SpecialTeams chat – March 26, 2010 featuring @kadiera
| 1:00 am | SpecTeams: | One minute to liftoff! Come join us as @kadiera share her team’s story http://tweetchat.com/room/specialteams #specialteams |
| 1:01 am | SpecTeams: | @kadiera hello! thanks again for agreeing to share! #specialteams |
| 1:02 am | SpecTeams: | Remember to set the refresh speed down to 5 seconds on the tool bar if u r following along in tweetchat #specialteams |
| 1:02 am | baby_fphat: | RT @SpecTeams: One minute to liftoff! Come join us as @kadiera share her team’s story http://tweetchat.com/room/specialteams #specialteams |
| 1:03 am | SpecTeams: | Twitter has been a little wonky this week and today – so we’ll see how this goes! #specialteams |
| 1:03 am | SpecTeams: | Chat starting now at http://tweetchat.com/room/specialteams come join @kadiera and the #specialteams |
| 1:04 am | jterzieff: | RT @SpecTeams: Chat starting now at http://tweetchat.com/room/specialteams come join @kadiera and the #specialteams |
| 1:04 am | baby_fphat: | RT @SpecTeams: Remember to set the refresh speed down to 5 seconds on the tool bar if u r following along in tweetchat #specialteams |
| 1:05 am | SpecTeams: | @kadiera i’m not sure if others are able to get in – but why don’t we get started and see how it goes #specialteams |
| 1:05 am | SpecTeams: | Can you tell us a bit about your Little Acorn and your #specialteams |
| 1:05 am | kadiera: | sounds good. #specialteams |
| 1:06 am | kadiera: | My son, Alex, goes by the pen name Acorn on my blog. He was a preemie, and spent 291 days in the NICU #specialteams |
| 1:06 am | baby_fphat: | RT @SpecTeams: Chat starting now at http://tweetchat.com/room/specialteams come join @kadiera and the #specialteams |
| 1:07 am | kadiera: | March 31 will be our 1 year anniversary home from the hosptial #specialteams |
| 1:07 am | kadiera: | Alex has a tracheostomy, & was ventilator dependent when we came home. He also has a g-tube, & ate almost nothing then #specialteams |
| 1:08 am | SpecTeams: | @kadiera holy wow – 291 days!! we barely survived 60! how in the world did you get through that?!? #specialteams |
| 1:10 am | Sparrowbug: | Hey… popping in for a few minutes. Still have therapy with T to fit in tonight before I run off to Book club. #specialteams |
| 1:10 am | kadiera: | we got through it with a lot of work. my husband was also in a car accident during that time and broke his leg, #specialteams |
| 1:11 am | SpecTeams: | @Sparrowbug hey wendy! thanks for joining! #specialteams |
| 1:11 am | SpecTeams: | @kadiera i know that beside the blog, you write for other places. one of your recent pieces was on play therapy, wasn’t it? #specialteams |
| 1:12 am | Sparrowbug: | @SpecTeams Thanks… rough time right now, but I wanted to pop in. #specialteams |
| 1:12 am | kadiera: | yes – we’ve been trying to deal with Alex’s doctor anxiety thru play therapy #specialteams |
| 1:14 am | Sparrowbug: | @kadiera I can’t imagine 291 days. Your little acorn have a shunt too? The super preemie I know has one–keeps malfunctioning. #specialteams |
| 1:14 am | SpecTeams: | @kadiera that’s interesting — how does that work exactly? and can you post the link to the article? #specialteams |
| 1:15 am | SpecTeams: | @Sparrowbug i know, i’ve been follow’g your tweets. actually many of our regulars had very difficult times the last week or so #specialteams |
| 1:15 am | SpecTeams: | Chat with @kadiera now at http://tweetchat.com/room/specialteams #specialneeds #specialteams |
| 1:16 am | SNAPPIN_MIN: | RT @SpecTeams: Chat with @kadiera now at http://tweetchat.com/room/specialteams #specialneeds #specialteams |
