Special Teams Chat – April 30 with guest author, advocate @AutismMomExpert

Special Teams Chat – April 30 with guest author, advocate @AutismMomExpert

12:15 am SpecTeams: Join the #specialteams chat top of the next hour with inspiring #autism advocate @AutismMomExpert #specialneeds
12:16 am jterzieff: RT @SpecTeams: Join the #specialteams chat top of the next hour with inspiring #autism advocate @AutismMomExpert #specialneeds
12:47 am SpecTeams: Starting in 15 mins chat with @AutismMomExpert and the story of her #specialteams
12:52 am sneakpeekatme: RT @SpecTeams: Starting in 10 min chat with @AutismMomExpert and the story of her #specialteams
12:58 am AutismMomExpert: @ jterzieff Hi Juliette, when I send out a tweet to I @ reply the person I get the tweet from? #specialteams
12:58 am SpecTeams: Getting ready to open up tonight’s chat featuring @AutismMomExpert #specialteams
1:00 am SpecTeams: @AutismMomExpert yes, you can answer someone directly or address the group in general, as well, as seems appropriate #specialteams
1:00 am AutismMomExpert: RT @SpecTeams: Come chat with us now with inspiring #specialteams mom, author, #autism advocate @AutismMomExpert #specialneeds
1:00 am SpecTeams: Come join us in tweetchat here: http://tweetchat.com/room/specialteams for a conversation with @AutismMomExpert #autism #specialteams
1:01 am kadiera: hi everyone! #specialteams
1:01 am SpecTeams: When you get in the room, set the refresh speed down to 5 seconds for the fastest updates #specialteams
1:01 am sneakpeekatme: RT @SpecTeams: Come join us in tweetchat here: http://tweetchat.com/room/specialteam with @AutismMomExpert #autism #specialteams
1:01 am SpecTeams: @kadiera Hey there! Thanks for joining! #specialteams
1:02 am SpecTeams: @sneakpeekatme hello! good to see you! #specialteams
1:02 am SpecTeams: @AutismMomExpert Thank you so much for making the time to be here! #specialteams
1:03 am AutismMomExpert: Thank you for asking me! #specialteams
1:03 am SpecTeams: @AutismMomExpert For those who may not know, can you give us an overview of your family and your experiences #specialteams
1:03 am SpecTeams: Chat with @AutismMomExpert starting now here: http://tweetchat.com/room/specialteams #autism #specialneeds #specialteams
1:04 am jterzieff: RT @SpecTeams: Come join us in tweetchat here: http://tweetchat.com/room/specialteams for a conversation with @AutismMomExpert #autism #specialteams
1:04 am jterzieff: RT @SpecTeams: Chat with @AutismMomExpert starting now here: http://tweetchat.com/room/specialteams #autism #specialneeds #specialteams
1:04 am AutismMomExpert: I have two sons both adults and my son Brandon is 37 and has Asperger’s, intractable epilepsy, and severe learning disorders. #specialteams
1:06 am ageofautism: RT @AutismMomExpert: I have two sons both adults and my son Brandon is 37 and has Asperger’s, intractable epilepsy, and severe learning disorders. #specialteams
1:06 am sneakpeekatme: I’m here..listening & learning.. #specialteams
1:06 am AutismMomExpert: I was told by the professionals who worked with Brandon that he would never be able to live on his own. They were wrong! #specialteams
1:07 am SpecTeams: @sneakpeekatme thanks chica! I know this is bed time for some of our regulars – appreciate it! #specialteams
1:07 am AutismMomExpert: Brandon has been living on his own for the past thirteen years, enjoying his independence. #specialteams
1:09 am SpecTeams: @AutismMomExpert Obivously you faced many, many challenges along the way – as any parent of a #specialneeds child #specialteams
1:09 am AutismMomExpert: @SpecTeams I have posted several answers but don’ see them here. Any suggestions? #specialteams
1:09 am SpecTeams: @AutismMomExpert What made you decide to reach out to other parents? And how did you go about it? #specialteams
1:10 am AutismMomExpert: Join me for a #specialteams TweetChat at: http://tweetchat.com/room/specialteams #specialteams
1:10 am SpecTeams: @AutismMomExpert Hmmmm, that’s odd. I can see all your answers (I think) … is the refresh speed set to 5 seconds? #specialteams
1:10 am sneakpeekatme: RT @AutismMomExpert: Brandon has been living on his own for the past thirteen years, enjoying his independence. #specialteams
1:10 am SpecTeams: RT @AutismMomExpert: Join me for a #specialteams TweetChat at: http://tweetchat.com/room/specialteams #specialteams
1:11 am jterzieff: RT @AutismMomExpert: Join me for a #specialteams TweetChat at: http://tweetchat.com/room/specialteams #specialteams
