SpecialTeams transcript – March 26, 2010 featuring @kadiera

SpecialTeams chat – March 26, 2010 featuring @kadiera

1:00 am SpecTeams: One minute to liftoff! Come join us as @kadiera share her team’s story http://tweetchat.com/room/specialteams #specialteams
1:01 am SpecTeams: @kadiera hello! thanks again for agreeing to share! #specialteams
1:02 am SpecTeams: Remember to set the refresh speed down to 5 seconds on the tool bar if u r following along in tweetchat #specialteams
1:02 am baby_fphat: RT @SpecTeams: One minute to liftoff! Come join us as @kadiera share her team’s story http://tweetchat.com/room/specialteams #specialteams
1:03 am SpecTeams: Twitter has been a little wonky this week and today – so we’ll see how this goes! #specialteams
1:03 am SpecTeams: Chat starting now at http://tweetchat.com/room/specialteams come join @kadiera and the #specialteams
1:04 am jterzieff: RT @SpecTeams: Chat starting now at http://tweetchat.com/room/specialteams come join @kadiera and the #specialteams
1:04 am baby_fphat: RT @SpecTeams: Remember to set the refresh speed down to 5 seconds on the tool bar if u r following along in tweetchat #specialteams
1:05 am SpecTeams: @kadiera i’m not sure if others are able to get in – but why don’t we get started and see how it goes #specialteams
1:05 am SpecTeams: Can you tell us a bit about your Little Acorn and your #specialteams
1:05 am kadiera: sounds good. #specialteams
1:06 am kadiera: My son, Alex, goes by the pen name Acorn on my blog. He was a preemie, and spent 291 days in the NICU #specialteams
1:06 am baby_fphat: RT @SpecTeams: Chat starting now at http://tweetchat.com/room/specialteams come join @kadiera and the #specialteams
1:07 am kadiera: March 31 will be our 1 year anniversary home from the hosptial #specialteams
1:07 am kadiera: Alex has a tracheostomy, & was ventilator dependent when we came home. He also has a g-tube, & ate almost nothing then #specialteams
1:08 am SpecTeams: @kadiera holy wow – 291 days!! we barely survived 60! how in the world did you get through that?!? #specialteams
1:10 am Sparrowbug: Hey… popping in for a few minutes. Still have therapy with T to fit in tonight before I run off to Book club. #specialteams
1:10 am kadiera: we got through it with a lot of work. my husband was also in a car accident during that time and broke his leg, #specialteams
1:11 am SpecTeams: @Sparrowbug hey wendy! thanks for joining! #specialteams
1:11 am SpecTeams: @kadiera i know that beside the blog, you write for other places. one of your recent pieces was on play therapy, wasn’t it? #specialteams
1:12 am Sparrowbug: @SpecTeams Thanks… rough time right now, but I wanted to pop in. #specialteams
1:12 am kadiera: yes – we’ve been trying to deal with Alex’s doctor anxiety thru play therapy #specialteams
1:14 am Sparrowbug: @kadiera I can’t imagine 291 days. Your little acorn have a shunt too? The super preemie I know has one–keeps malfunctioning. #specialteams
1:14 am SpecTeams: @kadiera that’s interesting — how does that work exactly? and can you post the link to the article? #specialteams
1:15 am SpecTeams: @Sparrowbug i know, i’ve been follow’g your tweets. actually many of our regulars had very difficult times the last week or so #specialteams
1:15 am SpecTeams: Chat with @kadiera now at http://tweetchat.com/room/specialteams #specialneeds #specialteams
1:16 am SNAPPIN_MIN: RT @SpecTeams: Chat with @kadiera now at http://tweetchat.com/room/specialteams #specialneeds #specialteams
1:16 am kadiera: Sparrowbug other than the trach it appears that we’ve missed almost every possible side effect@ #specialteams
1:16 am SpecTeams: was hoping @ParkerMama might be able to pop in tonight – but they have had an extremely trying week #specialteams
1:16 am Sparrowbug: This is IEP and IFSP time for many… so stress is in the air when it comes to SN… as are germs. Did Parker’s Mom check in? #specialteams