| 1:16 am | kadiera: | Sparrowbug other than the trach it appears that we’ve missed almost every possible side effect@ #specialteams |
| 1:16 am | SpecTeams: | was hoping @ParkerMama might be able to pop in tonight – but they have had an extremely trying week #specialteams |
| 1:16 am | Sparrowbug: | This is IEP and IFSP time for many… so stress is in the air when it comes to SN… as are germs. Did Parker’s Mom check in? #specialteams |
| 1:17 am | SpecTeams: | @SNAPPIN_MIN hey Barb – thank for popping in! #specialteams |
| 1:17 am | kadiera: | The play therapy article is here http://bit.ly/bVvr3C #specialteams |
| 1:17 am | SpecTeams: | @baby_fphat hey pauline! thanks for poppin in to support #specialteams |
| 1:17 am | SpecTeams: | RT @kadiera: The play therapy article is here http://bit.ly/bVvr3C #specialteams |
| 1:18 am | SpecTeams: | RT @kadiera: yes – we’ve been trying to deal with Alex’s doctor anxiety thru play therapy #specialteams |
| 1:18 am | Sparrowbug: | @kadiera Wow… I hesitate to use the term “lucky” but skipping the shunt is a blessing. What about vision issues? #specialteams |
| 1:18 am | baby_fphat: | RT @SpecTeams: Chat with @kadiera now at http://tweetchat.com/room/specialteams #specialneeds #specialteams |
| 1:18 am | SNAPPIN_MIN: | @SpecTeams Hi all! @kadiera How is the play therapy working for you? Can you tell us more about how that works? #specialteams |
| 1:18 am | kadiera: | Basically, we’ve been trying to get him to play with a play doctor set, so he’s more used to the things they do in drs offices #specialteams |
| 1:19 am | sneakpeekatme: | @kadiera @SpecTeams Hi ladies, just juggling here…wanted to say HEY! #specialteams |
| 1:19 am | SpecTeams: | I know Parker is doing a bit better (thankfully) and Tammy (@ParkerMama) tweeted a bit earlier, but not a lot #specialteams |
| 1:19 am | Sparrowbug: | @kadiera I know when B was in early intervention… half of the kids were preemies and some also had severe sensory issues…. #specialteams |
| 1:19 am | kadiera: | @Sparrowbug no vision issues. biggest issue is speech, and next biggest is hospital-induced motor skill delays #specialteams |
| 1:19 am | baby_fphat: | @SpecTeams here for you and yours, babe. Trying to think of a way to support your #marchforbabies. There’ll be a post soon. #specialteams |
| 1:20 am | kadiera: | @sneakpeekatme hi! I have a not-wanting-to-sleep toddler in my lap while typing 🙂 #specialteams |
| 1:20 am | Sparrowbug: | @kadiera How old is Alex? (I apologize if you already mentioned this…) #specialteams |
| 1:20 am | SpecTeams: | @sneakpeekatme Hey Janis! thank for popping in!!! 😉 #specialteams |
| 1:21 am | kadiera: | The play therapy is helping, but probably not helping enough. Still discussing w/ drs @ what point hysterics are 2 much #specialteams |
| 1:21 am | kadiera: | Alex is 21.5 months actual age – he was 13 weeks early #specialteams |
| 1:22 am | SNAPPIN_MIN: | @kadiera That’s got to be so hard with him not too verbal at this point… Hard to express himself! #specialteams |
| 1:22 am | SpecTeams: | What does the play therapy look like? and are the hysterics common w/Alex, I mean? #specialteams |
| 1:22 am | kadiera: | 13 is his lucky number – 13 wks early, in rm 13, hospital on 13 mile rd, born on friday the 13th @ 6:13 am, vent 13 in NICU 🙂 #specialteams |
| 1:22 am | kadiera: | He’s not very verbal, but we do sign a lot with him – he doesn’t sign back, but he gets his point across #specialteams |
