| Twitter chat transcript with guest @BarbDittrich talking about her #specialteams and Snappin Ministries
Transcript from March 19, 2010 to March 19, 2010 |
All times are Pacific Time
| March 19, 2010 | ||
| 12:01 am | SpecTeams: | At the top of the next hour, 9E/8C/6PST, @BarbDittrich is our guest – hear about her family’s #specialteams efforts |
| 12:03 am | jterzieff: | RT @SpecTeams: At the top of the next hour, 9E/8C/6PST, @BarbDittrich is our guest – hear about her family’s #specialteams efforts |
| 12:53 am | SpecTeams: | #specialteams chat starting in 8 minutes – join us and guest @BarbDittrich here http://tweetchat.com/room/specialteams |
| 12:55 am | jterzieff: | RT @SpecTeams: #specialteams chat starting in 8 minutes – join us and guest @BarbDittrich here http://tweetchat.com/room/specialteams |
| 12:58 am | sneakpeekatme: | Hi all!! I’ll be in & out tonight. Looking forward to our chat! #specialteams |
| 12:59 am | SpecTeams: | Hey #specialteams – chat starting in 2 mins! Join us here: http://tweetchat.com/room/specialteams |
| 12:59 am | supercatcalhoun: | About to read stories, will try to be quick! #specialteams |
| 12:59 am | sneakpeekatme: | RT @SpecTeams: Hey #specialteams – chat starting in 2 mins! Join us here: http://tweetchat.com/room/specialteams |
| 1:00 am | kadiera: | I’m here, but dealing with a somewhat cranky kiddo #specialteams |
| 1:01 am | BarbDittrich: | Howdy! I think I gave everyone the wrong chat to join because I said the group was #specteams! #specialteams |
| 1:02 am | erinrbreedlove: | Good evening, friends! #specialteams |
| 1:02 am | sneakpeekatme: | I did the same RT @BarbDittrich: Howdy! I think I gave everyone the wrong chat to join because I said the group was #specteams #specialteams |
| 1:03 am | birdonthestreet: | A HA! That’s where you guys were. #specialteams |
| 1:03 am | SpecTeams: | Good evening all! Hope everyone has had a good week! #specialteams |
| 1:03 am | sneakpeekatme: | @birdonthestreet Sowy! My bad. #specialteams |
| 1:03 am | BarbDittrich: | Hi Julie! #specialteams |
| 1:03 am | SpecTeams: | @kadiera no problem! glad you could tune in! #specialteams |
| 1:04 am | SpecTeams: | Before we hear all about @BarbDittrich ‘s wonderful team efforts, has anyone heard from @ParkerMama in the last few hours? #specialteams |
| 1:05 am | kadiera: | @SpecTeams only her last tweet, and a FB post #specialteams |
| 1:05 am | BarbDittrich: | @SpecTeams I saw that her son was not doing so good at her last post about 2 hrs ago. #specialteams |
| 1:05 am | supercatcalhoun: | In case I don’t get back quick, thank you to everyone who helped with the Change.org rare disease vote, I love all of you, xo! #specialteams |
| 1:05 am | SpecTeams: | @BarbDittrich Thank you for joining us tonight 2 talk about your team! Can you start by telling us about your team? #specialteams |
| 1:06 am | BarbDittrich: | You’re welcome! Happy to be here! Our team is a faith-based organization birthed out of our own need. #specialteams |
| 1:07 am | SpecTeams: | Come join #specialteams chat happening now at http://tweetchat.com/room/specialteams |
| 1:08 am | BarbDittrich: | To give you all a little background, we have a son w/severe hemophilia A. He was diagnosed at birth. This is genetic… #specialteams |
| 1:09 am | BarbDittrich: | We suspected I might be a carrier, but my testing was inconclusive. I have 2 older nephews with the same diagnosis. (more) #specialteams |
| 1:09 am | BarbDittrich: | Because of their dx, I’ve volunteered for the hemophilia community for over 20 yrs. When our son was dx’d, we had that (more) #specialteams |
| 1:10 am | BarbDittrich: | …connection in the bleeding disorders community. However, the faith component was huge to us & there was a void there. #specialteams |
| 1:11 am | BarbDittrich: | We really looked for others to minister to US! Ha! But the answer was clear… God was calling us to serve others. #specialteams |
| 1:11 am | SpecTeams: | @BarbDittrich And so that need led you to start your amazing effort … #specialteams |
