Special Teams chat 4/1 featuring @heathersebi98

#specialteams Chat Transcript for April 1, 2010 featuring @heathersebi98

SpecTeams: And away we go! A few housekeeping items as we begin the chat #specialteams
1:03 am SpecTeams: Easiest way to follow along is here: http://tweetchat.com/room/specialteams #specialteams
1:03 am SpecTeams: When you get into tweetchat set the refresh speed down to 5 seconds …. #specialteams
1:03 am heathersebi98: RT @SpecTeams: Easiest way to follow along is here: http://tweetchat.com/room/specialteams #specialteams
1:04 am heathersebi98: RT @SpecTeams: When you get into tweetchat set the refresh speed down to 5 seconds …. #specialteams
1:04 am SpecTeams: Our featured team member tonight in @heathersebi98 — I’ll start the ball rolling with a few question but feel free 2 jump in! #specialteams
1:04 am baby_fphat: RT @SpecTeams: Easiest way to follow along is here: http://tweetchat.com/room/specialteams #specialteams
1:04 am baby_fphat: RT @SpecTeams: When you get into tweetchat set the refresh speed down to 5 seconds …. #specialteams
1:05 am SpecTeams: @heathersebi98 thank you for agreeing to share you story with us all. can you start by telling us a little bit about your #specialteams
1:05 am heathersebi98: @SpecTeams Let ‘er rip! I’m ready! 🙂 #specialteams
1:05 am SpecTeams: @heathersebi98 and your beautiful son Jack? #specialteams
1:05 am baby_fphat: RT @SpecTeams: Looking to gather the troops! http://tweetchat.com/room/specialteams come join us and chat with the #specialteams
1:06 am heathersebi98: I’m a mom, a wife, and an RN….We adopted Jack a little over 3 years ago. We didn’t know he was SN until Later #specialteams #specialteams
1:07 am heathersebi98: Jack has cerebral palsy, apnea, dysphagia (shall I go on?)…but he is the apple of our eye! #specialteams #specialteams
1:07 am SpecTeams: @heathersebi98 when and how did you discover Jack has #specialneeds ? #specialteams
1:08 am SNAPPIN_MIN: Hi all! Sorry to jump in late! #specialteams
1:08 am heathersebi98: I picked up on some neuro deficits due to my nursing background…he was diagnosed at 6 months of age. #specialteams
1:09 am sneakpeekatme: @heathersebi98 Oh do go on…Apnea? Central or Obstructive? #specialteams
1:09 am SpecTeams: @SNAPPIN_MIN No worries! Welcome Barb, glad you could make it! #specialteams
1:09 am heathersebi98: He wasn’t meeting milestones…his feedings were awful, losing weight… #specialteams
1:10 am kadiera: I’m here, finally. #specialteams
1:10 am heathersebi98: @sneakpeekatme he’s got mixed apnea. He manages to have both! Floppy throat and central apnea. His mom/he + for cocaine #specialteams
1:10 am heathersebi98: @SNAPPIN_MIN HI! #specialteams
1:10 am heathersebi98: @kadiera HI glad you’re here! #specialteams
1:11 am SpecTeams: @kadiera Very glad you made it!!! going to ask u a question later on! #specialteams
1:11 am SNAPPIN_MIN: @heathersebi98 Oh, that poor, precious baby! Thank God He gave him you! #specialteams
1:12 am heathersebi98: @SNAPPIN_MIN I thank God daily for His gift to us! He’s a blessing! #specialteams
1:12 am SpecTeams: @heathersebi98 do you think being an RN has helped you and your family manage Jack’s care? #specialteams
1:13 am SpecTeams: @heathersebi98 there’s always so much talk bout being ur child’s advocate… for many of us it is a very steep learning curve #specialteams
1:13 am heathersebi98: being an RN is both a blessing and a curse…I am constantly on edge! But, I wouldn’t change it! I was way ahead of the game #specialteams
1:13 am SpecTeams: RT @SNAPPIN_MIN: @heathersebi98 Oh, that poor, precious baby! Thank God He gave him you! #specialteams
1:13 am kadiera: @heathersebi98 were any of these things common for a cocaine+ baby? did you know to look for them? #specialteams
1:14 am fraase: I noticed @heathersebi98 ‘s #specialteams talk w/@SpecTeams ! Just joining in to say hi! My 3rd, Piper, is 3 years old w/ rt. hemi CP.