| 1:23 am | sneakpeekatme: | RT @kadiera: 13 is lucky number, 13wks early, rm 13, hospital on 13 mile rd, born on fri the 13th @ 6:13 am, vent 13 in NICU #specialteams |
| 1:23 am | Sparrowbug: | @kadiera Will he always be on the trach? #specialteams |
| 1:23 am | SpecTeams: | RT @kadiera: The play therapy is helping, but probably not helping enough. Still discussing w/ drs @ what point hysterics are 2 much #specialteams |
| 1:24 am | kadiera: | mostly, he’s a pretty easy going kid. The drs ofc issue is *so* dramatically different…like, completely different kid #specialteams |
| 1:24 am | SpecTeams: | @KYouell LOL – oh my goodness!!!! talk about juggling! join/follow as much as u can! #specialteams *hugs* |
| 1:24 am | SpecTeams: | RT @kadiera: He’s not very verbal, but we do sign a lot with him – he doesn’t sign back, but he gets his point across #specialteams |
| 1:25 am | kadiera: | @Sparrowbug no – we’re quickly approaching no trach -maybe this year – though he’ll need oxygen a while longer #specialteams |
| 1:25 am | fringies: | RT @SpecTeams: “Chat with @kadiera now at http://tweetchat.com/room/specialteams #specialneeds #specialteams“ |
| 1:26 am | Sparrowbug: | @kadiera Being nonverbal at his age and a boy isn’t super alarming without his history. It’s hard to get ST before age 2 here. #specialteams |
| 1:27 am | kadiera: | Basically, we’re doing role play type stuff with the dr toys – BP, stethescope, check teddy’s lungs, etc #specialteams |
| 1:27 am | SNAPPIN_MIN: | @kadiera What sort of support system did you & do you have around you for dealing with your precious Acorn? #specialteams |
| 1:27 am | sneakpeekatme: | @kadiera Hey that’s GREAT news about ditching the Trach! WOOT!! #specialteams |
| 1:27 am | SpecTeams: | RT @kadiera: Basically, we’re doing role play type stuff with the dr toys – BP, stethescope, check teddy’s lungs, etc #specialteams |
| 1:27 am | kadiera: | @Sparrowbug right. we fought 2 get ST from school this winter, theyy just started, but private insurance is paying for ST 2 #specialteams |
| 1:27 am | SpecTeams: | RT @sneakpeekatme: @kadiera Hey that’s GREAT news about ditching the Trach! WOOT!! #specialteams |
| 1:28 am | Sparrowbug: | @kadiera Awesome about getting off the trach! You guys will have to celebrate. #specialteams |
| 1:28 am | SpecTeams: | RT @Sparrowbug: @kadiera Awesome about getting off the trach! You guys will have to celebrate. #specialteams |
| 1:28 am | kadiera: | @sneakpeekatme 🙂 hypospadius repair in April, then discuss with ENT & pulmo, but pulm wants 2 decan2 nasal O2 #specialteams |
| 1:29 am | SpecTeams: | @kadiera That is wonderful news!!!! (the trach) … i smell a Twitter party!!! #specialteams |
| 1:29 am | Sparrowbug: | @kadiera Yep, boys often are speech-delayed by nature, so EI fights giving services or evals. It’s a pain when there’s diag. #specialteams |
| 1:30 am | sneakpeekatme: | @kadiera Yeah removal of trach is always hard on kids w/O2. Austin fights the nasal cannula so we are stuck for many reasons. #specialteams |
| 1:30 am | SpecTeams: | @kadiera do u have a date in April? will light candles for him! #specialteams |
| 1:30 am | Sparrowbug: | @kadiera Do you have him in playgroups or OT or PT? (Occupational Therapy or Physical Therapy) #specialteams |
| 1:31 am | kadiera: | we will definitely have 2 celebrate when we get there. we try not 2 plan ahead just in case #specialteams |
| 1:31 am | sneakpeekatme: | BTDT!!! No plans! RT @kadiera: we will definitely have 2 celebrate when we get there. we try not 2 plan ahead just in case #specialteams |
| 1:31 am | SpecTeams: | I got so involved I forgot to put this out there! @kadiera ‘s lovely blog http://ourlittleacorn.blogspot.com/ some gr8 reading #specialteams |