| 1:11 am | BarbDittrich: | 8 yrs ago, we started SNAPPIN’ MINISTRIES, which ministers to PARENTS of special kids, w/6 families. #specialteams |
| 1:13 am | SpecTeams: | You work w/families in person, but also use online tools – Facebook, blogs, etc – reach out to others, yes? #specialteams |
| 1:14 am | Awildride: | @SpecTeams Yes we do. Mary & I work with #specialteams @awildride |
| 1:14 am | BarbDittrich: | @SpecTeams A book I had read that helped spawn the orgnztn had a great quote, “Watch for where God’s working & join Him.”… #specialteams |
| 1:14 am | sneakpeekatme: | So many parties tonight…I think we all broke Twitter! #specialteams |
| 1:14 am | Sparrowbug: | @BarbDittrich So, do you do counselling primarily? #specialteams |
| 1:15 am | BarbDittrich: | @SpecTeams We started much in person, but as times change, the internet portion is exploding!!! #specialteams |
| 1:15 am | SpecTeams: | @sneakpeekatme yes, there’s a nasty delay, and twettchat crashed on my twice tonight #specialteams |
| 1:15 am | Sparrowbug: | @BarbDittrich Faith-based counselling, I mean. #specialteams |
| 1:16 am | SpecTeams: | @BarbDittrich how has the internet changed or altered what your doing? has it significantly expanded your reach? #specialteams |
| 1:16 am | BarbDittrich: | @Sparrowbug I would invite all of you to check out our work & our mission at http://snappin.org/ #specialteams |
| 1:16 am | BarbDittrich: | @Sparrowbug We try to offer practical help & love to parents, restoring their hope! #specialteams |
| 1:16 am | SpecTeams: | @BarbDittrich that is a LOVELY quote “Watch for where God’s working & join Him.” #specialteams |
| 1:17 am | SpecTeams: | RT @BarbDittrich: @Sparrowbug I would invite all of you to check out our work & our mission at http://snappin.org/ #specialteams |
| 1:17 am | SpecTeams: | RT @BarbDittrich: @Sparrowbug We try to offer practical help & love to parents, restoring their hope! #specialteams |
| 1:17 am | BarbDittrich: | @SpecTeams Thanks! The internet has been an unbelievably useful resource!!! We can connect parents to help MUCH faster! #specialteams |
| 1:18 am | Sparrowbug: | @BarbDittrich So, is it currently more of a local effort or are there other programs elsewhere? #specialteams |
| 1:18 am | BarbDittrich: | @SpecTeams Blog posts give parents spiritual support from the comfort of their own homes! #specialteams |
| 1:18 am | SpecTeams: | @Awildride Feel free to tell us a little about your work as well if you like! 🙂 #specialteams |
| 1:18 am | sneakpeekatme: | RT @SpecTeams: @BarbDittrich that is a LOVELY quote “Watch for where Gods working & join Him.” #specialteams |
| 1:19 am | BarbDittrich: | @Sparrowbug We were birthed thru a local church, but were never intended to stay there. 3yrs ago, we incorporated & are natl #specialteams |
| 1:19 am | SpecTeams: | @BarbDittrich How often do you blog about your experiences; and what kind of response do you receive? #specialteams |
| 1:20 am | Sparrowbug: | @BarbDittrich I mean… for what isn’t through the online community itself. I saw some respite effort for parents…. #specialteams |
| 1:20 am | SpecTeams: | RT @BarbDittrich: @Sparrowbug We were birthed thru a local church, but were never intended to stay there. 3yrs ago, we incorporated & are natl #specialteams |
| 1:20 am | BarbDittrich: | @Sparrowbug We make connections thru churches, other orgs or individuals thru in a given area. We also have a “how to” guide. #specialteams |
| 1:20 am | SpecTeams: | @BarbDittrich That’s amazing Barb! #specialteams |
| 1:21 am | BarbDittrich: | @SpecTeams Thanks. We do the blog on Tues & Sat. God really writes it. I just take dictation! 🙂 Great response. #specialteams |
| 1:21 am | SpecTeams: | It is very easy to feel terribly isolated when your family is dealing with complicated health issues. #specialteams |
| 1:21 am | sneakpeekatme: | @Sparrowbug I have highlighted a few resources, as well as Barb’s in a recent post for SN parents http://bit.ly/bFWrGy #specialteams |
| 1:21 am | sneakpeekatme: | @Sparrowbug I have highlighted a few resources, as well as Barb’s in a recent post for SN parents http://bit.ly/bFWrGy #specialteams |