1:14 am heathersebi98: @SpecTeams It took me a long time to accept it all…as it does us all. There is a learning curve regardless your backround #specialteams
1:14 am SpecTeams: @heathersebi98 as a mom and an RN what advice would u give to parents coping with a new diagnosis? #specialteams
1:15 am heathersebi98: @kadiera we didn’t know of the cocaine until he was 4 months old. I had no idea what to look for! #specialteams
1:15 am SpecTeams: @fraase thank you for joining us! nice to meet you! #specialteams
1:15 am SNAPPIN_MIN: @fraase Welcome in! #specialteams
1:15 am SpecTeams: RT @heathersebi98: being an RN is both a blessing and a curse…I am constantly on edge! But, I wouldn’t change it! I was way ahead of the game #specialteams
1:15 am SpecTeams: RT @kadiera: @heathersebi98 were any of these things common for a cocaine+ baby? did you know to look for them? #specialteams
1:15 am heathersebi98: @SpecTeams at new diagnosis…deep breaths, find resources… this is your new life. It’s the rest of your life…not a moment #specialteams
1:16 am heathersebi98: Hi Mel! @fraase! #specialteams
1:16 am SpecTeams: RT @heathersebi98: @SpecTeams It took me a long time to accept it all…as it does us all. There is a learning curve regardless your backround #specialteams
1:16 am SpecTeams: RT @heathersebi98: @SpecTeams at new diagnosis…deep breaths, find resources… this is your new life. It’s the rest of your life…not a moment #specialteams
1:17 am SpecTeams: @heathersebi98 wow – so u had no idea when u adopted Jack that any of this was even a possibility…. #specialteams
1:18 am SNAPPIN_MIN: @heathersebi98 Is Jack an only child? #specialteams
1:18 am heathersebi98: @SpecTeams no, not at all! We thought we were adopting a “healthy” baby. #specialteams
1:20 am SpecTeams: @heathersebi98 blogs about her family’s experiences here: http://www.ourincrediblejourney.net/ it’s a lovely space!! #specialteams
1:20 am heathersebi98: @SNAPPIN_MIN we have a biological daughter who is 10! There’s a 6 year 663 day difference in age! 😉 #specialteams
1:21 am SpecTeams: @heathersebi98 if i may, how did your immediate family react to Jack’s situation? your extended family? #specialteams
1:21 am heathersebi98: @SpecTeams thank you for talking so nice about our blog. It’s truly a special place for us. #specialteams
1:21 am SNAPPIN_MIN: @heathersebi98 How have you found it with juggling the 2 kids given Jack’s needs? #specialteams
1:21 am SpecTeams: RT @heathersebi98: @SpecTeams thank you for talking so nice about our blog. It’s truly a special place for us. #specialteams
1:22 am heathersebi98: @SpecTeams To be truthful.. the extended family has been rough. DH’s family (mom and step father) are non-existant. #specialteams
1:22 am SpecTeams: Not sure about anyone else but Twitter is acting funny on my end – i’m sorry if there are strange delays #specialteams
1:22 am heathersebi98: @SpecTeams My parents are OK, but very nervous. My SIL and BIL are awesome. They are hands on and very willing! #specialteams
1:23 am SpecTeams: @heathersebi98 oh – i’m sorry! were they distant before as well? or after the situation developed? (n u don’t have 2 answer) #specialteams
1:24 am heathersebi98: @SNAPPIN_MIN I ended up starting to homeschool the big one this year…it was easier with dr appts and stuff! #specialteams
1:24 am SNAPPIN_MIN: @heathersebi98 What a creative way to adapt! Kudos to you! #specialteams
1:25 am heathersebi98: @SpecTeams they were “eh”…but Jack made it rough. But we don’t care. He’s our family just as much as anyone else! #specialteams
1:25 am SpecTeams: @heathersebi98 i remember when we brought Haris home my in-laws were terrified of Haris’ physical anamolies #specialteams
1:25 am SpecTeams: RT @SNAPPIN_MIN: @heathersebi98 What a creative way to adapt! Kudos to you! #specialteams
1:25 am heathersebi98: @SNAPPIN_MIN It hasn’t been easy, but it’s way better than worrying about bus drop offs and pick ups! 🙂 #specialteams
1:26 am fraase: @heathersebi98 How does J like her big sister role with #specialneeds #specialteams
