SpecialTeams Chat Transcript – March 19

Twitter chat transcript with guest @BarbDittrich talking about her #specialteams and Snappin Ministries

Transcript from March 19, 2010 to March 19, 2010

All times are Pacific Time

 
March 19, 2010
12:01 am SpecTeams: At the top of the next hour, 9E/8C/6PST, @BarbDittrich is our guest – hear about her family’s #specialteams efforts
12:03 am jterzieff: RT @SpecTeams: At the top of the next hour, 9E/8C/6PST, @BarbDittrich is our guest – hear about her family’s #specialteams efforts
12:53 am SpecTeams: #specialteams chat starting in 8 minutes – join us and guest @BarbDittrich here http://tweetchat.com/room/specialteams
12:55 am jterzieff: RT @SpecTeams: #specialteams chat starting in 8 minutes – join us and guest @BarbDittrich here http://tweetchat.com/room/specialteams
12:58 am sneakpeekatme: Hi all!! I’ll be in & out tonight. Looking forward to our chat! #specialteams
12:59 am SpecTeams: Hey #specialteams – chat starting in 2 mins! Join us here: http://tweetchat.com/room/specialteams
12:59 am supercatcalhoun: About to read stories, will try to be quick! #specialteams
12:59 am sneakpeekatme: RT @SpecTeams: Hey #specialteams – chat starting in 2 mins! Join us here: http://tweetchat.com/room/specialteams
1:00 am kadiera: I’m here, but dealing with a somewhat cranky kiddo #specialteams
1:01 am BarbDittrich: Howdy! I think I gave everyone the wrong chat to join because I said the group was #specteams! #specialteams
1:02 am erinrbreedlove: Good evening, friends! #specialteams
1:02 am sneakpeekatme: I did the same RT @BarbDittrich: Howdy! I think I gave everyone the wrong chat to join because I said the group was #specteams #specialteams
1:03 am birdonthestreet: A HA! That’s where you guys were. #specialteams
1:03 am SpecTeams: Good evening all! Hope everyone has had a good week! #specialteams
1:03 am sneakpeekatme: @birdonthestreet Sowy! My bad. #specialteams
1:03 am BarbDittrich: Hi Julie! #specialteams
1:03 am SpecTeams: @kadiera no problem! glad you could tune in! #specialteams
1:04 am SpecTeams: Before we hear all about @BarbDittrich ‘s wonderful team efforts, has anyone heard from @ParkerMama in the last few hours? #specialteams
1:05 am kadiera: @SpecTeams only her last tweet, and a FB post #specialteams
1:05 am BarbDittrich: @SpecTeams I saw that her son was not doing so good at her last post about 2 hrs ago. #specialteams
1:05 am supercatcalhoun: In case I don’t get back quick, thank you to everyone who helped with the Change.org rare disease vote, I love all of you, xo! #specialteams
1:05 am SpecTeams: @BarbDittrich Thank you for joining us tonight 2 talk about your team! Can you start by telling us about your team? #specialteams
1:06 am BarbDittrich: You’re welcome! Happy to be here! Our team is a faith-based organization birthed out of our own need. #specialteams
1:07 am SpecTeams: Come join #specialteams chat happening now at http://tweetchat.com/room/specialteams
1:08 am BarbDittrich: To give you all a little background, we have a son w/severe hemophilia A. He was diagnosed at birth. This is genetic… #specialteams
1:09 am BarbDittrich: We suspected I might be a carrier, but my testing was inconclusive. I have 2 older nephews with the same diagnosis. (more) #specialteams
1:09 am BarbDittrich: Because of their dx, I’ve volunteered for the hemophilia community for over 20 yrs. When our son was dx’d, we had that (more) #specialteams
1:10 am BarbDittrich: …connection in the bleeding disorders community. However, the faith component was huge to us & there was a void there. #specialteams
1:11 am BarbDittrich: We really looked for others to minister to US! Ha! But the answer was clear… God was calling us to serve others. #specialteams
1:11 am SpecTeams: @BarbDittrich And so that need led you to start your amazing effort … #specialteams