| 1:22 am | BarbDittrich: | @SpecTeams Absolutely! And we parents need HOPE! That is where God can recycle our pain to bless others. #specialteams |
| 1:23 am | SpecTeams: | @BarbDittrich How do you reach out to parents? or do they find you?!? #specialteams |
| 1:23 am | sneakpeekatme: | Sorry for the dupes…oh Twitter {shaking fist} #specialteams |
| 1:23 am | BarbDittrich: | @SpecTeams It has been wonderful connecting parents thru social media like FB & Twitter. #specialteams |
| 1:23 am | SpecTeams: | RT @sneakpeekatme: @Sparrowbug I have highlighted a few resources, as well as Barb’s in a recent post for SN parents http://bit.ly/bFWrGy #specialteams |
| 1:24 am | BarbDittrich: | @SpecTeams We reach out thru synergistic organizations. Sometimes parents find us by word of mouth. No stone left unturned! #specialteams |
| 1:25 am | SpecTeams: | @BarbDittrich It is wonderful that you have turned your family’s challenges into such a supportive endeavor! #specialteams |
| 1:25 am | BarbDittrich: | @SpecTeams We work with local YMCAs, hospitals, churches, camps to reach out & share programming. #specialteams |
| 1:25 am | BarbDittrich: | @SpecTeams I think I would be in the local mental hospital if I hadn’t found the purpose we’d been given in this trial! #specialteams |
| 1:26 am | SpecTeams: | Once again, you can find @BarbDittrich and her family’s wonderful efforts to help families here http://www.snappin.org/ #specialteams |
| 1:27 am | sneakpeekatme: | Everyone needs help, be it financial, spiritual or emotional that’s what makes organizations like @BarbDittrich‘s so great! #specialteams |
| 1:27 am | SpecTeams: | @BarbDittrich I feel the same way – I had to find the purpose in our experiences. It hasn’t always been easy. #specialteams |
| 1:27 am | SpecTeams: | RT @sneakpeekatme: Everyone needs help, be it financial, spiritual or emotional that’s what makes organizations like @BarbDittrich‘s so great! #specialteams |
| 1:27 am | moondustwriter: | RT @SpecTeams: Once again, you can find @BarbDittrich and her family’s wonderful efforts to help families here http://www.snappin.org/ #specialteams |
| 1:27 am | BarbDittrich: | @SpecTeams Just to let you know, we also do things like use SibShops to compliment what we are doing. #specialteams |
| 1:27 am | SpecTeams: | @sneakpeekatme well said!!!! #specialteams |
| 1:28 am | SpecTeams: | I have been popping in and out of @ParkerMama ‘s stream and FB but still don’t see any updates …. #specialteams |
| 1:28 am | SpecTeams: | @BarbDittrich SibShops …. how does that work? #specialteams |
| 1:29 am | BarbDittrich: | @SpecTeams It ISN’T always easy, especially when you’re feeling like a big ol’ bundle of need yourself. But that’s when… #specialteams |
| 1:29 am | Sparrowbug: | @SpecTeams Ohh… wow. Somehow I missed their RSV crisis. That’s so scary. #specialteams |
| 1:29 am | BarbDittrich: | @SpecTeams …I realize it’s God doing His work, not me! SibShops is a natl org that I can post a link to later. #specialteams |
| 1:30 am | sneakpeekatme: | @SpecTeams There was this from @5minutesformom –> Parker Desperately Needs Your Prayers? http://ow.ly/1qsRXV #specialteams |
| 1:31 am | BarbDittrich: | @Sparrowbug That RSV crisis IS super scarey!!! Have a spec needs nephew disabled due to RSV. This is where our work helps. #specialteams |
| 1:31 am | SpecTeams: | You can also find @BarbDittrich and many great parents at our ning community http://specialteams.ning.com/ Come, join, share! #specialteams |
| 1:31 am | SpecTeams: | @BarbDittrich yes, that would be great if you could post that link for us – thanks! #specialteams |
| 1:32 am | SpecTeams: | @sneakpeekatme thanks for that update – it is terrifying!!! #specialteams |
| 1:32 am | BarbDittrich: | @SpecTeams LOVE the ning community ‘cuz it’s more private & you get focused info! #specialteams |
| 1:32 am | baby_fphat: | RT @SpecTeams: You can also find @BarbDittrich and many great parents at our ning community http://specialteams.ning.com/ Come, join, share! #specialteams |