1:26 am heathersebi98: @SpecTeams My parents are very nervous about Jack. My SIL and BIL are great…they want to learn! #specialteams
1:27 am heathersebi98: @fraase Ha! It’s taken awhile. She was jealous at first…very jealous…but now, she understands more. It’s an age thing! #specialteams
1:27 am SNAPPIN_MIN: @heathersebi98 Admittedly, I’m a slacker mom. I used to homeschool and I liked not having the extra running & stress #specialteams
1:28 am heathersebi98: @fraase Honestly, it’s taken a long time for her to understand her role in the family. And now she gets that this is life #specialteams
1:28 am SpecTeams: @heathersebi98 what, beyond, you immediate family, would you say has been your greatest ally in coping? blog? support group? #specialteams
1:28 am SNAPPIN_MIN: @heathersebi98 What has been your support system through all of this? #specialteams
1:28 am heathersebi98: @SNAPPIN_MIN you’re not a slacker mom! HUSH! 🙂 #specialteams
1:29 am SpecTeams: @SNAPPIN_MIN ummmm,yeah, agree with @heathersebi98 anything BUT a slacker mom! #specialteams
1:29 am SNAPPIN_MIN: @heathersebi98 I totally AM… Unashamedly! 🙂 #specialteams
1:29 am heathersebi98: @SpecTeams I think it’s honestly been my husband. He talks me off the ledge daily! Plus my background in nursing helps tons! #specialteams
1:29 am SpecTeams: RT @heathersebi98: @SpecTeams I think it’s honestly been my husband. He talks me off the ledge daily! Plus my background in nursing helps tons! #specialteams
1:30 am heathersebi98: @SNAPPIN_MIN Faith…we live 5 hours from family. most days I just wish I was nearer to them! #specialteams
1:30 am fraase: @heathersebi98 @SNAPPIN_MIN I was relieved when the big kids were AT school,w/ in-home therapies they always wanted to butt in #specialteams
1:30 am SpecTeams: @heathersebi98 mmmm yes, we’ve talked a bit about this b4 – supportive spouse. Amazingly some are doing it as single parents #specialteams
1:31 am SpecTeams: @heathersebi98 i honestly can’t imagine #specialteams
1:31 am SpecTeams: RT @fraase: @heathersebi98 @SNAPPIN_MIN I was relieved when the big kids were AT school,w/ in-home therapies they always wanted to butt in #specialteams
1:31 am SNAPPIN_MIN: @heathersebi98 What a blessing your marriage is. We all know what a strain special needs can be on a marriage! #specialteams
1:32 am SpecTeams: RT @SNAPPIN_MIN: @heathersebi98 What a blessing your marriage is. We all know what a strain special needs can be on a marriage! #specialteams
1:32 am ParkerMama: RT @fraase: @heathersebi98 @SNAPPIN_MIN WhAt? Big kids butting into therapies? Yeah. Here too. sigh. #specialteams
1:32 am heathersebi98: @SNAPPIN_MIN it’s true. I’ve written about this. We’re blessed to be on the same page…MOST times! 😉 #specialteams
1:32 am SNAPPIN_MIN: @fraase It IS really nice when you can just give one of your children all the attention they need w/o worrying about the other #specialteams
1:32 am SpecTeams: RT @ParkerMama: RT @fraase: @heathersebi98 @SNAPPIN_MIN WhAt? Big kids butting into therapies? Yeah. Here too. sigh. #specialteams
1:33 am SpecTeams: RT @heathersebi98: @SNAPPIN_MIN it’s true. I’ve written about this. We’re blessed to be on the same page…MOST times! 😉 #specialteams
1:33 am SNAPPIN_MIN: @ParkerMama Hey! How’s your little trooper doing? #specialteams
1:34 am SpecTeams: yes, LOL, was hoping that @ParkerMama @kadiera and @mercedesmy were lurking around …. #specialteams
1:34 am SpecTeams: @kadiera celebrated a milestone this week, @mercedesmy had a dream come true, and @ParkerMama, well, we’re all very relieved #specialteams
1:34 am heathersebi98: Funny truth: I have 2 hrs per night of my own..I return calls etc. He hooks up Jack and plays with the big one. I love it! #specialteams
1:35 am heathersebi98: hi @ParkerMama! #specialteams
1:35 am SpecTeams: @heathersebi98 what does Jack’s daily care/therapies involve? #specialteams
1:35 am ParkerMama: @SpecTeams @kadiera and @mercedesmy Now everybody get over there and enter our new giveaway, k? 😀 #specialteams