1:12 am SpecTeams: You can learn more about @AutismMomExpert on her website: http://www.amaliastarrspeakerautism.com/ #autism #specialneeds #specialteams
1:12 am sneakpeekatme: @AutismMomExpert I can see your answers…sometimes there is a delay in Tweetchat esp. since TH is popular Twitter party nite #specialteams
1:13 am FroggyPrinceMom: RT @AutismMomExpert: Brandon has been living on his own for the past thirteen years, enjoying his independence. #specialteams
1:14 am FroggyPrinceMom: RT @AutismMomExpert: Join me for a #specialteams TweetChat at: http://tweetchat.com/room/specialteams #specialteams
1:14 am sneakpeekatme: @AutismMomExpert My nephew just celebrated his 15th bday, I know my sis would love see him live independently too some day. #specialteams
1:15 am SpecTeams: Tweetchat seems particularly slow this evening – apologies – hope @AutismMomExpert is not experiencing technical difficulties #specialteams
1:15 am AutismMomExpert: @SpecTeams I had no one to talk to when Brandon was born. I was lost and had to find my way in the dark. I became an autism… #specialteams
1:16 am SpecTeams: RT @AutismMomExpert: @SpecTeams I had no one to talk to when Brandon was born. I was lost and had to find my way in the dark. I became an autism… #specialteams
1:16 am SpecTeams: RT @sneakpeekatme: @AutismMomExpert My nephew just celebrated his 15th bday, I know my sis would love see him live independently too some day. #specialteams
1:17 am SpecTeams: @FroggyPrinceMom hey lady! thanks for popping in!!! (and YAY! on your #inchstone tweets earlier!) #specialteams
1:17 am AutismMomExpert: Motivational Speaker to be heard & to help parents. I love what I do & feel honored to speak on behalf of those who can’t. #specialteams
1:18 am sneakpeekatme: I can relate! RT @AutismMomExpert: I had no one to talk to when Brandon was born. I was lost & had to find my way in the dark. #specialteams
1:18 am SpecTeams: @AutismMomExpert So essentially your current efforts grew out of a desire to reach out and connect with other parents #specialteams
1:19 am g_r_v: Now there is a lot of info out there, finding the right info to help my son is the tough part (he has Asperger’s d/o) #specialteams
1:19 am SpecTeams: Unfortunately too many #specialneeds parents feel cut off, alone and stumbling in the dark – especially in the beginning #specialteams
1:19 am 5MinSpecNeeds: RT @SpecTeams: You can learn more about @AutismMomExpert: http://www.amaliastarrspeakerautism.com/ #autism #specialneeds #specialteams
1:20 am AutismMomExpert: @SpecTeams Independence is a process it is never too early to begin. I talk about indepndence and how Brandon achieved it … #specialteams
1:20 am SpecTeams: Hello @g_r_v thank you for joining us! #specialteams
1:21 am SpecTeams: Hello! @5MinSpecNeeds thanks for RTing and participating! #specialteams
1:21 am g_r_v: How I feel.RT @SpecTeams: Unfortunately too many #specialneeds parents feel cut off, alone and stumbling – esp in the beg #specialteams
1:21 am AutismMomExpert: @SpecTeams Not a desire a necessity to help others. I am thrilled that my son is independent and I want to share what I … #specialteams
1:21 am g_r_v: @SpecTeams Thank you. I am becoming a sponge for information. My son was dx’d late he was dx’d just after his 7th bday #specialteams
1:22 am g_r_v: @AutismMomExpert I understand what you are saying–share your knowledge & experience to let others know what is possible? #specialteams
1:22 am SpecTeams: @g_r_v believe me, we’ve been there. it’s terrifying. heck, most days i’m still there … #specialteams
1:22 am SpecTeams: RT @AutismMomExpert: @SpecTeams Not a desire a necessity to help others. I am thrilled that my son is independent and I want to share what I … #specialteams
1:23 am AutismMomExpert: @SpecTeams learned to help other parents along the trail. Giving back is the greatest gift. #specialteams
1:23 am SpecTeams: RT @g_r_v: @AutismMomExpert I understand what you are saying–share your knowledge & experience to let others know what is possible? #specialteams
1:23 am g_r_v: @SpecTeams Hard when his pedi nero said well just get the school to help as insurance won’t pay for therapy! So on my own. #specialteams
1:24 am SpecTeams: @AutismMomExpert When/what was your first public presentation? and how did it come about? #specialteams
1:25 am AutismMomExpert: @g_r_v It is a tough road and I do not want pretend it isn’t. What I do know is we have to do our best and forge ahead… #specialteams
1:26 am AutismMomExpert: @g_r_v No matter what! As moms we have it in us to achieve what our kids need and deserve. We fight for what is right. #specialteams