1:17 am SpecTeams: @SNAPPIN_MIN hey Barb – thank for popping in! #specialteams
1:17 am kadiera: The play therapy article is here http://bit.ly/bVvr3C #specialteams
1:17 am SpecTeams: @baby_fphat hey pauline! thanks for poppin in to support #specialteams
1:17 am SpecTeams: RT @kadiera: The play therapy article is here http://bit.ly/bVvr3C #specialteams
1:18 am SpecTeams: RT @kadiera: yes – we’ve been trying to deal with Alex’s doctor anxiety thru play therapy #specialteams
1:18 am Sparrowbug: @kadiera Wow… I hesitate to use the term “lucky” but skipping the shunt is a blessing. What about vision issues? #specialteams
1:18 am baby_fphat: RT @SpecTeams: Chat with @kadiera now at http://tweetchat.com/room/specialteams #specialneeds #specialteams
1:18 am SNAPPIN_MIN: @SpecTeams Hi all! @kadiera How is the play therapy working for you? Can you tell us more about how that works? #specialteams
1:18 am kadiera: Basically, we’ve been trying to get him to play with a play doctor set, so he’s more used to the things they do in drs offices #specialteams
1:19 am sneakpeekatme: @kadiera @SpecTeams Hi ladies, just juggling here…wanted to say HEY! #specialteams
1:19 am SpecTeams: I know Parker is doing a bit better (thankfully) and Tammy (@ParkerMama) tweeted a bit earlier, but not a lot #specialteams
1:19 am Sparrowbug: @kadiera I know when B was in early intervention… half of the kids were preemies and some also had severe sensory issues…. #specialteams
1:19 am kadiera: @Sparrowbug no vision issues. biggest issue is speech, and next biggest is hospital-induced motor skill delays #specialteams
1:19 am baby_fphat: @SpecTeams here for you and yours, babe. Trying to think of a way to support your #marchforbabies. There’ll be a post soon. #specialteams
1:20 am kadiera: @sneakpeekatme hi! I have a not-wanting-to-sleep toddler in my lap while typing 🙂 #specialteams
1:20 am Sparrowbug: @kadiera How old is Alex? (I apologize if you already mentioned this…) #specialteams
1:20 am SpecTeams: @sneakpeekatme Hey Janis! thank for popping in!!! 😉 #specialteams
1:21 am kadiera: The play therapy is helping, but probably not helping enough. Still discussing w/ drs @ what point hysterics are 2 much #specialteams
1:21 am kadiera: Alex is 21.5 months actual age – he was 13 weeks early #specialteams
1:22 am SNAPPIN_MIN: @kadiera That’s got to be so hard with him not too verbal at this point… Hard to express himself! #specialteams
1:22 am SpecTeams: What does the play therapy look like? and are the hysterics common w/Alex, I mean? #specialteams
1:22 am kadiera: 13 is his lucky number – 13 wks early, in rm 13, hospital on 13 mile rd, born on friday the 13th @ 6:13 am, vent 13 in NICU 🙂 #specialteams
1:22 am kadiera: He’s not very verbal, but we do sign a lot with him – he doesn’t sign back, but he gets his point across #specialteams
1:23 am sneakpeekatme: RT @kadiera: 13 is lucky number, 13wks early, rm 13, hospital on 13 mile rd, born on fri the 13th @ 6:13 am, vent 13 in NICU #specialteams
1:23 am Sparrowbug: @kadiera Will he always be on the trach? #specialteams
1:23 am SpecTeams: RT @kadiera: The play therapy is helping, but probably not helping enough. Still discussing w/ drs @ what point hysterics are 2 much #specialteams
1:24 am kadiera: mostly, he’s a pretty easy going kid. The drs ofc issue is *so* dramatically different…like, completely different kid #specialteams
1:24 am SpecTeams: @KYouell LOL – oh my goodness!!!! talk about juggling! join/follow as much as u can! #specialteams *hugs*
1:24 am SpecTeams: RT @kadiera: He’s not very verbal, but we do sign a lot with him – he doesn’t sign back, but he gets his point across #specialteams
1:25 am kadiera: @Sparrowbug no – we’re quickly approaching no trach -maybe this year – though he’ll need oxygen a while longer #specialteams