| 1:32 am | SpecTeams: | Whatever our individual understandings of faith and God, @ParkerMama and her team need our thoughts and prayers tonight #specialteams |
| 1:32 am | kadiera: | Parker was stable enough this afternoon 2 transport by ambulance rather than helicopter, but RSV is tough on kids w good lungs #specialteams |
| 1:33 am | SpecTeams: | @BarbDittrich thank! i love the ning too – but im still trying to figure out how it works technically, so i can add to it! #specialteams |
| 1:33 am | BarbDittrich: | @SpecTeams Absolutely!!! #specialteams |
| 1:33 am | SpecTeams: | RT @kadiera: Parker was stable enough this afternoon 2 transport by ambulance rather than helicopter, but RSV is tough on kids w good lungs #specialteams |
| 1:34 am | BarbDittrich: | Here’s the link to the Sibling Support Project which founded SibShops: http://www.siblingsupport.org/ #specialteams |
| 1:34 am | SpecTeams: | I would like to add a blog roll for our roster to the ning – as well as start plugging in information on support for families #specialteams |
| 1:34 am | Sparrowbug: | Oh… wow… small world. Parker and Mama live in my home town where my folks live. I might meet them someday. #specialteams |
| 1:34 am | SpecTeams: | RT @BarbDittrich: Here’s the link to the Sibling Support Project which founded SibShops: http://www.siblingsupport.org/ #specialteams |
| 1:34 am | sneakpeekatme: | Yes, RSV is super scarey esp for a trach kid, with lung issues…oye, makes me crazy just thinking of it. #specialteams |
| 1:35 am | SpecTeams: | @Sparrowbug I’m sure @ParkerMama ‘s team would love ot hear from you! #specialteams |
| 1:35 am | baby_fphat: | RT @SpecTeams: I would like to add a blog roll for our roster to the ning – as well as start plugging in information on support for families #specialteams |
| 1:35 am | SpecTeams: | I put up a bunch of forum topx at http://specialteams.ning.com/ to get peoples’ impressions, ideas for SN blogger/writer conf. #specialteams |
| 1:35 am | BarbDittrich: | I truly think we’re only beginning to scratch surface of how many families could be supported thru chats/blogs/sites like this #specialteams |
| 1:36 am | SpecTeams: | @sneakpeekatme i know – me too. trying NOT to think about it too much and just send as many positive vibes as I can #specialteams |
| 1:36 am | baby_fphat: | RT @SpecTeams: I put up a bunch of forum topx at http://specialteams.ning.com/ to get peoples’ impressions, ideas for SN blogger/writer conf. #specialteams |
| 1:36 am | sneakpeekatme: | I have a post on RSV awareness that I bring out every few weeks, FYI we are still in RSV season for at least another month! #specialteams |
| 1:36 am | kadiera: | @sneakpeekatme Alex had RSV last spring. very scary even compared 2 NICU experiences. #specialteams |
| 1:37 am | SpecTeams: | @BarbDittrich I absolutely agree! Online is an easy way 4 families to get and stay connected when dealing w/medical condtns #specialteams |
| 1:37 am | SpecTeams: | @kadiera that’s a terrifying prospect considering the NICU is the scariest place i have ever spent time in #specialteams |
| 1:37 am | SpecTeams: | RT @sneakpeekatme: I have a post on RSV awareness that I bring out every few weeks, FYI we are still in RSV season for at least another month! #specialteams |
| 1:38 am | erinrbreedlove: | Did I hear talk of a blogging conference? #specialteams |
| 1:38 am | Sparrowbug: | @SpecTeams Sometimes, when you’re in a crisis… it’s easier to accept spiritual and mental help from strangers in my opinion. #specialteams |
| 1:38 am | kadiera: | online is a huge help when your medical issues are rare. more likely to find similar people 🙂 #specialteams |
| 1:38 am | BarbDittrich: | @SpecTeams Nice part of internet is you can access from home or hospital w/child. Many can’t get out. Even internet chrch! #specialteams |
| 1:38 am | SpecTeams: | Holding sessions remotely (via tele n Internet) really seem 2 b the easiest way for a conference #specialteams |
| 1:39 am | SpecTeams: | @erinrbreedlove yes, you did!!! 🙂 #specialteams |
| 1:39 am | BarbDittrich: | @Sparrowbug I would absolutely agree with that. In Christianity, they call that “coming to the end of yourself”. 🙂 #specialteams |
