? | ||
| 3:20 am | ParkerMama: | Off to finish the last bottle of magnesium citrate. Blech. #specialteams It’s been grand! | ||
| 3:20 am | SpecTeams: | @PotamusPrefers its basically me trying to create a safe spacefor parents, supporter n caregivers of ill or special needs kids #specialteams | ||
| 3:21 am | SpecTeams: | @PotamusPrefers mostly we are writers/bloggers but EVERYONE is welcome – we’re all just trying to support each other #specialteams | ||
| 3:21 am | sneakpeekatme: | @PotamusPrefers Hi Shannon…be sure to join the ning #specialteams | ||
| 3:21 am | SpecTeams: | @SpecTeams we have a ning community http://specialteams.ning.com/ where u can blog, post pix, forum topix, connect #specialteams | ||
| 3:21 am | sneakpeekatme: | @ParkerMama its almost over!!! #specialteams | ||
| 3:22 am | SpecTeams: | @sneakpeekatme and we chat every Thursday, starting next week. we’re moving 2 avoid doubling up with another specialneeds chat #specialteams | ||
| 3:22 am | TchrEric: | RT @SpecTeams: @SpecTeams we have a ning community http://bit.ly/aWTOpK where u can blog, post pix, forum topix, connect #specialteams | ||
| 3:22 am | SpecTeams: | @ParkerMama good luck momma! we’ll be thinking of you! let us know progress when you can! #specialteams | ||
| 3:23 am | SpecTeams: | ok, we are well past the hour – LOL – so i am going to call it! thank you ALL for joining n c u on the ning! #specialteams | ||
| 3:24 am | SpecTeams: | and, of course, see you next Thursday for our next chat! #specialteams | ||
| 3:31 am | gomentor: | RT @BarbDittrich: I think giving back always validates our own experience & gives us meaning in the midst of difficulties. #specialteams | ||
| 3:46 am | Miraclepreemie: | Sad that i missed the #specialteams chat tonight… NEXT time!! Thanks for the away time baby | ||
| 3:49 am | SpecTeams: | @Miraclepreemie sorry we missed you @ #specialteams chat! come join the ning if u like! http://specialteams.ning.com/ n join us! 🙂 | ||
| 4:01 am | jterzieff: | RT @lovethatmax: I think there should be special blog conference “scholarships” for moms of kids with special needs. #specialteams | ||
| 4:01 am | jterzieff: | RT @lovethatmax: WE care. And we CAN make it happen if we put our minds to it. As it’s clear from the kids we’re raising, we can do ANYTHING #specialteams | ||
| 4:02 am | jterzieff: | RT @ParkerMama: Janice and Susan from 5 Minutes for Mom have helped me so very much in the bloggy world. Great mentors. #specialteams | ||
| 4:03 am | jterzieff: | Big, warm, enthusiastic thank you to @LoveThatMax for her inspiration on tonight’s #specialteams chat | ||
| 4:07 am | aspiringmama: | RT @jterzieff: Big, warm, enthusiastic thank you to @LoveThatMax for her inspiration on tonight’s #specialteams chat | ||
| 4:10 am | lovethatmax: | [Blushing]. Thanks, everyone. I enjoyed particpating tonight. #specialteams | ||
| 4:18 am | jterzieff: | @LoveThatMax lots of follow up! great ideas!!! #specialteams watch the ning, next chat Thursday March 11 | ||
| 4:18 am | jterzieff: | RT @aspiringmama: @sneakpeekatme but I’m going to sign up & drag my booty outta bed for Team Haris @jterzieff #specialteams | ||