1:25 am fringies: RT @SpecTeams: “Chat with @kadiera now at http://tweetchat.com/room/specialteams #specialneeds #specialteams
1:26 am Sparrowbug: @kadiera Being nonverbal at his age and a boy isn’t super alarming without his history. It’s hard to get ST before age 2 here. #specialteams
1:27 am kadiera: Basically, we’re doing role play type stuff with the dr toys – BP, stethescope, check teddy’s lungs, etc #specialteams
1:27 am SNAPPIN_MIN: @kadiera What sort of support system did you & do you have around you for dealing with your precious Acorn? #specialteams
1:27 am sneakpeekatme: @kadiera Hey that’s GREAT news about ditching the Trach! WOOT!! #specialteams
1:27 am SpecTeams: RT @kadiera: Basically, we’re doing role play type stuff with the dr toys – BP, stethescope, check teddy’s lungs, etc #specialteams
1:27 am kadiera: @Sparrowbug right. we fought 2 get ST from school this winter, theyy just started, but private insurance is paying for ST 2 #specialteams
1:27 am SpecTeams: RT @sneakpeekatme: @kadiera Hey that’s GREAT news about ditching the Trach! WOOT!! #specialteams
1:28 am Sparrowbug: @kadiera Awesome about getting off the trach! You guys will have to celebrate. #specialteams
1:28 am SpecTeams: RT @Sparrowbug: @kadiera Awesome about getting off the trach! You guys will have to celebrate. #specialteams
1:28 am kadiera: @sneakpeekatme 🙂 hypospadius repair in April, then discuss with ENT & pulmo, but pulm wants 2 decan2 nasal O2 #specialteams
1:29 am SpecTeams: @kadiera That is wonderful news!!!! (the trach) … i smell a Twitter party!!! #specialteams
1:29 am Sparrowbug: @kadiera Yep, boys often are speech-delayed by nature, so EI fights giving services or evals. It’s a pain when there’s diag. #specialteams
1:30 am sneakpeekatme: @kadiera Yeah removal of trach is always hard on kids w/O2. Austin fights the nasal cannula so we are stuck for many reasons. #specialteams
1:30 am SpecTeams: @kadiera do u have a date in April? will light candles for him! #specialteams
1:30 am Sparrowbug: @kadiera Do you have him in playgroups or OT or PT? (Occupational Therapy or Physical Therapy) #specialteams
1:31 am kadiera: we will definitely have 2 celebrate when we get there. we try not 2 plan ahead just in case #specialteams
1:31 am sneakpeekatme: BTDT!!! No plans! RT @kadiera: we will definitely have 2 celebrate when we get there. we try not 2 plan ahead just in case #specialteams
1:31 am SpecTeams: I got so involved I forgot to put this out there! @kadiera ‘s lovely blog http://ourlittleacorn.blogspot.com/ some gr8 reading #specialteams
1:31 am Sparrowbug: BTW… I apologize if I throw random acronyms around… I know sometimes they’re different per state or unfamiliar. #specialteams
1:31 am kadiera: OT, PT, ST 3 times a week each. This winter the risk of germs has been 2 high for group stuff #specialteams
1:32 am fringies: @kadiera That’s awesome! My dd is a deaf 24 weeker. Signing has been wonderful for her siblings also. #specialteams
1:32 am kadiera: Surgery April 22. They’re claiming outpatient, which surprises me #specialteams
1:32 am SNAPPIN_MIN: RT @SpecTeams: I got so involved I forgot to put this out there! @kadiera s lovely blog http://ourlittleacorn.blogspot.com/ #specialteams
1:33 am Sparrowbug: @kadiera That’s great as far as services go for this area. Sometimes it’s difficult to get anywhere near that amount. #specialteams
1:33 am kadiera: @fringies you know, we believe he recognizes 60-70 signs. just slow on the responses #specialteams
1:33 am Sparrowbug: @kadiera I hear you on infections and low immunity. Winters are nasty on low immune systems. #specialteams
1:33 am SpecTeams: @fringies thanks for popping in!! #specialteams
1:33 am kadiera: @Sparrowbug we are blessed with phenomenal insurance. they pay for private therapy, in home, 2x/wk for each. #specialteams
1:33 am sneakpeekatme: @kadiera He’ll catch on with ASL, Austin is a lil sponge…although now he prefers to try to talk vs. ASL. #specialteams