1:26 am g_r_v: I just take it one day at a time. I can’t change others, I can only change myself. But I can help my son to be his best #specialteams
1:26 am SpecTeams: RT @AutismMomExpert @g_r_v It is a tough road …What I do know is we have to do our best and forge ahead #specialteams >> Well said!
1:27 am AutismMomExpert: @SpecTeams After my book, Raising Brandon was published doors began to open. I started doing local talks in bookstores and #specialteams
1:27 am g_r_v: RT @SpecTeams: @AutismMomExpert When/what was your first public presentation? and how did it come about? #specialteams
1:27 am FroggyPrinceMom: @SpecTeams Oh, & thanks! We’re working our way towards @AutismMomExpert‘s example, 1 inchstone at at time 🙂 #specialteams
1:29 am SpecTeams: RT @FroggyPrinceMom: @SpecTeams Oh, & thanks! We’re working our way towards @AutismMomExpert‘s example, 1 inchstone at at time 🙂 #specialteams
1:30 am SpecTeams: @AutismMomExpert Many of our regulars r writers and/or bloggers, so it would be interesting to hear how the book came about #specialteams
1:31 am AutismMomExpert: @FroggyPrinceMom You bet that is how it is done 1 inchstone at a time. Keep up the great work! It is a process. #specialteams
1:31 am SpecTeams: Chat with mom, writer, #autism advocate @AutismMomExpert happening now http://tweetchat.com/room/specialteams #specialteams
1:32 am AutismMomExpert: @SpecTeams I began by writing down how I felt and what I was going through each day.I never expected to make a book out of it. #specialteams
1:33 am jterzieff: RT @SpecTeams: RT @AutismMomExpert @g_r_v It is a tough road …What I do know is we have to do our best and forge ahead #specialteams >> Well said!
1:33 am AutismMomExpert: @SpecTeams After Brandon had ten years of independence under his belt I knew we had something worth sharing. #specialteams
1:34 am jterzieff: RT @AutismMomExpert: @g_r_v No matter what! As moms we have it in us to achieve what our kids need and deserve. We fight for what is right. #specialteams
1:35 am SpecTeams: RT @AutismMomExpert: @SpecTeams I began by writing down how I felt and what I was going through each day.I never expected to make a book out of it. #specialteams
1:35 am SpecTeams: RT @AutismMomExpert: @SpecTeams After Brandon had ten years of independence under his belt I knew we had something worth sharing. #specialteams
1:35 am AutismMomExpert: @SpecTeams It tooks years to write, but it was also healing. Writing is healing and it had served its purpose. My negative.. #specialteams
1:36 am SpecTeams: @AutismMomExpert Was it difficult to find an agent/publisher? Especially as a first time writer? #specialteams
1:36 am SpecTeams: RT @AutismMomExpert: @SpecTeams It tooks years to write, but it was also healing. Writing is healing and it had served its purpose. My negative.. #specialteams
1:36 am g_r_v: I wish I wrote down more of what we have experienced. I started a blog & my son thinks its funny.He gets a kick out of twitter #specialteams
1:37 am AutismMomExpert: @SpecTeams My negative feelings disappered and my heart was filled with more love and compassion for Brandon. My new life… #specialteams
1:38 am AutismMomExpert: @SpecTeams Started to open up and here I am a motvational Speaker and author. Brandon gave me this new life. I owe him a lot. #specialteams
1:38 am jterzieff: RT @AutismMomExpert: @SpecTeams It tooks years to write, but it was also healing. Writing is healing and it had served its purpose. My negative.. #specialteams
1:39 am jterzieff: @AutismMomExpert I wanted to write down more of what we were experiencing but in the early days i was just too shell-shocked #specialteams
1:40 am SpecTeams: RT @g_r_v: I wish I wrote down more of what we have experienced. I started a blog & my son thinks its funny.He gets a kick out of twitter #specialteams
1:40 am jterzieff: @AutismMomExpert do you blog as well? #specialteams
1:41 am g_r_v: It’s exhausting sometimes. I forget what I wanted to write. Now I have a laptop& can twit or post as it happens. It does help. #specialteams
1:41 am AutismMomExpert: @SpecTeams Yes, I self published the book and it cost a lot of money, but I had to get the word out to help others. #specialteams
1:44 am SpecTeams: @AutismMomExpert oh wow! you self-published … that’s amazing! how did you get the word out? #specialteams
1:44 am superlaura: RT @g_r_v How I feel.RT @SpecTeams: Unfortunately too many #specialneeds parents feel cut off, alone and stumbling – #specialteams