1:11 am BarbDittrich: 8 yrs ago, we started SNAPPIN’ MINISTRIES, which ministers to PARENTS of special kids, w/6 families. #specialteams
1:13 am SpecTeams: You work w/families in person, but also use online tools – Facebook, blogs, etc – reach out to others, yes? #specialteams
1:14 am Awildride: @SpecTeams Yes we do. Mary & I work with #specialteams @awildride
1:14 am BarbDittrich: @SpecTeams A book I had read that helped spawn the orgnztn had a great quote, “Watch for where God’s working & join Him.”… #specialteams
1:14 am sneakpeekatme: So many parties tonight…I think we all broke Twitter! #specialteams
1:14 am Sparrowbug: @BarbDittrich So, do you do counselling primarily? #specialteams
1:15 am BarbDittrich: @SpecTeams We started much in person, but as times change, the internet portion is exploding!!! #specialteams
1:15 am SpecTeams: @sneakpeekatme yes, there’s a nasty delay, and twettchat crashed on my twice tonight #specialteams
1:15 am Sparrowbug: @BarbDittrich Faith-based counselling, I mean. #specialteams
1:16 am SpecTeams: @BarbDittrich how has the internet changed or altered what your doing? has it significantly expanded your reach? #specialteams
1:16 am BarbDittrich: @Sparrowbug I would invite all of you to check out our work & our mission at http://snappin.org/ #specialteams
1:16 am BarbDittrich: @Sparrowbug We try to offer practical help & love to parents, restoring their hope! #specialteams
1:16 am SpecTeams: @BarbDittrich that is a LOVELY quote “Watch for where God’s working & join Him.” #specialteams
1:17 am SpecTeams: RT @BarbDittrich: @Sparrowbug I would invite all of you to check out our work & our mission at http://snappin.org/ #specialteams
1:17 am SpecTeams: RT @BarbDittrich: @Sparrowbug We try to offer practical help & love to parents, restoring their hope! #specialteams
1:17 am BarbDittrich: @SpecTeams Thanks! The internet has been an unbelievably useful resource!!! We can connect parents to help MUCH faster! #specialteams
1:18 am Sparrowbug: @BarbDittrich So, is it currently more of a local effort or are there other programs elsewhere? #specialteams
1:18 am BarbDittrich: @SpecTeams Blog posts give parents spiritual support from the comfort of their own homes! #specialteams
1:18 am SpecTeams: @Awildride Feel free to tell us a little about your work as well if you like! 🙂 #specialteams
1:18 am sneakpeekatme: RT @SpecTeams: @BarbDittrich that is a LOVELY quote “Watch for where Gods working & join Him.” #specialteams
1:19 am BarbDittrich: @Sparrowbug We were birthed thru a local church, but were never intended to stay there. 3yrs ago, we incorporated & are natl #specialteams
1:19 am SpecTeams: @BarbDittrich How often do you blog about your experiences; and what kind of response do you receive? #specialteams
1:20 am Sparrowbug: @BarbDittrich I mean… for what isn’t through the online community itself. I saw some respite effort for parents…. #specialteams
1:20 am SpecTeams: RT @BarbDittrich: @Sparrowbug We were birthed thru a local church, but were never intended to stay there. 3yrs ago, we incorporated & are natl #specialteams
1:20 am BarbDittrich: @Sparrowbug We make connections thru churches, other orgs or individuals thru in a given area. We also have a “how to” guide. #specialteams
1:20 am SpecTeams: @BarbDittrich That’s amazing Barb! #specialteams
1:21 am BarbDittrich: @SpecTeams Thanks. We do the blog on Tues & Sat. God really writes it. I just take dictation! 🙂 Great response. #specialteams
1:21 am SpecTeams: It is very easy to feel terribly isolated when your family is dealing with complicated health issues. #specialteams
1:21 am sneakpeekatme: @Sparrowbug I have highlighted a few resources, as well as Barb’s in a recent post for SN parents http://bit.ly/bFWrGy #specialteams
1:21 am sneakpeekatme: @Sparrowbug I have highlighted a few resources, as well as Barb’s in a recent post for SN parents http://bit.ly/bFWrGy #specialteams