1:34 am kadiera: Last spring, not long after leaving NICU, Alex got RSV. we had 2 weekends sorta like @ParkerMama‘s week – we’re paranoid now #specialteams
1:35 am Sparrowbug: @kadiera Wonderful on the insurance. I never fully appreciated some of the finer points of insurance before the kids. #specialteams
1:35 am SpecTeams: @kadiera for those who don’t know about it – can you tell us a bit about Special Mom Talk? #specialteams
1:35 am kadiera: granted, I can’t afford to quit my job because of the insurance, but I think it’s a small price to pay right now #specialteams
1:36 am Sparrowbug: I found that both speech and signing came in spurts… and it was sudden and massive when they “got it.” Two months then BAM. #specialteams
1:37 am kadiera: Special Mom Talk is a relatively new site for SN parents. she posts articles by parents, and has a forum #specialteams
1:37 am SpecTeams: @kadiera i don’t blame you! following @ParkerMama ‘s tweets and blog this week was pure heartache. #specialteams
1:37 am SNAPPIN_MIN: RT @kadiera: Special Mom Talk is a relatively new site for SN parents. she posts articles by parents, and has a forum #specialteams
1:37 am SpecTeams: RT @Sparrowbug: I found that both speech and signing came in spurts… and it was sudden and massive when they “got it.” Two months then BAM. #specialteams
1:38 am SpecTeams: RT @kadiera: Special Mom Talk is a relatively new site for SN parents. she posts articles by parents, and has a forum #specialteams
1:39 am SpecTeams: so can parents ask to contribute tp Special Mom Talk? or request topics for articles? #specialteams
1:39 am Sparrowbug: @kadiera Having SN kids comes with some LOW points but makes for some HIGH and unexpected joy. When thinks click-beautiful. #specialteams
1:39 am SpecTeams: here’s the link: http://www.specialmomtalk.com/ #specialteams
1:40 am SpecTeams: RT @Sparrowbug: @kadiera Having SN kids comes with some LOW points but makes for some HIGH and unexpected joy. When thinks click-beautiful. #specialteams
1:40 am kadiera: @SpecTeams yes – I know she’s always looking for submissions, and has put out a few requests for articles #specialteams
1:40 am SpecTeams: RT @kadiera: @SpecTeams yes – I know she’s always looking for submissions, and has put out a few requests for articles #specialteams
1:40 am sneakpeekatme: @Sparrowbug Exactly!! #specialteams
1:40 am Sparrowbug: @kadiera Finding out your insurance will cover something new… wonderful. Finally getting medical issues dealt with-peaceful. #specialteams
1:40 am fringies: @kadiera That’s wonderful that he recognizes so much! It’s so exciting when communication happens when otherwise it might not. #specialteams
1:41 am SpecTeams: @kadiera Is she on twitter? #specialteams
1:42 am Sparrowbug: @kadiera Potty-training at four years old… awe and amazement and pride. Their first friend at six… tears. It’s different. #specialteams
1:42 am fringies: @SpecTeams Happy to be here. Just using PockeTwit on my phone so I might be a tad behind… 🙂 #specialteams
1:42 am sneakpeekatme: @SpecTeams There are so many wonderful sites out there for SN parents to read. So many perspectives…it is quite amazing! #specialteams
1:42 am SpecTeams: Also, I did find a volunteer to help with tech stuff for a web-based blogger/writer conference series for later >> #specialteams
1:42 am kadiera: @SpecTeams @SpecialMomTalk #specialteams
1:42 am Sparrowbug: @kadiera Anyway… it sounds like you’ve got so much on track–servicewise and that trach coming out… WOW. So wonderful!!! #specialteams
1:43 am kadiera: @Sparrowbug we got to watch Alex learn to open his eyes. I will always treasure that amongst the NICU mess. #specialteams
1:43 am SpecTeams: this summer. (yay!) When you get a chance plz visit/join the ning and give me your thoughts, i posted questions in the forum #specialteams
1:44 am birdonthestreet: @SpecTeams COOL! #specialteams