| 1:31 am | Sparrowbug: | BTW… I apologize if I throw random acronyms around… I know sometimes they’re different per state or unfamiliar. #specialteams |
| 1:31 am | kadiera: | OT, PT, ST 3 times a week each. This winter the risk of germs has been 2 high for group stuff #specialteams |
| 1:32 am | fringies: | @kadiera That’s awesome! My dd is a deaf 24 weeker. Signing has been wonderful for her siblings also. #specialteams |
| 1:32 am | kadiera: | Surgery April 22. They’re claiming outpatient, which surprises me #specialteams |
| 1:32 am | SNAPPIN_MIN: | RT @SpecTeams: I got so involved I forgot to put this out there! @kadiera s lovely blog http://ourlittleacorn.blogspot.com/ #specialteams |
| 1:33 am | Sparrowbug: | @kadiera That’s great as far as services go for this area. Sometimes it’s difficult to get anywhere near that amount. #specialteams |
| 1:33 am | kadiera: | @fringies you know, we believe he recognizes 60-70 signs. just slow on the responses #specialteams |
| 1:33 am | Sparrowbug: | @kadiera I hear you on infections and low immunity. Winters are nasty on low immune systems. #specialteams |
| 1:33 am | SpecTeams: | @fringies thanks for popping in!! #specialteams |
| 1:33 am | kadiera: | @Sparrowbug we are blessed with phenomenal insurance. they pay for private therapy, in home, 2x/wk for each. #specialteams |
| 1:33 am | sneakpeekatme: | @kadiera He’ll catch on with ASL, Austin is a lil sponge…although now he prefers to try to talk vs. ASL. #specialteams |
| 1:34 am | kadiera: | Last spring, not long after leaving NICU, Alex got RSV. we had 2 weekends sorta like @ParkerMama‘s week – we’re paranoid now #specialteams |
| 1:35 am | Sparrowbug: | @kadiera Wonderful on the insurance. I never fully appreciated some of the finer points of insurance before the kids. #specialteams |
| 1:35 am | SpecTeams: | @kadiera for those who don’t know about it – can you tell us a bit about Special Mom Talk? #specialteams |
| 1:35 am | kadiera: | granted, I can’t afford to quit my job because of the insurance, but I think it’s a small price to pay right now #specialteams |
| 1:36 am | Sparrowbug: | I found that both speech and signing came in spurts… and it was sudden and massive when they “got it.” Two months then BAM. #specialteams |
| 1:37 am | kadiera: | Special Mom Talk is a relatively new site for SN parents. she posts articles by parents, and has a forum #specialteams |
| 1:37 am | SpecTeams: | @kadiera i don’t blame you! following @ParkerMama ‘s tweets and blog this week was pure heartache. #specialteams |
| 1:37 am | SNAPPIN_MIN: | RT @kadiera: Special Mom Talk is a relatively new site for SN parents. she posts articles by parents, and has a forum #specialteams |
| 1:37 am | SpecTeams: | RT @Sparrowbug: I found that both speech and signing came in spurts… and it was sudden and massive when they “got it.” Two months then BAM. #specialteams |
| 1:38 am | SpecTeams: | RT @kadiera: Special Mom Talk is a relatively new site for SN parents. she posts articles by parents, and has a forum #specialteams |
| 1:39 am | SpecTeams: | so can parents ask to contribute tp Special Mom Talk? or request topics for articles? #specialteams |
| 1:39 am | Sparrowbug: | @kadiera Having SN kids comes with some LOW points but makes for some HIGH and unexpected joy. When thinks click-beautiful. #specialteams |
| 1:39 am | SpecTeams: | here’s the link: http://www.specialmomtalk.com/ #specialteams |