1:22 am BarbDittrich: @SpecTeams Absolutely! And we parents need HOPE! That is where God can recycle our pain to bless others. #specialteams
1:23 am SpecTeams: @BarbDittrich How do you reach out to parents? or do they find you?!? #specialteams
1:23 am sneakpeekatme: Sorry for the dupes…oh Twitter {shaking fist} #specialteams
1:23 am BarbDittrich: @SpecTeams It has been wonderful connecting parents thru social media like FB & Twitter. #specialteams
1:23 am SpecTeams: RT @sneakpeekatme: @Sparrowbug I have highlighted a few resources, as well as Barb’s in a recent post for SN parents http://bit.ly/bFWrGy #specialteams
1:24 am BarbDittrich: @SpecTeams We reach out thru synergistic organizations. Sometimes parents find us by word of mouth. No stone left unturned! #specialteams
1:25 am SpecTeams: @BarbDittrich It is wonderful that you have turned your family’s challenges into such a supportive endeavor! #specialteams
1:25 am BarbDittrich: @SpecTeams We work with local YMCAs, hospitals, churches, camps to reach out & share programming. #specialteams
1:25 am BarbDittrich: @SpecTeams I think I would be in the local mental hospital if I hadn’t found the purpose we’d been given in this trial! #specialteams
1:26 am SpecTeams: Once again, you can find @BarbDittrich and her family’s wonderful efforts to help families here http://www.snappin.org/ #specialteams
1:27 am sneakpeekatme: Everyone needs help, be it financial, spiritual or emotional that’s what makes organizations like @BarbDittrich‘s so great! #specialteams
1:27 am SpecTeams: @BarbDittrich I feel the same way – I had to find the purpose in our experiences. It hasn’t always been easy. #specialteams
1:27 am SpecTeams: RT @sneakpeekatme: Everyone needs help, be it financial, spiritual or emotional that’s what makes organizations like @BarbDittrich‘s so great! #specialteams
1:27 am moondustwriter: RT @SpecTeams: Once again, you can find @BarbDittrich and her family’s wonderful efforts to help families here http://www.snappin.org/ #specialteams
1:27 am BarbDittrich: @SpecTeams Just to let you know, we also do things like use SibShops to compliment what we are doing. #specialteams
1:27 am SpecTeams: @sneakpeekatme well said!!!! #specialteams
1:28 am SpecTeams: I have been popping in and out of @ParkerMama ‘s stream and FB but still don’t see any updates …. #specialteams
1:28 am SpecTeams: @BarbDittrich SibShops …. how does that work? #specialteams
1:29 am BarbDittrich: @SpecTeams It ISN’T always easy, especially when you’re feeling like a big ol’ bundle of need yourself. But that’s when… #specialteams
1:29 am Sparrowbug: @SpecTeams Ohh… wow. Somehow I missed their RSV crisis. That’s so scary. #specialteams
1:29 am BarbDittrich: @SpecTeams …I realize it’s God doing His work, not me! SibShops is a natl org that I can post a link to later. #specialteams
1:30 am sneakpeekatme: @SpecTeams There was this from @5minutesformom –> Parker Desperately Needs Your Prayers? http://ow.ly/1qsRXV #specialteams
1:31 am BarbDittrich: @Sparrowbug That RSV crisis IS super scarey!!! Have a spec needs nephew disabled due to RSV. This is where our work helps. #specialteams
1:31 am SpecTeams: You can also find @BarbDittrich and many great parents at our ning community http://specialteams.ning.com/ Come, join, share! #specialteams
1:31 am SpecTeams: @BarbDittrich yes, that would be great if you could post that link for us – thanks! #specialteams
1:32 am SpecTeams: @sneakpeekatme thanks for that update – it is terrifying!!! #specialteams
1:32 am BarbDittrich: @SpecTeams LOVE the ning community ‘cuz it’s more private & you get focused info! #specialteams
1:32 am baby_fphat: RT @SpecTeams: You can also find @BarbDittrich and many great parents at our ning community http://specialteams.ning.com/ Come, join, share! #specialteams