1:44 am SpecTeams: Here’s the ning link: http://specialteams.ning.com/ #specialteams
1:44 am Sparrowbug: @kadiera My daughter was in NICU for a short time due to a collapsed lung at birth. Her first cry… real cry… brought joy. #specialteams
1:44 am kadiera: And yes, Alex has made huge strides – running, eating, babbling. we’re hopeful speech will B the only thing left in a year #specialteams
1:45 am SpecTeams: @fringies no worries! glad to have you with us! #specialteams
1:45 am jasouders: oops, sorry I’m late guys. What I miss? #specialteams
1:45 am Sparrowbug: @kadiera Those moments are so amazing and special and maybe they’re personal because few understand, but WOW they’re great. #specialteams
1:45 am kadiera: @Sparrowbug you know, the problem with the trach was that we lost hearing him cry for a while there. that was hard #specialteams
1:45 am SpecTeams: @birdonthestreet I know right?!?! still going to take me a couple weeks to figure out pricing/platform options #specialteams
1:46 am SpecTeams: @jasouders hey lady! @kadiera ‘s been telling us about her team, and Special Mom Talk #specialteams
1:46 am Sparrowbug: @kadiera Oh I bet… crying makes it so much easier to know what they need. Oh… how rough. #specialteams
1:46 am SpecTeams: @jasouders and i’ve been updating progress on the conference idea — i’ve found a volunteer tech advisor to help me #specialteams
1:47 am sneakpeekatme: RT @SpecTeams: Here’s the ning link: http://specialteams.ning.com/ #specialteams
1:47 am SpecTeams: @kadiera ohhh that is VERY hard. when Haris was on the vent, watching him cry used to make me shake #specialteams
1:48 am SpecTeams: Yes, please eveyone get over to the Ning and comment of topics you’d like covered for the conference series! It’s hard to >>> #specialteams
1:48 am Sparrowbug: @kadiera Plus, crying was the easiest way to pick out your child. It’s amazing how mothers can recognize their child’s cry. #specialteams
1:48 am SpecTeams: approach speakers until I have a better idea of what the group wants to hear/see/learn #specialteams
1:49 am Sparrowbug: My hubby took T up to do therapy. I can’t imagine not having a supportive spouse for the record. #specialteams
1:49 am sneakpeekatme: Hey @SpecTeams I have a little bit of good news for you from my lil’ corner of the blogosphere but I am gonna DM you (tease!) #specialteams
1:49 am SpecTeams: Also, plz reach out to others u think might be interested in attending conference series and send them my way or to the ning #specialteams
1:49 am sneakpeekatme: AGREE!! RT @SpecTeams: @kadiera ohhh that is VERY hard. when Haris was on the vent, watching him cry used to make me shake #specialteams
1:49 am SpecTeams: @sneakpeekatme TOTAL tease! #specialteams
1:49 am Sparrowbug: @kadiera So, does Alex typically have sleeping issues or no more than most tykes his age? #specialteams
1:51 am kadiera: he’s actually a really good sleeper. He’s slept through night except a few random issues. getting 2 sleep is a challenge now #specialteams
1:51 am SpecTeams: @Sparrowbug oh i know! and some of our group is doing it as single-parents — amazing people! #specialteams
1:51 am kadiera: but once he’s out he’s usually out for good. always a plus. #specialteams
1:52 am kadiera: plus, we have nursing @ night. this is a huge help – waking to vent alarms at 4 am are the worst. #specialteams
1:52 am jterzieff: RT @SpecTeams: Also, I did find a volunteer to help with tech stuff for a web-based blogger/writer conference series for later >> #specialteams
1:52 am jterzieff: RT @SpecTeams: this summer. (yay!) When you get a chance plz visit/join the ning and give me your thoughts, i posted questions in the forum #specialteams
1:53 am jterzieff: RT @SpecTeams: Here’s the ning link: http://specialteams.ning.com/ #specialteams
1:53 am Sparrowbug: @kadiera That’s awesome that he is a good sleeper. I believe that’s rare among micro/super preemies, isn’t it? #specialteams