| 1:39 am | erinrbreedlove: | I would be so interested in that if it were reasonably located! #specialteams |
| 1:40 am | SpecTeams: | @Sparrowbug yes, strangers and people who have been or are in similar situations. strange, but definitely true … #specialteams |
| 1:40 am | BarbDittrich: | @kadiera That’s a great point! And the exchange of information between parents is invaluable! #specialteams |
| 1:40 am | sneakpeekatme: | Here is the RSV post just in case you don’t know what to look for http://bit.ly/byEUFo this weekend is Austin’s next round ;( #specialteams |
| 1:40 am | Sparrowbug: | @kadiera Even if they’re not rare- like Autism-each child is so different within the spectrum. We often have little in common. #specialteams |
| 1:40 am | SpecTeams: | I am going to price out tele-conference and webinar services. The votes seemed to be in favor of recorded sessions >>> #specialteams |
| 1:41 am | SpecTeams: | for people who might not be able to make the live sessions. The forum votes also backed the idea of several 1-2 hour >>> #specialteams |
| 1:41 am | BarbDittrich: | @SpecTeams Wow! That’s a terrific undertaking!!! #specialteams |
| 1:41 am | Sparrowbug: | I’ve mentioned this to others but parents of Autistic children often feel an intense spirit of “competition” in some ways. #specialteams |
| 1:42 am | SpecTeams: | session, rather than all-day affairs. I am thinking of aiming for August. Hope everyone will visit the ning and give input! #specialteams |
| 1:42 am | SpecTeams: | @BarbDittrich Several parents have expressed frustration at not being able to get to events – so this an alternative #specialteams |
| 1:42 am | BarbDittrich: | @Sparrowbug I’d like to hear more about that… #specialteams |
| 1:43 am | Sparrowbug: | It’s hard to see others either achieve or fail when the diagnosis is the same but treatments have different outcomes. #specialteams |
| 1:43 am | SpecTeams: | @erinrbreedlove great! we’d love to have you!! #specialteams |
| 1:43 am | BarbDittrich: | @SpecTeams See! You’re watching where God’s working and joining Him! 🙂 #specialteams |
| 1:43 am | Sparrowbug: | I’ve had more luck befriending those online where you can’t sit and compare child to child when Autism is just so different. #specialteams |
| 1:44 am | SpecTeams: | I will be posting a forum ? on the ning about TOPICS people would like covered here: http://specialteams.ning.com/ #specialteams |
| 1:44 am | BarbDittrich: | @Sparrowbug Wow! That makes connecting with other parents of kids with ASD a double-edged sword! #specialteams |
| 1:44 am | birdonthestreet: | I’ve often thought is would be great to have a retreat for care-givers even though I know it’s hard to get out for some. #specialteams |
| 1:44 am | SpecTeams: | @BarbDittrich LOL – funny world isn’t it? Not something I ever would have though of on my own! #specialteams |
| 1:44 am | sneakpeekatme: | @Sparrowbug Good point, but I don’t think that is unique to Autism community, the same is true for so many of us. #specialteams |
| 1:45 am | Sparrowbug: | My children are very, very high-functioning and we had a lot of success… so some begrudged us our progress and I understood. #specialteams |
| 1:45 am | baby_fphat: | RT @SpecTeams: I will be posting a forum ? on the ning about TOPICS people would like covered here: http://specialteams.ning.com/ #specialteams |
| 1:45 am | SpecTeams: | @birdonthestreet yes, a retreat would be lovely – but it would take a lot of organizing b/c of medical issues; if I had >>> #specialteams |
| 1:45 am | BarbDittrich: | @sneakpeekatme You make a good point. Kids w/hemophilia in the same family can have it behave differently between siblings! #specialteams |
| 1:46 am | SpecTeams: | @birdonthestreet >> or can scare up some volunteers to help me with this – we might be able to make a retreat happen next year #specialteams |
| 1:46 am | sneakpeekatme: | @birdonthestreet Spa Day!! WOOT!! #specialteams |
| 1:46 am | Sparrowbug: | Autism is unique in some of its social aspects, though… and I understood the heartbreak of things not working. #specialteams |