1:32 am SpecTeams: Whatever our individual understandings of faith and God, @ParkerMama and her team need our thoughts and prayers tonight #specialteams
1:32 am kadiera: Parker was stable enough this afternoon 2 transport by ambulance rather than helicopter, but RSV is tough on kids w good lungs #specialteams
1:33 am SpecTeams: @BarbDittrich thank! i love the ning too – but im still trying to figure out how it works technically, so i can add to it! #specialteams
1:33 am BarbDittrich: @SpecTeams Absolutely!!! #specialteams
1:33 am SpecTeams: RT @kadiera: Parker was stable enough this afternoon 2 transport by ambulance rather than helicopter, but RSV is tough on kids w good lungs #specialteams
1:34 am BarbDittrich: Here’s the link to the Sibling Support Project which founded SibShops: http://www.siblingsupport.org/ #specialteams
1:34 am SpecTeams: I would like to add a blog roll for our roster to the ning – as well as start plugging in information on support for families #specialteams
1:34 am Sparrowbug: Oh… wow… small world. Parker and Mama live in my home town where my folks live. I might meet them someday. #specialteams
1:34 am SpecTeams: RT @BarbDittrich: Here’s the link to the Sibling Support Project which founded SibShops: http://www.siblingsupport.org/ #specialteams
1:34 am sneakpeekatme: Yes, RSV is super scarey esp for a trach kid, with lung issues…oye, makes me crazy just thinking of it. #specialteams
1:35 am SpecTeams: @Sparrowbug I’m sure @ParkerMama ‘s team would love ot hear from you! #specialteams
1:35 am baby_fphat: RT @SpecTeams: I would like to add a blog roll for our roster to the ning – as well as start plugging in information on support for families #specialteams
1:35 am SpecTeams: I put up a bunch of forum topx at http://specialteams.ning.com/ to get peoples’ impressions, ideas for SN blogger/writer conf. #specialteams
1:35 am BarbDittrich: I truly think we’re only beginning to scratch surface of how many families could be supported thru chats/blogs/sites like this #specialteams
1:36 am SpecTeams: @sneakpeekatme i know – me too. trying NOT to think about it too much and just send as many positive vibes as I can #specialteams
1:36 am baby_fphat: RT @SpecTeams: I put up a bunch of forum topx at http://specialteams.ning.com/ to get peoples’ impressions, ideas for SN blogger/writer conf. #specialteams
1:36 am sneakpeekatme: I have a post on RSV awareness that I bring out every few weeks, FYI we are still in RSV season for at least another month! #specialteams
1:36 am kadiera: @sneakpeekatme Alex had RSV last spring. very scary even compared 2 NICU experiences. #specialteams
1:37 am SpecTeams: @BarbDittrich I absolutely agree! Online is an easy way 4 families to get and stay connected when dealing w/medical condtns #specialteams
1:37 am SpecTeams: @kadiera that’s a terrifying prospect considering the NICU is the scariest place i have ever spent time in #specialteams
1:37 am SpecTeams: RT @sneakpeekatme: I have a post on RSV awareness that I bring out every few weeks, FYI we are still in RSV season for at least another month! #specialteams
1:38 am erinrbreedlove: Did I hear talk of a blogging conference? #specialteams
1:38 am Sparrowbug: @SpecTeams Sometimes, when you’re in a crisis… it’s easier to accept spiritual and mental help from strangers in my opinion. #specialteams
1:38 am kadiera: online is a huge help when your medical issues are rare. more likely to find similar people 🙂 #specialteams
1:38 am BarbDittrich: @SpecTeams Nice part of internet is you can access from home or hospital w/child. Many can’t get out. Even internet chrch! #specialteams
1:38 am SpecTeams: Holding sessions remotely (via tele n Internet) really seem 2 b the easiest way for a conference #specialteams
1:39 am SpecTeams: @erinrbreedlove yes, you did!!! 🙂 #specialteams
1:39 am BarbDittrich: @Sparrowbug I would absolutely agree with that. In Christianity, they call that “coming to the end of yourself”. 🙂 #specialteams