| 1:40 am | SpecTeams: | RT @Sparrowbug: @kadiera Having SN kids comes with some LOW points but makes for some HIGH and unexpected joy. When thinks click-beautiful. #specialteams |
| 1:40 am | kadiera: | @SpecTeams yes – I know she’s always looking for submissions, and has put out a few requests for articles #specialteams |
| 1:40 am | SpecTeams: | RT @kadiera: @SpecTeams yes – I know she’s always looking for submissions, and has put out a few requests for articles #specialteams |
| 1:40 am | sneakpeekatme: | @Sparrowbug Exactly!! #specialteams |
| 1:40 am | Sparrowbug: | @kadiera Finding out your insurance will cover something new… wonderful. Finally getting medical issues dealt with-peaceful. #specialteams |
| 1:40 am | fringies: | @kadiera That’s wonderful that he recognizes so much! It’s so exciting when communication happens when otherwise it might not. #specialteams |
| 1:41 am | SpecTeams: | @kadiera Is she on twitter? #specialteams |
| 1:42 am | Sparrowbug: | @kadiera Potty-training at four years old… awe and amazement and pride. Their first friend at six… tears. It’s different. #specialteams |
| 1:42 am | fringies: | @SpecTeams Happy to be here. Just using PockeTwit on my phone so I might be a tad behind… 🙂 #specialteams |
| 1:42 am | sneakpeekatme: | @SpecTeams There are so many wonderful sites out there for SN parents to read. So many perspectives…it is quite amazing! #specialteams |
| 1:42 am | SpecTeams: | Also, I did find a volunteer to help with tech stuff for a web-based blogger/writer conference series for later >> #specialteams |
| 1:42 am | kadiera: | @SpecTeams @SpecialMomTalk #specialteams |
| 1:42 am | Sparrowbug: | @kadiera Anyway… it sounds like you’ve got so much on track–servicewise and that trach coming out… WOW. So wonderful!!! #specialteams |
| 1:43 am | kadiera: | @Sparrowbug we got to watch Alex learn to open his eyes. I will always treasure that amongst the NICU mess. #specialteams |
| 1:43 am | SpecTeams: | this summer. (yay!) When you get a chance plz visit/join the ning and give me your thoughts, i posted questions in the forum #specialteams |
| 1:44 am | birdonthestreet: | @SpecTeams COOL! #specialteams |
| 1:44 am | SpecTeams: | Here’s the ning link: http://specialteams.ning.com/ #specialteams |
| 1:44 am | Sparrowbug: | @kadiera My daughter was in NICU for a short time due to a collapsed lung at birth. Her first cry… real cry… brought joy. #specialteams |
| 1:44 am | kadiera: | And yes, Alex has made huge strides – running, eating, babbling. we’re hopeful speech will B the only thing left in a year #specialteams |
| 1:45 am | SpecTeams: | @fringies no worries! glad to have you with us! #specialteams |
| 1:45 am | jasouders: | oops, sorry I’m late guys. What I miss? #specialteams |
| 1:45 am | Sparrowbug: | @kadiera Those moments are so amazing and special and maybe they’re personal because few understand, but WOW they’re great. #specialteams |
| 1:45 am | kadiera: | @Sparrowbug you know, the problem with the trach was that we lost hearing him cry for a while there. that was hard #specialteams |
| 1:45 am | SpecTeams: | @birdonthestreet I know right?!?! still going to take me a couple weeks to figure out pricing/platform options #specialteams |
| 1:46 am | SpecTeams: | @jasouders hey lady! @kadiera ‘s been telling us about her team, and Special Mom Talk #specialteams |
| 1:46 am | Sparrowbug: | @kadiera Oh I bet… crying makes it so much easier to know what they need. Oh… how rough. #specialteams |
| 1:46 am | SpecTeams: | @jasouders and i’ve been updating progress on the conference idea — i’ve found a volunteer tech advisor to help me #specialteams |