1:53 am jasouders: QFT! RT @kadiera: plus, we have nursing @ night. this is a huge help – waking to vent alarms at 4 am are the worst. #specialteams
1:53 am sneakpeekatme: Yeah, that’s me!! RT @SpecTeams: @Sparrowbug oh i know! and some of our group is doing it as single-parents — amazing people! #specialteams
1:54 am Sparrowbug: Speaking of which… how much did Alex weigh at birth? (For those that joined later… Alex was in hospital 291 days.) #specialteams
1:54 am SpecTeams: oh, and i also found a bit of help for the Ning – so hope get the blogroll and twitter rolls up and running shortly! #specialteams
1:54 am kadiera: @Sparrowbug I’ve heard that it’s rare, but I don’t know of too many ppl who actually admit 2 sleeping problems #specialteams
1:54 am Sparrowbug: @sneakpeekatme Amazing… and I mean that. I can’t even begin to imagine what I’d do without my husband here. #specialteams
1:56 am SpecTeams: RT @Sparrowbug: @sneakpeekatme Amazing… and I mean that. I can’t even begin to imagine what I’d do without my husband here. #specialteams
1:56 am jasouders: @kadiera Sorry if this was asked already, but how early was he born? #specialteams
1:56 am kadiera: He was 660 grams (1 lb 7 oz) less than 1%. He’s ~40% for adjusted age now. All that catching up was after he got his trach #specialteams
1:56 am SpecTeams: @sneakpeekatme Agree with @Sparrowbug — absolutely amazing! #specialteams
1:56 am Sparrowbug: @kadiera I seem to remember a lot of sensory issues preventing sleeping among those I knew, but you’ve lucked out in many ways #specialteams
1:57 am SpecTeams: RT @kadiera: He was 660 grams (1 lb 7 oz) less than 1%. He’s ~40% for adjusted age now. All that catching up was after he got his trach #specialteams
1:57 am Sparrowbug: @kadiera Wow… his birth weight got a gasp out of me. What a miracle your son is! #specialteams
1:58 am jasouders: RT @Sparrowbug: @kadiera Wow… his birth weight got a gasp out of me. What a miracle your son is! #specialteams
1:58 am kadiera: @Sparrowbug we do worry about sensory stuff – runs in the family too. So far it appears mild – no worse than me or his dad 🙂 #specialteams
1:58 am SpecTeams: @kadiera oh my gosh! me too! my fingers just froze over the keyboard — and how much does he weigh now? #specialteams
1:59 am kadiera: about 26 lbs – we’re due for a weigh in next week #specialteams
1:59 am Sparrowbug: @jasouders She mentioned his lucky number is 13… and he was 13 weeks early. #specialteams
1:59 am SpecTeams: RT @jasouders: @kadiera Sorry if this was asked already, but how early was he born? #specialteams
2:00 am kadiera: and…he’s mostly orally fed, which is a big deal for trach kids. we give him a crazy smoothie at night 2 keep calories up #specialteams
2:00 am sneakpeekatme: @kadiera Whoa…I’m always amazed at babies that tiny. My nephew was 4.7lb, Austin was 5.6lb…I can’t imagine 1.7lb. WOW!! #specialteams
2:00 am SpecTeams: @kadiera Wow! Look at him go!!! What a little trooper!! #specialteams
2:00 am jasouders: @Sparrowbug @kadiera I’d have to agree with that being his luck number than. Wow. #specialteams
2:01 am Sparrowbug: @kadiera He just sounds lucky for a child with so much 13ness in his life. 😉 He might really surprise you on speech one day. #specialteams
2:02 am kadiera: It’s always amazing to me how big he is now – used to be able to cover him completely w/2 hands #specialteams
2:02 am Sparrowbug: @jasouders He was also born on the 13th among other 13 quirks… It was an impressive list of 13 correlations. LOL #specialteams
2:02 am sneakpeekatme: @kadiera I’d love to know your trick on getting him oral, we are struggling on that right now. It is going VERY SLOW… #specialteams
2:03 am kadiera: @Sparrowbug I have no doubt he’ll figure out the speech thing. he is good at problem solving, & thinks things through #specialteams