1:39 am erinrbreedlove: I would be so interested in that if it were reasonably located! #specialteams
1:40 am SpecTeams: @Sparrowbug yes, strangers and people who have been or are in similar situations. strange, but definitely true … #specialteams
1:40 am BarbDittrich: @kadiera That’s a great point! And the exchange of information between parents is invaluable! #specialteams
1:40 am sneakpeekatme: Here is the RSV post just in case you don’t know what to look for http://bit.ly/byEUFo this weekend is Austin’s next round ;( #specialteams
1:40 am Sparrowbug: @kadiera Even if they’re not rare- like Autism-each child is so different within the spectrum. We often have little in common. #specialteams
1:40 am SpecTeams: I am going to price out tele-conference and webinar services. The votes seemed to be in favor of recorded sessions >>> #specialteams
1:41 am SpecTeams: for people who might not be able to make the live sessions. The forum votes also backed the idea of several 1-2 hour >>> #specialteams
1:41 am BarbDittrich: @SpecTeams Wow! That’s a terrific undertaking!!! #specialteams
1:41 am Sparrowbug: I’ve mentioned this to others but parents of Autistic children often feel an intense spirit of “competition” in some ways. #specialteams
1:42 am SpecTeams: session, rather than all-day affairs. I am thinking of aiming for August. Hope everyone will visit the ning and give input! #specialteams
1:42 am SpecTeams: @BarbDittrich Several parents have expressed frustration at not being able to get to events – so this an alternative #specialteams
1:42 am BarbDittrich: @Sparrowbug I’d like to hear more about that… #specialteams
1:43 am Sparrowbug: It’s hard to see others either achieve or fail when the diagnosis is the same but treatments have different outcomes. #specialteams
1:43 am SpecTeams: @erinrbreedlove great! we’d love to have you!! #specialteams
1:43 am BarbDittrich: @SpecTeams See! You’re watching where God’s working and joining Him! 🙂 #specialteams
1:43 am Sparrowbug: I’ve had more luck befriending those online where you can’t sit and compare child to child when Autism is just so different. #specialteams
1:44 am SpecTeams: I will be posting a forum ? on the ning about TOPICS people would like covered here: http://specialteams.ning.com/ #specialteams
1:44 am BarbDittrich: @Sparrowbug Wow! That makes connecting with other parents of kids with ASD a double-edged sword! #specialteams
1:44 am birdonthestreet: I’ve often thought is would be great to have a retreat for care-givers even though I know it’s hard to get out for some. #specialteams
1:44 am SpecTeams: @BarbDittrich LOL – funny world isn’t it? Not something I ever would have though of on my own! #specialteams
1:44 am sneakpeekatme: @Sparrowbug Good point, but I don’t think that is unique to Autism community, the same is true for so many of us. #specialteams
1:45 am Sparrowbug: My children are very, very high-functioning and we had a lot of success… so some begrudged us our progress and I understood. #specialteams
1:45 am baby_fphat: RT @SpecTeams: I will be posting a forum ? on the ning about TOPICS people would like covered here: http://specialteams.ning.com/ #specialteams
1:45 am SpecTeams: @birdonthestreet yes, a retreat would be lovely – but it would take a lot of organizing b/c of medical issues; if I had >>> #specialteams
1:45 am BarbDittrich: @sneakpeekatme You make a good point. Kids w/hemophilia in the same family can have it behave differently between siblings! #specialteams
1:46 am SpecTeams: @birdonthestreet >> or can scare up some volunteers to help me with this – we might be able to make a retreat happen next year #specialteams
1:46 am sneakpeekatme: @birdonthestreet Spa Day!! WOOT!! #specialteams
1:46 am Sparrowbug: Autism is unique in some of its social aspects, though… and I understood the heartbreak of things not working. #specialteams