| 1:46 am | BarbDittrich: | @birdonthestreet That’s where we can connect parents to resources that currently exist! Check out our website for camps. #specialteams |
| 1:46 am | SpecTeams: | I see you lurkin’!! @baby_fphat thank you for showing us your support!!! 🙂 #specialteams |
| 1:47 am | birdonthestreet: | As I’ve said before, my area is very lovely AND cheap! #specialteams |
| 1:47 am | SpecTeams: | @sneakpeekatme Spa day works for me!!!! heck …. a spa week please! If a retreat happens, sure we could get some massages! #specialteams |
| 1:47 am | birdonthestreet: | @BarbDittrich Ooh, Barb–fabulous idea! #specialteams |
| 1:47 am | BarbDittrich: | @sneakpeekatme Not to make you feel worse… We’re doing a Spa Day in WI in May at a hi end Salon/Spa. Can get 1going by u! #specialteams |
| 1:47 am | SpecTeams: | @birdonthestreet where are you? #specialteams |
| 1:47 am | Sparrowbug: | Watching a child withdraw when treated the same way as another child and they share a diagnosis. No rhyme or reason. It’s sad. #specialteams |
| 1:48 am | sneakpeekatme: | @Sparrowbug I don’t we are as different as you think, while your child may not relate socially, society treats my child (more) #specialteams |
| 1:48 am | SpecTeams: | @birdonthestreet and how big is your house? 🙂 #specialteams |
| 1:48 am | Sparrowbug: | Anyway… I’ve found, for Autism, online communities are easier and more productive. I’m glad for that barrier somewhat. #specialteams |
| 1:48 am | birdonthestreet: | @SpecTeams I’m in the New Orleans area. #specialteams |
| 1:49 am | SpecTeams: | Oh geez @Sparrowbug – that sounds incredibly difficult. #specialteams |
| 1:49 am | SpecTeams: | @birdonthestreet Oh! I am actually headed to New Orleans next month for the Amnesty Int’l annual meeting! be there Apr 9-11 #specialteams |
| 1:50 am | BarbDittrich: | It’s interesting that you all are discussing this… I’ve seen that people can get too focused on having to have exact… #specialteams |
| 1:50 am | SpecTeams: | RT @Sparrowbug: Anyway… I’ve found, for Autism, online communities are easier and more productive. I’m glad for that barrier somewhat. #specialteams |
| 1:50 am | sneakpeekatme: | @Sparrowbug as a social pariah. Either way we are all in the same boat raising awareness about others seeing our whole child #specialteams |
| 1:50 am | birdonthestreet: | @SpecTeams gorgeous time of year to be down here. Glorious usually. #specialteams |
| 1:51 am | BarbDittrich: | …exactly the same road all the way thru. Instead, it’s valuable to find the common ground & learn what you can from many. #specialteams |
| 1:51 am | Sparrowbug: | @sneakpeekatme I wouldn’t say it’s unique to Autism, but it occurs frequently in Autism due to the Spectrum’s social aspects. #specialteams |
| 1:51 am | SpecTeams: | @sneakpeekatme oh absolutely! I still get steamed at how people would recoil or make a face when they first saw our son. #specialteams |
| 1:51 am | baby_fphat: | @SpecTeams i’m there for ya, babe. #specialteams |
| 1:51 am | SpecTeams: | RT @BarbDittrich: …exactly the same road all the way thru. Instead, it’s valuable to find the common ground & learn what you can from many. #specialteams |
| 1:52 am | Sparrowbug: | @sneakpeekatme You’re often trying to treat symptoms that aren’t tangible and look for progress that is so subjective. #specialteams |
| 1:52 am | SpecTeams: | @BarbDittrich Barb, you have such a wonderful attitude about it all! Thank you for that! #specialteams |
| 1:52 am | BarbDittrich: | @SpecTeams My sense of humor has had to reeeeeally expand — You should see the looks WE get when son is black & blue! 😀 #specialteams |
| 1:52 am | sneakpeekatme: | @Sparrowbug My nephews are Autistic & it is rough for my sisters to really fight for them so much, they didn’t join any groups #specialteams |
| 1:53 am | BarbDittrich: | @SpecTeams That’s where God has grown me… I’m pretty transparent. Have plenty of bad days. But glass is mostly half-FULL! #specialteams |