| 1:47 am | sneakpeekatme: | RT @SpecTeams: Here’s the ning link: http://specialteams.ning.com/ #specialteams |
| 1:47 am | SpecTeams: | @kadiera ohhh that is VERY hard. when Haris was on the vent, watching him cry used to make me shake #specialteams |
| 1:48 am | SpecTeams: | Yes, please eveyone get over to the Ning and comment of topics you’d like covered for the conference series! It’s hard to >>> #specialteams |
| 1:48 am | Sparrowbug: | @kadiera Plus, crying was the easiest way to pick out your child. It’s amazing how mothers can recognize their child’s cry. #specialteams |
| 1:48 am | SpecTeams: | approach speakers until I have a better idea of what the group wants to hear/see/learn #specialteams |
| 1:49 am | Sparrowbug: | My hubby took T up to do therapy. I can’t imagine not having a supportive spouse for the record. #specialteams |
| 1:49 am | sneakpeekatme: | Hey @SpecTeams I have a little bit of good news for you from my lil’ corner of the blogosphere but I am gonna DM you (tease!) #specialteams |
| 1:49 am | SpecTeams: | Also, plz reach out to others u think might be interested in attending conference series and send them my way or to the ning #specialteams |
| 1:49 am | sneakpeekatme: | AGREE!! RT @SpecTeams: @kadiera ohhh that is VERY hard. when Haris was on the vent, watching him cry used to make me shake #specialteams |
| 1:49 am | SpecTeams: | @sneakpeekatme TOTAL tease! #specialteams |
| 1:49 am | Sparrowbug: | @kadiera So, does Alex typically have sleeping issues or no more than most tykes his age? #specialteams |
| 1:51 am | kadiera: | he’s actually a really good sleeper. He’s slept through night except a few random issues. getting 2 sleep is a challenge now #specialteams |
| 1:51 am | SpecTeams: | @Sparrowbug oh i know! and some of our group is doing it as single-parents — amazing people! #specialteams |
| 1:51 am | kadiera: | but once he’s out he’s usually out for good. always a plus. #specialteams |
| 1:52 am | kadiera: | plus, we have nursing @ night. this is a huge help – waking to vent alarms at 4 am are the worst. #specialteams |
| 1:52 am | jterzieff: | RT @SpecTeams: Also, I did find a volunteer to help with tech stuff for a web-based blogger/writer conference series for later >> #specialteams |
| 1:52 am | jterzieff: | RT @SpecTeams: this summer. (yay!) When you get a chance plz visit/join the ning and give me your thoughts, i posted questions in the forum #specialteams |
| 1:53 am | jterzieff: | RT @SpecTeams: Here’s the ning link: http://specialteams.ning.com/ #specialteams |
| 1:53 am | Sparrowbug: | @kadiera That’s awesome that he is a good sleeper. I believe that’s rare among micro/super preemies, isn’t it? #specialteams |
| 1:53 am | jasouders: | QFT! RT @kadiera: plus, we have nursing @ night. this is a huge help – waking to vent alarms at 4 am are the worst. #specialteams |
| 1:53 am | sneakpeekatme: | Yeah, that’s me!! RT @SpecTeams: @Sparrowbug oh i know! and some of our group is doing it as single-parents — amazing people! #specialteams |
| 1:54 am | Sparrowbug: | Speaking of which… how much did Alex weigh at birth? (For those that joined later… Alex was in hospital 291 days.) #specialteams |
| 1:54 am | SpecTeams: | oh, and i also found a bit of help for the Ning – so hope get the blogroll and twitter rolls up and running shortly! #specialteams |
| 1:54 am | kadiera: | @Sparrowbug I’ve heard that it’s rare, but I don’t know of too many ppl who actually admit 2 sleeping problems #specialteams |
| 1:54 am | Sparrowbug: | @sneakpeekatme Amazing… and I mean that. I can’t even begin to imagine what I’d do without my husband here. #specialteams |