1:36 am heathersebi98: @SpecTeams PT/OT/ST and Special Ed Mon/Tue/Wed/ and Friday. I live in my car. #specialteams
1:36 am SpecTeams: @ParkerMama Yay!!! how are you? How is Parker? #specialteams
1:37 am SNAPPIN_MIN: @heathersebi98 You deliver them once by birth (or adoption) and thereafter by car! Ha! #specialteams
1:37 am SpecTeams: @heathersebi98 Holy hot tamales! I guess you DO live in your car!!! #specialteams
1:37 am heathersebi98: He tube feeds almost continually…he gets 3 hrs off per day. #specialteams
1:38 am heathersebi98: RT @SNAPPIN_MIN: @heathersebi98 You deliver them once by birth (or adoption) and thereafter by car! Ha! (hilarious! TRUE!) #specialteams
1:38 am SpecTeams: @heathersebi98 and how old is Jack now? and the feeding – is that b/c he still isn’t gaining properly? #specialteams
1:38 am FroggyPrinceMom: I might manage to catch a minute or two…. #specialteams
1:38 am heathersebi98: @SpecTeams I told you I need to move to Tampa! 😉 #specialteams
1:38 am SpecTeams: RT @SNAPPIN_MIN: @heathersebi98 You deliver them once by birth (or adoption) and thereafter by car! Ha! #specialteams
1:39 am SNAPPIN_MIN: @heathersebi98 I just posted a tweet yesterday where I said that I wonder what it would be like to not have a dr’s appt! #specialteams
1:39 am SpecTeams: @FroggyPrinceMom Hello!!!! Glad you could pop in for a minute!!! #specialteams
1:39 am heathersebi98: @SpecTeams He’s got a floppy throat from CP. He aspirates everything. He’ll be 4 in September! #specialteams
1:39 am heathersebi98: @SNAPPIN_MIN If you ever find out, let me know…We live at the dr! #specialteams
1:39 am SpecTeams: @heathersebi98 yes you definitely do need to move down here to Tampa! #specialteams
1:39 am SNAPPIN_MIN: @FroggyPrinceMom You mean he’s actually sleeping? #specialteams
1:40 am heathersebi98: @SpecTeams I totally want to meet you when we come in August! #specialteams
1:40 am SpecTeams: i know people are popping in and out so i’ll go ahead and share the good news this week… #specialteams
1:41 am fraase: RT @SNAPPIN_MIN: @heathersebi98 You deliver them once by birth (or adoption) and thereafter by car! Ha! #specialteams (TOTALLY!)
1:41 am SpecTeams: @heathersebi98 Absolutely!!! I will hunt you down if you leave here without us meeting! #specialteams
1:41 am FroggyPrinceMom: @SpecTeams Hello! Me too! I’d ask what I’ve missed, but I’m sure my “minute” will be over before you can even fill me in #specialteams
1:41 am ParkerMama: @SpecTeams Parker is almost back to baseline. Almost. #specialteams
1:41 am sneakpeekatme: ….drumroll….. #specialteams
1:41 am SpecTeams: @mercedesmy – after 7 years of hope, prayers, tears and a LOT of hard work finally got to hear her son say “mama” this week #specialteams
1:41 am heathersebi98: I know how many days it’s been since I slept through the night. 1301… #specialteams
1:41 am FroggyPrinceMom: @SpecTeams After all, we special needs parents really learn to be efficient with our venting…we have to be! 😉 #specialteams
1:42 am heathersebi98: @SpecTeams you won’t have to hunt me at all! 🙂 #specialteams
1:42 am SpecTeams: @ParkerMama who is here tonight (yay!!!) and her little trooper have just come through a rather difficult period (thank God) #specialteams
1:42 am heathersebi98: @SpecTeams @mercedesmy Congrats! I’m crying for you! #specialteams
1:43 am sneakpeekatme: Wow! RT @heathersebi98: @SpecTeams @mercedesmy Congrats! Im crying for you! #specialteams
1:43 am FroggyPrinceMom: Okay, finally got the hashtag feed to load….Hallo, all! #specialteams
1:43 am SpecTeams: and exactly one year ago this week, @kadiera ‘s little acorn graduated fromt he NICU and made his way home … #specialteams
1:44 am heathersebi98: @FroggyPrinceMom Hi Momma! #specialteams
1:44 am KYouell: RT @ParkerMama: @SpecTeams Parker is almost back to baseline. Almost. #specialteams
1:44 am SNAPPIN_MIN: Woo Hoo! Those are the things that keep us going, moms! #specialteams
1:44 am heathersebi98: @kadiera I sobbed through your year from NICU post! Beautiful! #specialteams