1:46 am BarbDittrich: @birdonthestreet That’s where we can connect parents to resources that currently exist! Check out our website for camps. #specialteams
1:46 am SpecTeams: I see you lurkin’!! @baby_fphat thank you for showing us your support!!! 🙂 #specialteams
1:47 am birdonthestreet: As I’ve said before, my area is very lovely AND cheap! #specialteams
1:47 am SpecTeams: @sneakpeekatme Spa day works for me!!!! heck …. a spa week please! If a retreat happens, sure we could get some massages! #specialteams
1:47 am birdonthestreet: @BarbDittrich Ooh, Barb–fabulous idea! #specialteams
1:47 am BarbDittrich: @sneakpeekatme Not to make you feel worse… We’re doing a Spa Day in WI in May at a hi end Salon/Spa. Can get 1going by u! #specialteams
1:47 am SpecTeams: @birdonthestreet where are you? #specialteams
1:47 am Sparrowbug: Watching a child withdraw when treated the same way as another child and they share a diagnosis. No rhyme or reason. It’s sad. #specialteams
1:48 am sneakpeekatme: @Sparrowbug I don’t we are as different as you think, while your child may not relate socially, society treats my child (more) #specialteams
1:48 am SpecTeams: @birdonthestreet and how big is your house? 🙂 #specialteams
1:48 am Sparrowbug: Anyway… I’ve found, for Autism, online communities are easier and more productive. I’m glad for that barrier somewhat. #specialteams
1:48 am birdonthestreet: @SpecTeams I’m in the New Orleans area. #specialteams
1:49 am SpecTeams: Oh geez @Sparrowbug – that sounds incredibly difficult. #specialteams
1:49 am SpecTeams: @birdonthestreet Oh! I am actually headed to New Orleans next month for the Amnesty Int’l annual meeting! be there Apr 9-11 #specialteams
1:50 am BarbDittrich: It’s interesting that you all are discussing this… I’ve seen that people can get too focused on having to have exact… #specialteams
1:50 am SpecTeams: RT @Sparrowbug: Anyway… I’ve found, for Autism, online communities are easier and more productive. I’m glad for that barrier somewhat. #specialteams
1:50 am sneakpeekatme: @Sparrowbug as a social pariah. Either way we are all in the same boat raising awareness about others seeing our whole child #specialteams
1:50 am birdonthestreet: @SpecTeams gorgeous time of year to be down here. Glorious usually. #specialteams
1:51 am BarbDittrich: …exactly the same road all the way thru. Instead, it’s valuable to find the common ground & learn what you can from many. #specialteams
1:51 am Sparrowbug: @sneakpeekatme I wouldn’t say it’s unique to Autism, but it occurs frequently in Autism due to the Spectrum’s social aspects. #specialteams
1:51 am SpecTeams: @sneakpeekatme oh absolutely! I still get steamed at how people would recoil or make a face when they first saw our son. #specialteams
1:51 am baby_fphat: @SpecTeams i’m there for ya, babe. #specialteams
1:51 am SpecTeams: RT @BarbDittrich: …exactly the same road all the way thru. Instead, it’s valuable to find the common ground & learn what you can from many. #specialteams
1:52 am Sparrowbug: @sneakpeekatme You’re often trying to treat symptoms that aren’t tangible and look for progress that is so subjective. #specialteams
1:52 am SpecTeams: @BarbDittrich Barb, you have such a wonderful attitude about it all! Thank you for that! #specialteams
1:52 am BarbDittrich: @SpecTeams My sense of humor has had to reeeeeally expand — You should see the looks WE get when son is black & blue! 😀 #specialteams
1:52 am sneakpeekatme: @Sparrowbug My nephews are Autistic & it is rough for my sisters to really fight for them so much, they didn’t join any groups #specialteams
1:53 am BarbDittrich: @SpecTeams That’s where God has grown me… I’m pretty transparent. Have plenty of bad days. But glass is mostly half-FULL! #specialteams
1:53 am SpecTeams: @BarbDittrich Would u like to re-post the link to Snappin Ministries and any worthy FB groups in our last few minutes? #specialteams
