Posts Tagged ‘rare diseases’

Special Teams Ning Community

Saturday, March 13th, 2010

The Special Teams community is congregated over at our new Ning community!!!

 It’s a judgement-free space for parents, caregivers, advocates and supporters of ill or special needs children to gather, share and learn from each other’s journeys. Find us here:

http://specialteams.ning.com/

Please come visit, join and post any material you think is relevant!

I’ve kept the Special Teams page here on my personal blog for reference – and because I will still be blogging occasionally about related issues.

Hope – Is It in Your Genes?!?!

Friday, February 26th, 2010

Most mothers will do anything to protect their child’s best interests and help them succeed. It’s part of being a mom – a reflection of that overwhelming, all-encompassing love that we feel for our tiny mini-mes.

So I guess it’s hardly a surprise that battalions of mothers (and fathers!) out there have joined together to support the campaign effort to raise awareness about Rare Disease Day, February 28. The slogan for this year’s campaign is “Hope – It’s in your genes.”

These parents are simultaneously just moms and dads like any of us, and amazing individuals willing to step forward and try to make a difference. They, and the campaign, deserve our support.

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