| 1:53 am | SpecTeams: | @BarbDittrich Would u like to re-post the link to Snappin Ministries and any worthy FB groups in our last few minutes? #specialteams |
| 1:53 am | sneakpeekatme: | @birdonthestreet Still trying to get everyone to NO? Come peeps..Los Angeles is the place to be!!! 😉 #specialteams |
| 1:53 am | eventRobot: | @SpecTeams We started much in person, but as times change, the internet portion is exploding!!! #specialteams |
| 1:54 am | birdonthestreet: | @sneakpeekatme Girl’s gotta give it a try, right? #specialteams |
| 1:54 am | SpecTeams: | @BarbDittrich has a great attitude n a wonderful team! I’m so glad she could be here tonight – hope everyone is following her! #specialteams |
| 1:54 am | Sparrowbug: | @sneakpeekatme We tried some groups… and ended up with the online Autism community instead. Less emotional in some ways. #specialteams |
| 1:54 am | SpecTeams: | @sneakpeekatme LOL – yeah, but New Orleans is in the middle!!! #specialteams |
| 1:55 am | BarbDittrich: | Again, our website is http://snappin.org/ Our blog http://comfortinthemidstofchaos.blogspot.com/ #specialteams |
| 1:55 am | SpecTeams: | @Sparrowbug oh yes, i would imagine its easier to engage on potential emotional issues remotely, in some ways #specialteams |
| 1:55 am | SpecTeams: | RT @BarbDittrich: Again, our website is http://snappin.org/ Our blog http://comfortinthemidstofchaos.blogspot.com/ #specialteams |
| 1:56 am | Sparrowbug: | Although I’ve done a lot with other Special Needs families in person and it’s been wonderful. Autism is “harder” for a group. #specialteams |
| 1:56 am | BarbDittrich: | Our FB grouphttp://www.facebook.com/?ref=home#!/group.php?gid=44117735820&ref=mf . Request to join. #specialteams |
| 1:56 am | sneakpeekatme: | @BarbDittrich Love your optimistic attitude!! {Secretly glad you are not always happy though…makes me feel human} 😉 #specialteams |
| 1:57 am | BarbDittrich: | @sneakpeekatme LOL! I’m with ya! I HATE those perfectly perky people!!!!! #specialteams |
| 1:57 am | Sparrowbug: | BTW… I’m not saying “Autism is harder” but a group effort in person is a complex thing when it comes to Autism itself. #specialteams |
| 1:57 am | SpecTeams: | Hope everyone will reach out to other parents they know and point them to ning, this chat http://specialteams.ning.com/ #specialteams |
| 1:57 am | BarbDittrich: | @Sparrowbug Other groups I’ve chatted with say that many parents of auties have ASD traits. Is that perhaps an issue? #specialteams |
| 1:58 am | SpecTeams: | especially for parents, caregivers, supporters who are blogging/writing about the experiences http://specialteams.ning.com/ #specialteams |
| 1:58 am | Sparrowbug: | I come to these chats and I’m terrified at all the rest of you go through, and I can’t imagine. #specialteams |
| 1:58 am | SpecTeams: | RT @sneakpeekatme: @BarbDittrich Love your optimistic attitude!! {Secretly glad you are not always happy though…makes me feel human} 😉 #specialteams |
| 1:58 am | SpecTeams: | RT @BarbDittrich: Our FB grouphttp://www.facebook.com/?ref=home#!/group.php?gid=44117735820&ref=mf . Request to join. #specialteams |
| 1:59 am | sneakpeekatme: | @Sparrowbug Well thank goodness you found some refuge with an online group…they have saved my life!! #specialteams |
| 1:59 am | Sparrowbug: | @BarbDittrich In some cases, that it definitely true. Due to genetics not all parents of ASD kids have great social skills. #specialteams |
| 1:59 am | BarbDittrich: | @Sparrowbug In our 8 yrs of ministry, I’ve only encountered 1 parent who thought she had it harder than any others. #specialteams |
| 2:00 am | SpecTeams: | @Sparrowbug Interesting observation – It’s sooo scary 2 see what others face. But it also inspires me #specialteams |
| 2:00 am | BarbDittrich: | @Sparrowbug I don’t think any of us would trade our troubles for one anothers! #specialteams |
| 2:00 am | Sparrowbug: | @BarbDittrich I know, in my case, my children’s progress, alienated us from groups a few times. They wanted our secret. #specialteams |
| 2:01 am | SpecTeams: | @BarbDittrich Godh, i know right — sometimes you look at others and think “how can they besurviving, we’re so lucky” #specialteams |