1:44 am SpecTeams: @FroggyPrinceMom hello! hope all is well with you!!! was just sharing happy news from our various teams this past week! #specialteams
1:45 am FroggyPrinceMom: @heathersebi98 Heehe…hi! Oh goodness, I wish this thing loaded more smoothly…everyone’s being all excited and it jumps #specialteams
1:45 am FroggyPrinceMom: @heathersebi98 …half a page before I know why! #specialteams
1:45 am sneakpeekatme: There is an awful lot of sobbing going on when we read other SN mama stories! I love reading them even if they make me cry! #specialteams
1:46 am SpecTeams: Absolutely @SNAPPIN_MIN ! so a great big WOOT! and *hugs* from all of us to @kadiera @ParkerMama and @mercedesmy #specialteams
1:46 am kadiera: @heathersebi98 awwww. seriously, we’ve come so very far #specialteams
1:46 am heathersebi98: @FroggyPrinceMom I know! I think it’s fun though. this is the most social I’ve been in months! 🙂 #specialteams
1:46 am FroggyPrinceMom: Do we have a chatroom with auto-update going, or anything? #specialteams
1:47 am SpecTeams: @FroggyPrinceMom fastest is here: http://tweetchat.com/room/specialteams and set refresh speed to 5 seconds #specialteams
1:47 am SpecTeams: RT @heathersebi98: @FroggyPrinceMom I know! I think it’s fun though. this is the most social I’ve been in months! 🙂 #specialteams
1:47 am heathersebi98: @kadiera I just adore you. Every little bit. BIG HUGS #specialteams
1:47 am kadiera: @FroggyPrinceMom http://tweetchat.com/room/specialteams, set the refresh speed down to 5 seconds – it helps a lot #specialteams
1:47 am heathersebi98: @kadiera also, making peep salad for Easter! #specialteams
1:47 am SpecTeams: Interesting u said that (bout being social) @heathersebi98 I know u’ve said u often feel isolated – how do u overcome? #specialteams
1:48 am FroggyPrinceMom: @heathersebi98 Oh, this is pretty much the only kind of social life I know, any more! #specialteams
1:48 am SpecTeams: RT @heathersebi98: @kadiera I just adore you. Every little bit. BIG HUGS #specialteams
1:48 am kadiera: I should be a little more here now – Alex is in bed & his midnight smoothie is half made, just waiting for the avacado 2 thaw #specialteams
1:48 am FroggyPrinceMom: @SpecTeams Love good news! Will have to read back and try to figure out what it was! ::laughs:: #specialteams
1:49 am heathersebi98: you all just enrich my life so much…truly. I just adore you all. #specialteams
1:49 am sneakpeekatme: Ditto!! RT @heathersebi98: you all just enrich my life so much…truly. I just adore you all. #specialteams
1:49 am heathersebi98: @FroggyPrinceMom me too! #specialteams
1:49 am SpecTeams: @kadiera it might sound like a joke, but seriously everytme u talk about smoothies i get hungry #specialteams
1:50 am FroggyPrinceMom: Whooo…ok…let’s see if I can vaguely keep up, now. This is the only loop I’ve got, I’m not allowed to feel out of it! 😉 #specialteams
1:50 am SpecTeams: RT @heathersebi98: you all just enrich my life so much…truly. I just adore you all. #specialteams
1:50 am heathersebi98: @SpecTeams There is no overcoming…it is what it is. We have to seek out others in the same place…to relate #specialteams
1:50 am SpecTeams: RT @heathersebi98: @SpecTeams There is no overcoming…it is what it is. We have to seek out others in the same place…to relate #specialteams
1:50 am heathersebi98: @SpecTeams truly…this is the REST of our lives. Not just a moment. We have to rely on each other #specialteams
1:51 am kadiera: I agree! RT @sneakpeekatme: Ditto!! RT @heathersebi98: you all just enrich my life so much…truly. I just adore you all. #specialteams
1:51 am SpecTeams: recap: @mercedesmy – after 7 years of hope, prayers, tears n a LOT of hard work finally heard her son say “mama” this week #specialteams
1:51 am SNAPPIN_MIN: @heathersebi98 The feeling is mutual! No one is better support than one who’s walked a mile in your shoes. #specialteams
1:52 am kadiera: @SpecTeams lol – I’d drink his smoothies. They’re tasty. #specialteams