1:53 am sneakpeekatme: @birdonthestreet Still trying to get everyone to NO? Come peeps..Los Angeles is the place to be!!! 😉 #specialteams
1:53 am eventRobot: @SpecTeams We started much in person, but as times change, the internet portion is exploding!!! #specialteams
1:54 am birdonthestreet: @sneakpeekatme Girl’s gotta give it a try, right? #specialteams
1:54 am SpecTeams: @BarbDittrich has a great attitude n a wonderful team! I’m so glad she could be here tonight – hope everyone is following her! #specialteams
1:54 am Sparrowbug: @sneakpeekatme We tried some groups… and ended up with the online Autism community instead. Less emotional in some ways. #specialteams
1:54 am SpecTeams: @sneakpeekatme LOL – yeah, but New Orleans is in the middle!!! #specialteams
1:55 am BarbDittrich: Again, our website is http://snappin.org/ Our blog http://comfortinthemidstofchaos.blogspot.com/ #specialteams
1:55 am SpecTeams: @Sparrowbug oh yes, i would imagine its easier to engage on potential emotional issues remotely, in some ways #specialteams
1:55 am SpecTeams: RT @BarbDittrich: Again, our website is http://snappin.org/ Our blog http://comfortinthemidstofchaos.blogspot.com/ #specialteams
1:56 am Sparrowbug: Although I’ve done a lot with other Special Needs families in person and it’s been wonderful. Autism is “harder” for a group. #specialteams
1:56 am BarbDittrich: Our FB grouphttp://www.facebook.com/?ref=home#!/group.php?gid=44117735820&ref=mf . Request to join. #specialteams
1:56 am sneakpeekatme: @BarbDittrich Love your optimistic attitude!! {Secretly glad you are not always happy though…makes me feel human} 😉 #specialteams
1:57 am BarbDittrich: @sneakpeekatme LOL! I’m with ya! I HATE those perfectly perky people!!!!! #specialteams
1:57 am Sparrowbug: BTW… I’m not saying “Autism is harder” but a group effort in person is a complex thing when it comes to Autism itself. #specialteams
1:57 am SpecTeams: Hope everyone will reach out to other parents they know and point them to ning, this chat http://specialteams.ning.com/ #specialteams
1:57 am BarbDittrich: @Sparrowbug Other groups I’ve chatted with say that many parents of auties have ASD traits. Is that perhaps an issue? #specialteams
1:58 am SpecTeams: especially for parents, caregivers, supporters who are blogging/writing about the experiences http://specialteams.ning.com/ #specialteams
1:58 am Sparrowbug: I come to these chats and I’m terrified at all the rest of you go through, and I can’t imagine. #specialteams
1:58 am SpecTeams: RT @sneakpeekatme: @BarbDittrich Love your optimistic attitude!! {Secretly glad you are not always happy though…makes me feel human} 😉 #specialteams
1:58 am SpecTeams: RT @BarbDittrich: Our FB grouphttp://www.facebook.com/?ref=home#!/group.php?gid=44117735820&ref=mf . Request to join. #specialteams
1:59 am sneakpeekatme: @Sparrowbug Well thank goodness you found some refuge with an online group…they have saved my life!! #specialteams
1:59 am Sparrowbug: @BarbDittrich In some cases, that it definitely true. Due to genetics not all parents of ASD kids have great social skills. #specialteams
1:59 am BarbDittrich: @Sparrowbug In our 8 yrs of ministry, I’ve only encountered 1 parent who thought she had it harder than any others. #specialteams
2:00 am SpecTeams: @Sparrowbug Interesting observation – It’s sooo scary 2 see what others face. But it also inspires me #specialteams
2:00 am BarbDittrich: @Sparrowbug I don’t think any of us would trade our troubles for one anothers! #specialteams
2:00 am Sparrowbug: @BarbDittrich I know, in my case, my children’s progress, alienated us from groups a few times. They wanted our secret. #specialteams
2:01 am SpecTeams: @BarbDittrich Godh, i know right — sometimes you look at others and think “how can they besurviving, we’re so lucky” #specialteams