1:44 am AutismMomExpert: @rucpsim Absolutely our children are capable of many things. Although independence may look different for every child. #specialteams
1:45 am sneakpeekatme: RT @AutismMomExpert: @SpecTeams It tooks years to write, it was also healing. Writing is healing & it had served its purpose #specialteams
1:47 am sneakpeekatme: RT @friedah03: Writing is so important to help others cope with barriers, not feel they are the only ones #specialteams
1:47 am SpecTeams: RT @rucpsim @AutismMomExpert It is so encouraging to hear that it is possible for our autistic children to live independently #specialteams
1:48 am SpecTeams: RT @sneakpeekatme: RT @friedah03: Writing is so important to help others cope with barriers, not feel they are the only ones #specialteams
1:48 am SpecTeams: Hey @friedah03 thanks for joining us! #specialteams
1:48 am g_r_v: @AutismMomExpert Your story is very encouraging. Esp after the one psych report was so dismal in expectations for my son. #specialteams
1:49 am jterzieff: RT @AutismMomExpert: @rucpsim Absolutely our children are capable of many things. Although independence may look different for every child. #specialteams
1:49 am friedah03: Writing is so important to help others cope with barriers, not feel they are the only ones #specialteams
1:50 am AutismMomExpert: @SpecTeams Yes, and Independence will look differently for each child. You can still live at home and be independent. #specialteams #autism
1:50 am SpecTeams: @AutismMomExpert Amazing story, really! And amazing that you had the stamina to reach out and try to share your experiences #specialteams
1:51 am sneakpeekatme: @friedah03 That is exactly why I do what I do…not just for me, but to hopefully help others. #specialteams
1:51 am SpecTeams: @AutismMomExpert For parents just starting the journey – what would you say were the most valuable lessons you’ve learned? #specialteams
1:51 am SpecTeams: Again, you can find out more about @AutismMomExpert and her great efforts here: http://www.amaliastarrspeakerautism.com/ #specialteams
1:52 am SpecTeams: RT @sneakpeekatme: @friedah03 That is exactly why I do what I do…not just for me, but to hopefully help others. #specialteams
1:53 am jterzieff: RT @sneakpeekatme: @friedah03 That is exactly why I do what I do…not just for me, but to hopefully help others. #specialteams
1:53 am g_r_v: RT @SpecTeams: Again, you can find out more about @AutismMomExpert and efforts here: http://www.amaliastarrspeakerautism.com/ #specialteams
1:53 am jterzieff: RT @g_r_v: @AutismMomExpert Your story is very encouraging. Esp after the one psych report was so dismal in expectations for my son. #specialteams
1:54 am SpecTeams: RT @AutismMomExpert: @SpecTeams Yes, and Independence will look differently for each child… #autism #specialteams
1:54 am AutismMomExpert: @SpecTeams Parents need to take care of themselves first and then they will have more to give. I know how do I find the time? #specialteams
1:55 am sneakpeekatme: RT @AutismMomExpert: @SpecTeams Parents need to take care of themselves first and then they will have more to give. #specialteams
1:55 am AutismMomExpert: @jterzieff Yes all the professionals who treated Brandon only had bad news to share with me. After a while I gaveup listening #specialteams
1:56 am g_r_v: @AutismMomExpert I work with: If I don’t take care of myself, who will take care of my son? #specialteams
1:57 am AutismMomExpert: We don’t have to listen to others when they tell us our child cannot do something. We need to listen to our hearts keep moving #specialteams
1:57 am SpecTeams: @AutismMomExpert Is there a place where we can find a speaking schedule for you? (Any plans to come to the Tampa area?) #specialteams
1:57 am sneakpeekatme: @g_r_v Excellent strategy! #specialteams
1:57 am SpecTeams: RT @g_r_v: @AutismMomExpert I work with: If I dont take care of myself, who will take care of my son? >> Nicely said! #specialteams
1:58 am AutismMomExpert: @SpecTeams I have no plans for the Tampa area righ now,but would love to be invited to speak if anyone knows of someone. #specialteams
1:58 am SpecTeams: RT @AutismMomExpert: We don’t have to listen to others when they tell us our child cannot do something. We need to listen to our hearts keep moving #specialteams
1:58 am SpecTeams: Wow – I just looked at the time! Any last minute questions for our GREAT guest @AutismMomExpert ?? #specialteams
1:58 am g_r_v: @SpecTeams It works! The doctors were shocked how I went from severe steroid dep asthmatic to mild asthma when I had my son #specialteams
