Most mothers will do anything to protect their child’s best interests and help them succeed. It’s part of being a mom – a reflection of that overwhelming, all-encompassing love that we feel for our tiny mini-mes.
So I guess it’s hardly a surprise that battalions of mothers (and fathers!) out there have joined together to support the campaign effort to raise awareness about Rare Disease Day, February 28. The slogan for this year’s campaign is “Hope – It’s in your genes.”
These parents are simultaneously just moms and dads like any of us, and amazing individuals willing to step forward and try to make a difference. They, and the campaign, deserve our support.
Continue reading Hope – Is It in Your Genes?!?!
For years I’ve told the stories of men, women and children struggling to survive amidst conflict, poverty, human right abuses and a wide array of life’s challenges. Every single one of them had a story to tell that contributes to the diverse tapestry of the global family.
And now it’s my turn.
At a time when globalization and the Internet have connected people across the world in more ways than ever possible before, it’s profoundly disconcerting to feel completely alone. And yet, as my family battled to not only survive – but thrive – though my son’s special needs reality that is exactly how I felt.
Most friends, family and colleagues simply could not understand, no matter how much they loved us. When it came time to put in a feeding tube or make the difficult decisions concerning our son’s health, we were inexorably alone. And scared. And angry. And overwhelmed by the amazing love we felt for our son.
Continue reading In support of Special Teams