| 1:56 am | SpecTeams: | RT @Sparrowbug: @sneakpeekatme Amazing… and I mean that. I can’t even begin to imagine what I’d do without my husband here. #specialteams |
| 1:56 am | jasouders: | @kadiera Sorry if this was asked already, but how early was he born? #specialteams |
| 1:56 am | kadiera: | He was 660 grams (1 lb 7 oz) less than 1%. He’s ~40% for adjusted age now. All that catching up was after he got his trach #specialteams |
| 1:56 am | SpecTeams: | @sneakpeekatme Agree with @Sparrowbug — absolutely amazing! #specialteams |
| 1:56 am | Sparrowbug: | @kadiera I seem to remember a lot of sensory issues preventing sleeping among those I knew, but you’ve lucked out in many ways #specialteams |
| 1:57 am | SpecTeams: | RT @kadiera: He was 660 grams (1 lb 7 oz) less than 1%. He’s ~40% for adjusted age now. All that catching up was after he got his trach #specialteams |
| 1:57 am | Sparrowbug: | @kadiera Wow… his birth weight got a gasp out of me. What a miracle your son is! #specialteams |
| 1:58 am | jasouders: | RT @Sparrowbug: @kadiera Wow… his birth weight got a gasp out of me. What a miracle your son is! #specialteams |
| 1:58 am | kadiera: | @Sparrowbug we do worry about sensory stuff – runs in the family too. So far it appears mild – no worse than me or his dad 🙂 #specialteams |
| 1:58 am | SpecTeams: | @kadiera oh my gosh! me too! my fingers just froze over the keyboard — and how much does he weigh now? #specialteams |
| 1:59 am | kadiera: | about 26 lbs – we’re due for a weigh in next week #specialteams |
| 1:59 am | Sparrowbug: | @jasouders She mentioned his lucky number is 13… and he was 13 weeks early. #specialteams |
| 1:59 am | SpecTeams: | RT @jasouders: @kadiera Sorry if this was asked already, but how early was he born? #specialteams |
| 2:00 am | kadiera: | and…he’s mostly orally fed, which is a big deal for trach kids. we give him a crazy smoothie at night 2 keep calories up #specialteams |
| 2:00 am | sneakpeekatme: | @kadiera Whoa…I’m always amazed at babies that tiny. My nephew was 4.7lb, Austin was 5.6lb…I can’t imagine 1.7lb. WOW!! #specialteams |
| 2:00 am | SpecTeams: | @kadiera Wow! Look at him go!!! What a little trooper!! #specialteams |
| 2:00 am | jasouders: | @Sparrowbug @kadiera I’d have to agree with that being his luck number than. Wow. #specialteams |
| 2:01 am | Sparrowbug: | @kadiera He just sounds lucky for a child with so much 13ness in his life. 😉 He might really surprise you on speech one day. #specialteams |
| 2:02 am | kadiera: | It’s always amazing to me how big he is now – used to be able to cover him completely w/2 hands #specialteams |
| 2:02 am | Sparrowbug: | @jasouders He was also born on the 13th among other 13 quirks… It was an impressive list of 13 correlations. LOL #specialteams |
| 2:02 am | sneakpeekatme: | @kadiera I’d love to know your trick on getting him oral, we are struggling on that right now. It is going VERY SLOW… #specialteams |
| 2:03 am | kadiera: | @Sparrowbug I have no doubt he’ll figure out the speech thing. he is good at problem solving, & thinks things through #specialteams |
| 2:03 am | Sparrowbug: | RT @kadiera: 13 is his lucky number – 13 wks early, in rm 13, hospital on 13 mile rd, born on friday the 13th @ 6:13 am, vent 13 in NICU 🙂 #specialteams |
| 2:03 am | SpecTeams: | RT @sneakpeekatme: @kadiera I’d love to know your trick on getting him oral, we are struggling on that right now. It is going VERY SLOW… #specialteams |
| 2:03 am | SpecTeams: | Absolutely! After everything he’s faced — he can do anything! #specialteams |