1:52 am SpecTeams: recap: @kadiera‘s little acorn came home from the NICU (after an agonizingly long time) one year ago this week #specialteams
1:52 am sneakpeekatme: RT @SNAPPIN_MIN: @heathersebi98 The feeling is mutual! No one is better support than one who’s walked a mile in your shoes. #specialteams
1:52 am SpecTeams: and @ParkerMama and her troops have just come out the back end of a very trying medical situation!!! #specialteams
1:53 am FroggyPrinceMom: @heathersebi98 Isn’t it funny how it’s easier for us to relate to each other than … #specialteams
1:53 am heathersebi98: @SNAPPIN_MIN Empathy is so much better than sympathy. I don’t want sympathy! You know? #specialteams
1:53 am FroggyPrinceMom: …for many people with far more similar “typical” families to relate to each other?! #specialteams
1:53 am SpecTeams: RT @SNAPPIN_MIN: @heathersebi98 The feeling is mutual! No one is better support than one who’s walked a mile in your shoes. #specialteams
1:53 am kadiera: @heathersebi98 that’s so true. this *is* the rest of our lives. might as well get on w/ figuring out how 2 make the best of it #specialteams
1:53 am SpecTeams: RT @heathersebi98: @SpecTeams truly…this is the REST of our lives. Not just a moment. We have to rely on each other #specialteams
1:54 am sneakpeekatme: @kadiera as you know we celebrate EVERY single anniversary too! Congrats on A’s homecoming anniversary. #specialteams
1:54 am FroggyPrinceMom: @SpecTeams Thank you for the recap — I’m all sniffly! #specialteams
1:54 am SpecTeams: RT @kadiera: @heathersebi98 that’s so true. this *is* the rest of our lives. might as well get on w/ figuring out how 2 make the best of it #specialteams
1:54 am heathersebi98: @kadiera and get a couple friends in the mix! 😉 SMOOCH #specialteams
1:54 am SNAPPIN_MIN: @FroggyPrinceMom Interesting observation! Maybe typicals are more highly tuned to differences while we’re tuned to simlarties #specialteams
1:54 am Sparrowbug: Hey… sorry… late to the party. Had to help a friend going out of town. #specialteams
1:54 am SpecTeams: @heathersebi98 agreed!!!!! empathy people, not sympathy …. it’s hard for many to understand that #specialteams
1:54 am FroggyPrinceMom: I am so, so happy for you guys…oh my god…just…so happy… #specialteams
1:55 am heathersebi98: @Sparrowbug HI Nice to meet you! #specialteams
1:55 am SpecTeams: No problem!! @Sparrowbug Welcome!! @heathersebi98 has been sharing her story and we had some very good news this week #specialteams
1:55 am FroggyPrinceMom: @SNAPPIN_MIN I think it’s a perspective thing in general….obviously not in everyone’s specific, but in general… #specialteams
1:55 am heathersebi98: @SpecTeams My first week in Nursing school they told us empathy was better than sympathy…I never knew until now #specialteams
1:56 am sneakpeekatme: RT @SpecTeams: @heathersebi98 agreed!!!!! empathy people, not sympathy …. its hard for many to understand that #specialneeds #specialteams
1:56 am FroggyPrinceMom: @SNAPPIN_MIN Like how so many parents look for everything they can to curse about parenting, while we look for each blessing #specialteams
1:56 am SpecTeams: @kadiera and her little acorn passed a milestone; @mercedesmy had a dream come true; and @ParkerMama‘s trooper is mending #specialteams
1:56 am SNAPPIN_MIN: RT @SpecTeams: @heathersebi98 agreed!!!!! empathy people, not sympathy …. its hard for many to understand that #specialteams
1:56 am SpecTeams: RT @FroggyPrinceMom: @SNAPPIN_MIN Like how so many parents look for everything they can to curse about parenting, while we look for each blessing #specialteams
1:56 am FroggyPrinceMom: @Sparrowbug Hi! Nice to meet you! 🙂 #specialteams
1:56 am KYouell: RT @SpecTeams: recap: @mercedesmy – after 7 years of hope, prayers, tears n a LOT of hard work finally heard her son say “mama” this week #specialteams
1:57 am SNAPPIN_MIN: @FroggyPrinceMom Well put! #specialteams
1:57 am kadiera: @sneakpeekatme we said we weren’t going to celebrate every milestone…but it happens anyway. #specialteams