2:01 am BarbDittrich: @SpecTeams When I see the kids with Downs who have leukemia that seems unspeakably heartbreaking to me! #specialteams
2:01 am Sparrowbug: There was no secret, though. We just… somehow managed. It was hard and I didn’t blame them. You want to help your child. #specialteams
2:01 am BarbDittrich: @Sparrowbug What an awful amount of pressure on you! #specialteams
2:01 am moondustwriter: RT @Sparrowbug: @BarbDittrich I know, in my case, my children’s progress, alienated us from groups a few times. They wanted our secret. #specialteams
2:02 am SpecTeams: We are at the top of the hour! Feel free to keep chattig, but I’m going to call it – and say a very big thank you to >> #specialteams
2:02 am SpecTeams: @BarbDittrich for her attitude, her efforts and for sharing it all with us tonight! Thank you Barb…… you rock! 🙂 #specialteams
2:02 am Sparrowbug: @BarbDittrich It was sad, but you can’t help others if they see you as a threat somehow. There aren’t enough services here. #specialteams
2:02 am BarbDittrich: OK, just to crack you all up… I have 2 special needs kids crying & falling apart in my lap right now!!!! UGH! #specialteams
2:03 am SpecTeams: RT @BarbDittrich: OK, just to crack you all up… I have 2 special needs kids crying & falling apart in my lap right now!!!! UGH! #specialteams
2:03 am Sparrowbug: @BarbDittrich So, that became an issue too. Why were my kids still receiving services when others had more need of them? #specialteams
2:03 am SpecTeams: @BarbDittrich ROTFL!!!!!! #specialteams
2:04 am BarbDittrich: @SpecTeams Julie, bless your heart for all you do! So glad to connect with any & all of you!!! #specialteams
2:04 am SpecTeams: And once again, please come join the developing ning http://specialteams.ning.com/ post ur thoughts, ideas, suggestions #specialteams
2:05 am Sparrowbug: It was complex and I didn’t blame them, but it did make online communication easier for everyone. SN are hard in many ways. #specialteams
2:05 am SpecTeams: @BarbDittrich Thank you Barb – it has truly been a pleasure to meet and get to know you and your #specialteams better. You are amazing …
2:06 am BarbDittrich: @Sparrowbug The anonymity & control of the online community can be really helpful for situations like you’re describing! #specialteams
2:06 am jterzieff: RT @BarbDittrich: Our FB grouphttp://www.facebook.com/?ref=home#!/group.php?gid=44117735820&ref=mf . Request to join. #specialteams
2:06 am jterzieff: RT @BarbDittrich: Again, our website is http://snappin.org/ Our blog http://comfortinthemidstofchaos.blogspot.com/ #specialteams
2:07 am SpecTeams: Hope to see everyone back again next week, same time, same place for the next #specialteams chat
2:07 am BarbDittrich: @SpecTeams Thanks, Julie! I’m really just average, but I think The One who holds me up is truly amazing! 🙂 Blessings to all #specialteams
2:07 am moondustwriter: RT @BarbDittrich: Our FB grouphttp://www.facebook.com/?ref=home#!/group.php?gid=44117735820&ref=mf . Request to join. #specialteams
2:08 am SpecTeams: And I hope everyone will keep @ParkerMama and her #specialteams in their thoughts and prayers
2:08 am SpecTeams: And if anyone gets/sees news about @ParkerMama plz RT and let us all know! #specialteams
2:08 am Sparrowbug: @EnabledKids Yes, I completely agree. I’m sorry, I didn’t see your tweets because I was in the #specialteams chat. I agree, though.
2:08 am Sparrowbug: It was nice to chat with everyone. I’m interested in some of these wonderful sites. Thanks. JT, keep posting on Parker. #specialteams
2:09 am SpecTeams: Oh! and if there are any ning experts lurking out there – please speak up! I could use some tech support! 🙂 #specialteams
2:10 am SpecTeams: @Sparrowbug thank you for joining and sharing Wendy – i know you have been through a lot recently! *hugs* #specialteams
Be Sociable, Share!

Comments are closed.