| 2:04 am | kadiera: | @sneakpeekatme dumb luck? he was partially oral before trach, then refused bottle. we just keep trying things, over and over. #specialteams |
| 2:04 am | SpecTeams: | Inspiring, amazing …. lovely! @kadiera thank you so much for sharing all this wonderful information! #specialteams |
| 2:05 am | Sparrowbug: | Of course… 13 is odd and prime… so that makes it even more special. 😉 (Among those with OCD odd number penchants anyway.) #specialteams |
| 2:05 am | kadiera: | though I will say, hubby & I do not feed purees. nurses do that. we do finger foods. we’re all 2 tired @ dinner to fight it #specialteams |
| 2:05 am | SpecTeams: | @kadiera what about the shake? would that help @sneakpeekatme maybe? what’s in it? #specialteams |
| 2:05 am | sneakpeekatme: | @kadiera so no issues with aspiration? that has been our trouble until NOW!! just this week he was cleared on MBSS. #specialteams |
| 2:06 am | Sparrowbug: | @sneakpeekatme MBSS? #specialteams |
| 2:06 am | SpecTeams: | Wow – i got so engrossed in all this, I didn’t realize the time! We’re past the top of the hours already! #specialteams |
| 2:07 am | SpecTeams: | but this has been truly inspiring @kadiera– thank you!!! #specialteams |
| 2:07 am | sneakpeekatme: | @Sparrowbug sorry, MBSS = Modified Barium Swallow Study to rule out aspiration (food or liquid into the lungs) #specialteams |
| 2:07 am | SpecTeams: | And plz everyone head to the Ning – give me your ideas, suggestions, etc, etc 4 the writer/blogger conference series! #specialteams |
| 2:07 am | sneakpeekatme: | @SpecTeams I’ll DM you now. *snicker* #specialteams |
| 2:07 am | Sparrowbug: | @sneakpeekatme Thank you… I’m not hip to some of the preemie lingo. #specialteams |
| 2:07 am | kadiera: | @sneakpeekatme no evidence of it early on, so they let us go at it. no signs of anything in trach either #specialteams |
| 2:07 am | birdonthestreet: | I gotta get running–little one is under the weather #specialteams |
| 2:08 am | SpecTeams: | Once again this is @kadiera ‘s blog http://ourlittleacorn.blogspot.com/ Check her out! #specialteams |
| 2:08 am | kadiera: | @SpecTeams thanks for having me #specialteams |
| 2:08 am | SpecTeams: | @birdonthestreet thanks for popping in!!! hope little one gets better soon!!!! 🙂 #specialteams |
| 2:08 am | Sparrowbug: | @kadiera I gotta run to get ready for book club, but your story is inspiring as is your progress. I hope it keeps going! Hugs #specialteams |
| 2:09 am | SpecTeams: | RT @Sparrowbug: @kadiera I gotta run to get ready for book club, but your story is inspiring as is your progress. I hope it keeps going! Hugs #specialteams |
| 2:09 am | jasouders: | Ditto! RT @Sparrowbug: @kadiera I gotta run t, but your story is inspiring as is your progress. I hope it keeps going! Hugs #specialteams |
| 2:09 am | SpecTeams: | I WILL post the chat transcript at the Ning for anyone who fell behind or wants to review the info on Special Mom Talk #specialteams |
| 2:10 am | SpecTeams: | Thank you everyone for a wonderful chat — see you all next week!!! *hugs* and keep praying for @ParkerMama ‘s little warrior! #specialteams |
| 2:12 am | SpecTeams: | @kadiera you rock lady!!! thank you SOOOO much for that! your story was JUST what everyone needed! #specialteams |
| 2:24 am | jterzieff: | RT @SpecTeams: Once again this is @kadiera ‘s blog http://ourlittleacorn.blogspot.com/ Check her out! #specialteams |
| 2:24 am | jterzieff: | RT @SpecTeams: Thank you everyone for a wonderful chat — see you all next week!!! *hugs* and keep praying for @ParkerMama ‘s little warrior! #specialteams |