1:57 am sneakpeekatme: @FroggyPrinceMom well I find a few things to curse too 😉 #specialteams
1:57 am KYouell: Oh, what I’d give to hear my son w/Down syndrome *OR* typical daughter say “mom” — DANG! #specialteams
1:57 am SpecTeams: you have to @kadiera … this week we will celebrate a milestone as well, tho not the way we intended #specialteams
1:57 am FroggyPrinceMom: @sneakpeekatme Hey, it’s all relative! #specialteams
1:58 am SNAPPIN_MIN: @kadiera If you didn’t celebrate those milestones, what would you have to strengthen you through the setbacks? #specialteams
1:58 am FroggyPrinceMom: @SpecTeams No? #specialteams
1:58 am SpecTeams: This coming monday, april 5 Haris would have been 2 years old; and it’s exactly 6 months to the day from when he passed #specialteams
1:58 am sneakpeekatme: @heathersebi98 Pity & Judgement are two things I have in abundance. I’d take empathy over that any day. #specialteams
1:59 am fraase: I joke that it took so long to get Piper to talk, now we can’t get her to stop!! #specialteams
1:59 am FroggyPrinceMom: Hell, every day, even if nothing else, I can still….oh God…now I can’t even finish typing that, @SpecTeams #specialteams
1:59 am heathersebi98: @sneakpeekatme I hear you sister. loud and clear. UGH> #specialteams
1:59 am SpecTeams: It’s a tough one, but we’ll celebrate our angel nonetheless, 4 everything he gave us when he was here, and what he still gives #specialteams
1:59 am heathersebi98: @fraase Piper is my hero. I adore that child. And you, her momma. #specialteams
2:00 am FroggyPrinceMom: Oops, distracted again…hubby just got home… ::random hugs as needed until I get back:: #specialteams
2:00 am baby_fphat: @SpecTeams I’m sorry, hon. *hugs* #specialteams
2:00 am sneakpeekatme: @SpecTeams Oh. I can’t wait to read your book!! Will you do anything special in remenbrance of Haris? ((HUGS)) #specialteams
2:00 am kadiera: I keep about 50 NICU pictures on my cube wall at work. bothers coworkers but reminds me of what hard is & how far we’ve come #specialteams
2:00 am SpecTeams: We’re just about at the top of the hour — i always almost miss it because this is a great space! #specialteams
2:01 am SNAPPIN_MIN: @heathersebi98 I don’t know if this is encouragmt 2 y’all, but son turns 10 in a week & I’m so tuned out to the pity & jdgmt! #specialteams
2:01 am sneakpeekatme: @kadiera bothers them? WTH? why should they care? #specialteams
2:01 am SpecTeams: @sneakpeekatme yes, we’re going to go his grave with a bunch of family and friends and light candles #specialteams
2:01 am kadiera: @SpecTeams *hugs* #specialteams
2:01 am heathersebi98: Thank you for making this easy on me! I adore you all. Jack’s got strep…so I have to return to momma-land! xoxoxo #specialteams
2:02 am fraase: RT @baby_fphat: @SpecTeams I’m sorry, hon. *hugs* #specialteams More (((hugs)))
2:02 am SpecTeams: @kadiera absolutely! great to have those constant reminders of the journey and where you’ve been #specialteams
2:02 am kadiera: @sneakpeekatme they find the photos depressing. I think they’re inspiring. Different perspective. #specialteams
2:02 am SNAPPIN_MIN: @heathersebi98 Thanks for sharing with all of us! #specialteams
2:02 am SpecTeams: @heathersebi98 thank you so much for sharing your wonderful story!!! #specialteams
2:02 am Sparrowbug: @SpecTeams Hugs, Juliette. #specialteams
2:02 am SpecTeams: Just a note, i am on the road and *gasp* in a spot with no internet access at our regular time next week – so no chat #specialteams
2:02 am SNAPPIN_MIN: @SpecTeams Bless your heart… That’s soooo tough! #specialteams
2:03 am SpecTeams: but later this month, we’ll have a chat dedicated to the blog/writer conference AND to honor autism awareness mionth we’ll #specialteams
2:03 am kadiera: @heathersebi98 thanks for sharing with us. good luck with the strep – that’s no fun at all #specialteams
2:03 am fraase: RT @heathersebi98: @fraase Piper is my hero. I adore that child. And you, her momma. #specialteams (You are so sweet! Jack got the best!)