| 2:01 am | BarbDittrich: | @SpecTeams When I see the kids with Downs who have leukemia that seems unspeakably heartbreaking to me! #specialteams |
| 2:01 am | Sparrowbug: | There was no secret, though. We just… somehow managed. It was hard and I didn’t blame them. You want to help your child. #specialteams |
| 2:01 am | BarbDittrich: | @Sparrowbug What an awful amount of pressure on you! #specialteams |
| 2:01 am | moondustwriter: | RT @Sparrowbug: @BarbDittrich I know, in my case, my children’s progress, alienated us from groups a few times. They wanted our secret. #specialteams |
| 2:02 am | SpecTeams: | We are at the top of the hour! Feel free to keep chattig, but I’m going to call it – and say a very big thank you to >> #specialteams |
| 2:02 am | SpecTeams: | @BarbDittrich for her attitude, her efforts and for sharing it all with us tonight! Thank you Barb…… you rock! 🙂 #specialteams |
| 2:02 am | Sparrowbug: | @BarbDittrich It was sad, but you can’t help others if they see you as a threat somehow. There aren’t enough services here. #specialteams |
| 2:02 am | BarbDittrich: | OK, just to crack you all up… I have 2 special needs kids crying & falling apart in my lap right now!!!! UGH! #specialteams |
| 2:03 am | SpecTeams: | RT @BarbDittrich: OK, just to crack you all up… I have 2 special needs kids crying & falling apart in my lap right now!!!! UGH! #specialteams |
| 2:03 am | Sparrowbug: | @BarbDittrich So, that became an issue too. Why were my kids still receiving services when others had more need of them? #specialteams |
| 2:03 am | SpecTeams: | @BarbDittrich ROTFL!!!!!! #specialteams |
| 2:04 am | BarbDittrich: | @SpecTeams Julie, bless your heart for all you do! So glad to connect with any & all of you!!! #specialteams |
| 2:04 am | SpecTeams: | And once again, please come join the developing ning http://specialteams.ning.com/ post ur thoughts, ideas, suggestions #specialteams |
| 2:05 am | Sparrowbug: | It was complex and I didn’t blame them, but it did make online communication easier for everyone. SN are hard in many ways. #specialteams |
| 2:05 am | SpecTeams: | @BarbDittrich Thank you Barb – it has truly been a pleasure to meet and get to know you and your #specialteams better. You are amazing … |
| 2:06 am | BarbDittrich: | @Sparrowbug The anonymity & control of the online community can be really helpful for situations like you’re describing! #specialteams |
| 2:06 am | jterzieff: | RT @BarbDittrich: Our FB grouphttp://www.facebook.com/?ref=home#!/group.php?gid=44117735820&ref=mf . Request to join. #specialteams |
| 2:06 am | jterzieff: | RT @BarbDittrich: Again, our website is http://snappin.org/ Our blog http://comfortinthemidstofchaos.blogspot.com/ #specialteams |
| 2:07 am | SpecTeams: | Hope to see everyone back again next week, same time, same place for the next #specialteams chat |
| 2:07 am | BarbDittrich: | @SpecTeams Thanks, Julie! I’m really just average, but I think The One who holds me up is truly amazing! 🙂 Blessings to all #specialteams |
| 2:07 am | moondustwriter: | RT @BarbDittrich: Our FB grouphttp://www.facebook.com/?ref=home#!/group.php?gid=44117735820&ref=mf . Request to join. #specialteams |
| 2:08 am | SpecTeams: | And I hope everyone will keep @ParkerMama and her #specialteams in their thoughts and prayers |
| 2:08 am | SpecTeams: | And if anyone gets/sees news about @ParkerMama plz RT and let us all know! #specialteams |
| 2:08 am | Sparrowbug: | @EnabledKids Yes, I completely agree. I’m sorry, I didn’t see your tweets because I was in the #specialteams chat. I agree, though. |
| 2:08 am | Sparrowbug: | It was nice to chat with everyone. I’m interested in some of these wonderful sites. Thanks. JT, keep posting on Parker. #specialteams |
| 2:09 am | SpecTeams: | Oh! and if there are any ning experts lurking out there – please speak up! I could use some tech support! 🙂 #specialteams |
| 2:10 am | SpecTeams: | @Sparrowbug thank you for joining and sharing Wendy – i know you have been through a lot recently! *hugs* #specialteams |