2:03 am Sparrowbug: RT @kadiera: 13 is his lucky number – 13 wks early, in rm 13, hospital on 13 mile rd, born on friday the 13th @ 6:13 am, vent 13 in NICU 🙂 #specialteams
2:03 am SpecTeams: RT @sneakpeekatme: @kadiera I’d love to know your trick on getting him oral, we are struggling on that right now. It is going VERY SLOW… #specialteams
2:03 am SpecTeams: Absolutely! After everything he’s faced — he can do anything! #specialteams
2:04 am kadiera: @sneakpeekatme dumb luck? he was partially oral before trach, then refused bottle. we just keep trying things, over and over. #specialteams
2:04 am SpecTeams: Inspiring, amazing …. lovely! @kadiera thank you so much for sharing all this wonderful information! #specialteams
2:05 am Sparrowbug: Of course… 13 is odd and prime… so that makes it even more special. 😉 (Among those with OCD odd number penchants anyway.) #specialteams
2:05 am kadiera: though I will say, hubby & I do not feed purees. nurses do that. we do finger foods. we’re all 2 tired @ dinner to fight it #specialteams
2:05 am SpecTeams: @kadiera what about the shake? would that help @sneakpeekatme maybe? what’s in it? #specialteams
2:05 am sneakpeekatme: @kadiera so no issues with aspiration? that has been our trouble until NOW!! just this week he was cleared on MBSS. #specialteams
2:06 am Sparrowbug: @sneakpeekatme MBSS? #specialteams
2:06 am SpecTeams: Wow – i got so engrossed in all this, I didn’t realize the time! We’re past the top of the hours already! #specialteams
2:07 am SpecTeams: but this has been truly inspiring @kadiera– thank you!!! #specialteams
2:07 am sneakpeekatme: @Sparrowbug sorry, MBSS = Modified Barium Swallow Study to rule out aspiration (food or liquid into the lungs) #specialteams
2:07 am SpecTeams: And plz everyone head to the Ning – give me your ideas, suggestions, etc, etc 4 the writer/blogger conference series! #specialteams
2:07 am sneakpeekatme: @SpecTeams I’ll DM you now. *snicker* #specialteams
2:07 am Sparrowbug: @sneakpeekatme Thank you… I’m not hip to some of the preemie lingo. #specialteams
2:07 am kadiera: @sneakpeekatme no evidence of it early on, so they let us go at it. no signs of anything in trach either #specialteams
2:07 am birdonthestreet: I gotta get running–little one is under the weather #specialteams
2:08 am SpecTeams: Once again this is @kadiera ‘s blog http://ourlittleacorn.blogspot.com/ Check her out! #specialteams
2:08 am kadiera: @SpecTeams thanks for having me #specialteams
2:08 am SpecTeams: @birdonthestreet thanks for popping in!!! hope little one gets better soon!!!! 🙂 #specialteams
2:08 am Sparrowbug: @kadiera I gotta run to get ready for book club, but your story is inspiring as is your progress. I hope it keeps going! Hugs #specialteams
2:09 am SpecTeams: RT @Sparrowbug: @kadiera I gotta run to get ready for book club, but your story is inspiring as is your progress. I hope it keeps going! Hugs #specialteams
2:09 am jasouders: Ditto! RT @Sparrowbug: @kadiera I gotta run t, but your story is inspiring as is your progress. I hope it keeps going! Hugs #specialteams
2:09 am SpecTeams: I WILL post the chat transcript at the Ning for anyone who fell behind or wants to review the info on Special Mom Talk #specialteams
2:10 am SpecTeams: Thank you everyone for a wonderful chat — see you all next week!!! *hugs* and keep praying for @ParkerMama ‘s little warrior! #specialteams
2:12 am SpecTeams: @kadiera you rock lady!!! thank you SOOOO much for that! your story was JUST what everyone needed! #specialteams
2:24 am jterzieff: RT @SpecTeams: Once again this is @kadiera ‘s blog http://ourlittleacorn.blogspot.com/ Check her out! #specialteams
2:24 am jterzieff: RT @SpecTeams: Thank you everyone for a wonderful chat — see you all next week!!! *hugs* and keep praying for @ParkerMama ‘s little warrior! #specialteams
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