2:03 am SpecTeams: have @AutismMomExpert joining us before the mont is out! #specialteams
2:04 am Sparrowbug: Been trying to catch up… while dealing with T. Reading it late is still inspiring. I gotta run and do therapy with T. #specialteams
2:04 am SpecTeams: Thank you all for the hugs and encouragement — if I may ask, whatever your individual beliefs, any who are willing>> #specialteams
2:04 am Sparrowbug: So, no chat next week, but the week after that? #specialteams
2:04 am sneakpeekatme: @SpecTeams No worries. Enjoy your road trip…is it to outer Mongolia…who doesn’t have wi-fi? {GASP!} 😉 #specialteams
2:05 am SpecTeams: >> please say a little prayer of thanks to our little angel, Haris, on his birthday April 5 #specialteams
2:05 am fraase: @SpecTeams Thank you!! #specialteams
2:05 am sneakpeekatme: Of course! RT @SpecTeams: >> please say a little prayer of thanks to our little angel, Haris, on his birthday April 5 #specialteams
2:05 am SNAPPIN_MIN: @SpecTeams You’ve got it! #specialteams
2:05 am SpecTeams: Yes, @Sparrowbug chat will resume at normal time the week after next! (and yeah, it’s some crazy retreat thing for work) #specialteams
2:05 am kysilka: Sorry I missed the chat, but CONGRATS ON ALL THE GOOD NEWS! #specialteams
2:06 am SpecTeams: @fraase Thank you for joining us! i hope we’ll see you again!! #specialteams
2:06 am kadiera: will do! RT @SpecTeams: >> please say a little prayer of thanks to our little angel, Haris, on his birthday April 5 #specialteams
2:06 am Sparrowbug: @SpecTeams Awww… I’d love to. You’re inspiring to all of us, btw… even if you’d rather have that other life. We love you. #specialteams
2:06 am SpecTeams: Don’t forget to visit and add to the Ning! http://specialteams.ning.com I know i’ve been rmiss but I have a lot to add! #specialteams
2:07 am SpecTeams: @kysilka no worries luv! thanks for popping in!!! #specialteams
2:07 am SpecTeams: @Sparrowbug Thanks Wendy — i’m just doing the best i can with what I’ve been given *hugs* #specialteams
2:08 am sneakpeekatme: @SpecTeams Ok now go read about my crappy day. I’ll wait. 😉 You ROCK Mama…truly seriously ROCK! #specialteams
2:08 am SpecTeams: @baby_fphat thanks for popping in and the RTs lady!!! *hugs* #specialteams
2:08 am kysilka: Heck ya! You guys are the best! RT @SpecTeams: @kysilka no worries luv! thanks for popping in!!! #specialteams
2:08 am SpecTeams: Thanks again everyone — have a great night and week! see u all 2 weeks from now! #specialteams
2:09 am FroggyPrinceMom: Oh bugger, I really DID manage to only be here for a minute. ::sigh:: #specialteams
2:09 am SNAPPIN_MIN: Thanks to everyone! Goodnight! #specialteams
2:09 am SpecTeams: @sneakpeekatme you got it!!! my curiousity is drivin me nuts!! #specialteams
2:10 am FroggyPrinceMom: Everyone, please, if you’d like me to read something in particular, please @ me about it, only way I can keep track! #specialteams
2:10 am SpecTeams: @FroggyPrinceMom that’s ok! I’ll post the transcript on the ning (which i PROMISE i will add to this week) #specialteams
2:10 am FroggyPrinceMom: I really hate having missed so much community tonight… #specialteams
2:10 am SpecTeams: Barb – @SNAPPIN_MIN – as always, thank you for joining!!! #specialteams
2:11 am FroggyPrinceMom: @SpecTeams Thanks…could you ping me when it’s up? #specialteams
2:11 am SpecTeams: RT @FroggyPrinceMom: Everyone, please, if you’d like me to read something in particular, please @ me about it, only way I can keep track! #specialteams
2:12 am SpecTeams: and one more time, a big #specialteams thank you to @heathersebi98 for sharinbg her story! *hugs*
2:17 am jterzieff: hello #querychat tweeps! sorry i’m late! #specialteams chat ran a bit over!!! 😉
2:18 am sneakpeekatme: @FroggyPrinceMom Pinging you now to let you know that I EXPECT you to read everything I publish. That is all. 😉 #specialteams
2:19 am kysilka: RT @sneakpeekatme: @FroggyPrinceMom Pinging you now to let you know that I EXPECT you to read everything I publish. That is all. 😉 #specialteams
2:47 pm SpecTeams: #followfriday #ff these inspirational #specialteams bloggers @LoveThatMax @ParkerMama @kadiera @sneakpeekatme @BarbDittrich @heathersebi98
2:52 pm SpecTeams: #ff #followfriday from the #specialteams roster @ReesesPBC @mercedesmy @skernahan @supercatcalhoun @jasouders @AidensCross @PotamusPrefers
2:54 pm SpecTeams: More #ff #followfriday from the #specialteams roster @TchrEric @kysilka @moondustwriter @BarbDittrich @LoveThatMax @baby_fphat
2:55 pm SpecTeams: More #specialteams roster #ff #followfriday @Sparrowbug @friedah03 @kadiera @melissamurphy @aspiringmama @melissamurphy2 @jterzieff
2:56 pm mercedesmy: I’m so sorry I missed the #specialteams chat! When Niko first said “Mama”, I cried like a baby. It’s been such a long road, and far to go.
2:58 pm SpecTeams: Few more #ff #followfiday from the #specialteams roster @birdonthestreet @KYouell @FroggyPrinceMom @sneakpeekatme @SNAPPIN_MIN @fraase
2:59 pm SpecTeams: RT @mercedesmy: I’m so sorry I missed the #specialteams chat! When Niko first said “Mama”, I cried like a baby. It’s been such a long road, and far to go.
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