1:59 am SpecTeams: Amalia – @AutismMomExpert – thank you so much for this really inspirational chat! It’s an amazing story! #autism #specialneeds #specialteams
1:59 am g_r_v: @AutismMomExpert What is the most important thing/advice you have learned through your experience? #specialteams
2:00 am AutismMomExpert: As parents, we hold te key to our children’s future. Turn that key and help your child reach the highest level possible. #specialteams
2:00 am g_r_v: RT @AutismMomExpert: As parents, we hold te key to our children’s future. Turn that key and help your child reach the highest level possible. #specialteams
2:00 am SpecTeams: RT @AutismMomExpert: As parents, we hold te key to our children’s future. Turn that key and help your child reach the highest level possible. #specialteams
2:01 am SpecTeams: Follow Amalia on twitter as @AutismMomExpert And learn more about her on her wbsite http://www.amaliastarrspeakerautism.com/ #specialteams
2:01 am AutismMomExpert: As moms we all have it is us. I have great faith in each and every one of you. Our kids all depend on us. Stay healthy! #specialteams
2:02 am SpecTeams: RT @AutismMomExpert: As moms we all have it is us. I have great faith in each and every one of you. Our kids all depend on us. Stay healthy! #specialteams
2:03 am AutismMomExpert: It’s not easy to raise a special needs child, but I say again take care of yourself first, find help, support & assistance. #specialteams
2:03 am SpecTeams: This has been great – thanks everyone for jumping in, listening, and gaining from @AutismMomExpert ‘s experiences #specialteams
2:04 am DrLynneKenney: RT @AutismMomExpert It’s not easy to raise a special needs child, take care of yourself first find help, support & assistance. #specialteams
2:04 am SpecTeams: We are still working on an alternative to the Ning – we’ll update as soon as we settle on an alternative #specialteams
2:04 am zebrafinch: RT @AutismMomExpert: It’s not easy to raise a special needs child, but I say again take care of yourself first, find help, support & assistance. #specialteams
2:05 am SpecTeams: RT @DrLynneKenney: RT @AutismMomExpert It’s not easy to raise a special needs child, take care of yourself first find help, support & assistance. #specialteams
2:05 am SpecTeams: And especially a very big thank you to Amalia @AutismMomExpert for sharing her amazing story #autism #specialneeds . #specialteams
2:05 am AutismMomExpert: @SpecTeams Thank you for allowing my voice to be heard. I love what I do helping parents with special needs children. #specialteams
2:06 am SpecTeams: RT @AutismMomExpert: @SpecTeams Thank you for allowing my voice to be heard. I love what I do helping parents with special needs children. #specialteams
2:07 am SpecTeams: Good night and thank you everyone! Great to connect as always – and see some new tweeple joining in #specialteams
2:09 am TheRealDaniG: RT @AutismMomExpert: We don’t have to listen to others when they tell us our child cannot do something. We need to listen to our hearts keep moving #specialteams
2:14 am GaryBrannigan: RT @AutismMomExpert: It’s not easy to raise a special needs child, but I say again take care of yourself first, find help, support & assistance. #specialteams
2:17 am MeltdownfreeDis: RT @AutismMomExpert: It’s not easy to raise a special needs child, but I say again take care of yourself first, find help, support & assistance. #specialteams
2:21 am TannersDad: RT @AutismMomExpert: As parents, we hold te key to our children’s future. Turn that key and help your child reach the highest level possible. #specialteams
2:55 am KizMe1: RT @AutismMomExpert: As parents, we hold te key to our children’s future. Turn that key and help your child reach the highest level possible. #specialteams
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2 Comments to “Special Teams Chat – April 30 with guest author, advocate @AutismMomExpert”

  1. Amalia Starr says:

    Hello Juliette,
    Thank you so much fro posting the chat. As you know I had technical difficulties, and I had to go in and out of the chat to make it work. I missed a lot of tweets, and thanks to you I get to see what I missed. I really enjoyed myself and thank you again for asking me be a guest in your chatroom. I wish everyone @specialteams all the best. You are a great group!

    Amalia Starr

  2. juliette says:

    Amalia –

    Thank you again both for fighting through the tech-glitches and for your inspirational words of comfort and encouragement to the group.

    I hope we’ll be able to work together again in the future!

    Juliette